Table of Contents CHAPTER ONE..............................................................................................................................1 INTRODUCTION...........................................................................................................................1 CHAPTER TWO.............................................................................................................................4 BACKGROUND.............................................................................................................................4 2.1 THE BURDEN OF ANOREXIA NERVOSA.....................................................................4 2.1.1 CLASSIFICATION AND DIAGNOSIS..................................................................4 2.1.2 EPIDEMIOLOGY....................................................................................................5 2.1.3 ANOREXIA NERVOSA CO-MORBIDITY...........................................................7 2.2 Treatment of Anorexia Nervosa.............................................................................................9 2.3 The role of parents in adolescents with chronic medical illness..........................................10 Chapter 3: Methodology................................................................................................................10 3.1. Literature Search.................................................................................................................11 3.2. Rationale for Metasynthesis................................................................................................11 3.3. Study Design.......................................................................................................................13 3.4. Search strategy and selection Criteria.................................................................................15 3.5. Assessment of Article Quality............................................................................................16 Chapter 4: Results.........................................................................................................................18 4.1 Data analysis............................................................................................................................18 4.2 Presentation of studies.............................................................................................................18 4.3 Quality assessment (Using CASP)...........................................................................................19 4.4 Thematic analysis.....................................................................................................................19 Article 1:...................................................................................................................................19 Theme 1: Cause, Symptoms and Prevalence and Treatments of Anorexia Nervosa in Adolescents......................................................................................................................19 Theme 2: Significance of treatment of Anorexia Nervosa in Adolescents.....................21 Article 2.....................................................................................................................................22 Theme 1 Diagnosis and impact of Anorexia Nervosa on Adolescents and family relations .........................................................................................................................................22 Article 3:...................................................................................................................................26
Theme 1: Family based therapy (FBT) treatment for Anorexia Nervosa.......................26 Article 4.....................................................................................................................................30 Theme 1 Roles of parents in management of Anorexia Nervosa....................................30 Article 5.....................................................................................................................................31 Theme 1: Challenges and limitations in FBT for treatment of adolescent patients........31 Chapter 5: Discussion....................................................................................................................34 Chapter 6: Conclusion....................................................................................................................40 Chapter 7: References....................................................................................................................45
CHAPTER ONE INTRODUCTION Eating disorders are severe mental health illnesses and rank highly among chronic illnesses in young people. They pose a significant public health burden involving huge costs to the individual, the family and the society. Anorexia Nervosa is a severe eating disorder with its onset typically in adolescence more commonly in females. Its severity poses a high economic and emotional burden for suffers and carers with challenges in treatment often leading to progression into adulthood robbing a young person of years of productivity to themselves and the society, affecting their professional and educational development and possibly leading to death. Individuals with AN have a significantly increased risk of co-morbid psychiatric disorders with and increased risk of depression, obsessive compulsive disorders and pervasive developmental disorders. AN is also listed as a chronic illness in adolescence with major impact on the adolescent growth, puberty and psychological development with a mortality risk higher than other chronic diseases in adolescence like Type 1 diabetes or asthma. In addition, adolescents with other chronic illnesses like Type 1 diabetes, cystic fibrosis, celiac disease and irritable bowel disease have an increased risk of eating disorders2. Anorexia nervosa stands out as not only a severe mental illness but a severe chronic disease which leaves lasting consequences on both the sufferer and their family with the highest mortality rate of any psychiatric illness. The sufferers present with acute and chronic morbidities that affect every organ system of the body all increasing their risk of mortality or long term risk of chronic health problems even when they have been successfully treatedandrecoveredfrom AN. Chronic underweightinadolescence impactsseverelyongrowthanddevelopmentwithhealtheffectsinadulthood. Additionally, people with AN show a marked disturbance in cognitive and emotional functioning.Ofsignificantpublichealthconcernisalsothefactthatmajorityof adolescents with an eating disorder do not seek orreceive treatment for their weight problems leading to more significant impact on their ability to function as adults. 1
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AN generally develops in adolescence when children are still very much in the care of parents or guardians. The most studied interventions for AN focuses on the families whichlargelydependsonthesupportandcommitmentofparentstoeffecta behavioural change leading to a recovery of the young person. Parents play a great role in the management of anorexia in terms of recognition, treatment and recovery. The process generally begins from recognition of the problem by one or both parents who are concerned about their childโs dieting behaviour or weight loss and therefore bring them to the attention of health professionals. This study focuses on the qualitative studies on parentsโ views about treatments for anorexia nervosa. Research has shown the superiority of family based therapy (FBT) in the treatment of AN4โ a modality where parents and siblings play a central role in the recovery of the child. Although Quantitative studies on eating disorders helps us to evaluateoutcomesofvarioustreatmentoptions,qualitativestudiesimprovesour understanding giving us insight and a description of the complex issues involved in the treatment from the perspective of the participants5. Qualitative research is intended to penetrate to the deeper significance that the subject of the research ascribes to the topic being researched. It involves an interpretive, naturalistic approach to its subject matter and gives priority to what the data contribute to important research questions or existing information6. This approach mimics that of a psychiatrist who in interacting with a patient lays emphasis on what the patient feels and experiences7. Evidence derived from qualitative studies complements systematic reviews of quantitative studies6. Metasynthesisisasystematicreviewandintegrationoffindingsfromqualitative studies8.Itcombinesandadaptsapproachesfrombothmeta-ethnographyand grounded theory9with a view to achieving analytical abstraction at a higher level, by rigorously examining overlap and elements in common among studies10. Thematic analysis is interpretive and allows the identification of recurrent themes in identified studies which can then be summarised under headings11. Qualitative syntheses provide evidence for the development, implementation, and evaluation of health interventions8. Qualitative studies have also been published on the views of parents/guardians, healthcareprovidersandpatientsonthetreatmentofAN.Metasynthesisonthe treatment of AN focusing on the experience of adolescent and adult patients have been 2
published outlining the importance of their family in their care. A metasynthesis has also been published exploring the intersecting viewpoints of parents, families and healthcare professionals on the treatment of AN. Adolescence is a unique stage defined as a development period between childhood and attainment of adulthood. Parental involvement is extremely vital to the success of interventionsinadolescentsforchronicdiseaseandimportantinthesuccessof anorexia nervosa treatment. In line with studies already done, my dissertation provides an update on previous metasynthesis focusing wholly on the views of parents about the treatment of AN in their adolescents. My objective is to provide any new insight into the view of the parents as to what was optimal in providing the best outcomes and hope that this will ultimately lead to the improvement of care for these young people. 3
CHAPTER TWO BACKGROUND 2.1 THE BURDEN OF ANOREXIA NERVOSA 2.1.1 CLASSIFICATION AND DIAGNOSIS The diagnostic criteria for Anorexia nervosa is set out by the DSM-V and ICD-11. It is an eating disorder characterised a significantly low body, an intense fear of weight gain or becoming fat and a disturbance in the way an individualโs body weight and shape is experienced or persistent lack of recognition of the seriousness of low body weight. A low body weight is defined as a weight less than minimally expected for a child or adolescent in the DSM-V or more specifically in ICD-11 a BMI less than 18.5kg/m2in adults or less than the fifth percentile for children and adolescents. DSM-V further classifies the severity of AN at four levels using the individualโs BMI: Extreme (BMI < 5kg/m2), severe (BMI 15-15.99kg/m2), moderate (BMI 16-16.99kg/m2) and mild (BMI17kg/m2) Amenorrhea previously listed in the DSM-IV is no longer required to make a diagnosis as this conflicts with the inclusion of males or pre-menarche females who may also have AN. AN is classified according to 2 subtypes โ The restricting subtype which involves energy restrictionorweightlossbyfasting,increasedenergyexpenditurebyexcessive exercising,and/orothernon-purgingcompensatorybehaviours;andthe bingeโeating/purgingsubtypewhichincludesthepresenceofbingeeatingand/or purging behaviours like self-induced vomiting. Atypical AN is sets out in the DSM-V as a category where the individual does not fulfil allthediagnosticcriteriaforANbutstillcausesโclinicallysignificantdistressor impairmentโ. A systematic review by Treasure et al aimed to provide evidence that AN follows a distinct course and a longitudinal trajectory with evidence that early interventions could possibly alter illness transition and prevent manifestation into adulthood. They described an illness descent in three phases โ the first marked by an โuneasiness and fullness after eatingโ leading to reduction in food intake, the second marked by severe restriction 4
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and increased activity levels and the third phase involving an extreme emancipation and โgeneral debilityโ. A later stage could commonly feature treatment resistance. 2.1.2 EPIDEMIOLOGY Anorexia Nervosa typically emerges in early to mid-adolescence although it can begin at any age. AN affects 0.9-2.2% of women over their lifetime with a lower prevalence in males of 0.3%. Incidence rates for anorexia nervosa are the highest for females in the 15โ19 age group constituting approximately 40% of all identified cases. The incidence rate is the number of new cases of a disorder in the population over a specified period and is commonly expressed in terms of 100 000 persons per person years for eating disorders. The study of incidence gives insight to aetiology. Prevalence can be expressed as point prevalence (prevalence at a specific point in time), one year prevalence rate (point prevalence plus annual incidence rate) and lifetime prevalence (proportion of people that had the disorder at any point in their life) and is useful for planning of heath care services as it shows demand. Various studies have been done in Europe estimating incidence and prevalence of AN initially showing an increasing incidence but stabilising over the years although the severity of cases requiring hospitalisation has increased since the 1970sโ. Variation in the results in these studies may be mostly due to different policies in different countries andavariabilityofreportingsystems,demographicdifferenceinpopulationsand diagnostic criteria used for different regions at the time of individual studies. In a review carried out by Hoek and Hoeken the estimated incidence of anorexia nervosa was 8 cases per 100,000 population per year for young females with a prevalence rate of 0.3%. These studies is this review however used varying ranges of diagnostic criteria to define AN. A UK primary care register based study representing about 5% of the population found that adolescent girls aged 15-19 years showed the highest incidence with a rate of 47.5/100,000fortheyear2009;theseratesremainedstablebetween200-2009 although the incidence of atypical AN and other restrictive eating disorders increased in that period. This study also showed that 24/100,000 girls had AN onset between 5-12 years of age. In a cohort study by Keski-Rahkonen et al among Finish twin females the 5
estimated incidence of AN in15-19 year old was higher at270 per 100 000 person- years in a large community of 2,881 women. A similar study done in a large population in the Netherlands found the highest incidence of AN in females aged 15-19 years making up 40% of case and had a rate of 109.2 per 100 000; this was a significant increase over a 10 year period from 56.4 per 100 000 person-years. A population based incidence study in 1991 performed by Lucas et al in Minnesota over a 50 year period showed that although the incidence rates for women over 20 years remainedconstant,forfemalesaged15-24years,therewasasignificantlinear increasing trend in incidence. Reported incidence for 15-19 year old females was 73.9 per 100,000 person-years over the period of 1935โ1989. Three large population-based cohort studies of twins in Sweden, Finland and Australia have tried to estimate lifetime prevalence of AN. These studies estimated prevalence in AN (DSM-IV AN with or without amenorrhoea) and broad AN (DSM-V AN) and ranged from 1.2%-2.2% and 2.4%-4.2% respectively. A large population based study done across six European countries showed a life time prevalence of AN to be 0.48%. This study however did not include people younger than 18 years old and more than likely underestimated the true prevalence of AN in the general population. However, in a large representative sample of US adolescents aged 13-18 years the lifetime prevalence of anorexia nervosa was estimated at 0.3% in both females and males. AN in Males Anorexia nervosa is generally estimated to be less prevalent in adolescent males compared to females. AN however is frequently undetected in males and so remains generally underestimated. The European study done across six countries for over 18โs did not find a single male case of AN. A population based study in Minnesota found an incident rate of 1.8 for males as compared to 14.6 for females, however theUK based study showed an incidence of 3.8/100,000 person/years in 15-19 year old males which was similar to females. In the Dutch study previously quoted life time prevalence of AN in males was 0.1. 6
2.1.3 ANOREXIA NERVOSA CO-MORBIDITY Physical co-morbidity Patients with AN display a variety of complications involving their multi-organ systems through various stages of their illness. In patients with chronic disease they have longstanding complications of endocrine, cardiac, pulmonary, renal, haematological, neurological, cutaneous systems and disorders of bone metabolism. Duration of illness and the degree of weight loss are the main risk factors that have been attributed to the development of medical complications in anorexia nervosa. These medical complications are the primary cause for high mortality in these patients not seen in any other psychiatric illness. Endocrine complications include a delay in sexual maturation in preโpubertal anorexic patients with a delay in secondary sexual characteristics as a result of food deprivation. Thyroid abnormalities show a reduction in T3 levels which is proportional to the degree of weight loss. Hypoglycaemia has also been reported in severe cases and can lead to sudden cardiac death. Occasionally, AN is complicated by comorbid Type 1 Diabetes Mellitusalthoughthesetwocansometimescoexistinthesamepatientcreating treatment challenges, with an associated increased risk of mortality. Short stature my result if the growth spurt is affected. Up to 21% of patients with AN and 54% have been reported to have osteoporosis and osteopenia of the lumbar spine respectively. Bone density has been noted to correlate significantly with duration, age of onset of anorexia and amenorrhoea with patients having more severe bone defects if amenorrhoea is prolonged which may not be reversible even with weight gain and resumption of menses. Dermatological complications account for dry skin in these patients which may make them prone to bleeding in the fingers and toes weight loss and loss of subcutaneous tissue may also lead to easy bruisablitiy and decubitus ulcers over bony prominences. Acrocyanosis may be seen in response to hypothermia. Lanugo hair is common along the spine and sides of the face and may represent the bodyโs attempt to conserve heat. Haematological complications have been described in AN and in severe cases lead to hypo-cellularity of the bone marrow. Anaemia has been reported in 21-39% of patients 7
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and leukopenia in 29 to 39%. Thrombocytopenia although less frequent has a reported prevalence of 5% to 11%. Leukopenia could be a lymphocytopenia or neutropenia. Studies have also shown that these abnormalities are related to prolonged duration of illness and protein energy malnutrition. Gastrointestinal complications in AN due to severe weight loss include an elevation in transaminases which may improve with nutritional support. SMA syndrome as a result of loss of adipose tissue fat pad that surrounds the SMA in weight loss can cause severe abdominal pain and vomiting in patients with AN. In severe calorie restriction, pharyngeal muscle weakness can lead to dysphagia potentially making eating more difficult in these patients. Patients with AN can have delayed gut transit time leading to bloating and early satiety potentially worsening their โfear of fatnessโ Pneumothoraxandpneumomediastinumarerarebutlife-threateningpulmonary complications of AN. With longer disease duration, these patients may also show progressively worsening ling diffusion capacity for oxygen and even without a smoking history can have emphysema on imaging of their lungs. Many cardiac complications have been described in patients with AN. Long standing hypovolaemia is a potential cause for findings in many studies showing decreased left ventricular mass, left ventricular index, cardiac output, and left ventricular diastolic and systolic dimensions in patients with AN. Bradycardia and hypotenstion is commonly seenandgenerallyresolveswithre-feedingandnormalisationofbodyweight. Prolonged QT although may not necessarily be a marker of increased disease severity (liked to other causes in these patients e.g. medications) can also indicate risk of sudden cardiac death. Patients with AN show impaired emotion recognition and difficulties in socio-emotional processing.NeuroimagingfindingsincludeventriculomegalyandCSFspace enlargement on MRI and CT, and cerebral atrophy findings which are all partially reversible with weight gain. Renalimpairmentcanleadtoelectrolyteabnormalitieslikehypokalemia, hypophosphatemia and hypernatremia. Impairmentcanalsobeseeninthedentalsystemandparotidglandswiththe development of dental carries and enlargement of the parotid glands. 8
Psychiatric Co-morbidity There is a high rate of psychiatric comorbidity in people with a diagnosis of ANwhich can further complicate treatment and paints a less favourable prognostic feature. Psychiatrydisorderscommonlyseeninpatientswithanorexianervosaaremood disorders/major depression, anxiety disorders, OCD and substance use disorders. About 75% of patients with AN report a life time major depressive disorder, and between 25% and 75% at least one anxiety disorder which may have predated their diagnosis of AN with up to 79% having experienced obsessions or compulsions at a point in their lives. Prevalence of alcohol dependence or misuse is estimated to be between 9-25%. In a study conducted among 101 female adolescents treated at a psychiatric unit 73.3% of patients were diagnosed as having a current axis I psychiatric diagnosis; 60.4% had a comorbid diagnosis of mood disorders, 25.7% an anxiety disorder, 16.8% had OCD and substance use disorder was identified in 7.9%. Patients with AN have also reports psychological difficulties. Feelings unworthiness and self-loathingwithpoorself-esteemandbattlingwithsuicidalthoughts.Impaired concentration, feelings of isolation and social withdrawal tend to worsen with weight loss. 2.2 Treatment ofAnorexia Nervosa The treatment of Anorexia Nervosa involves medication, family therapies and psychotherapy.Theimprovedoutcomescanbeobtainedbycombiningallthese aspects. In most of the cases the anorexia patients does not agree that they need treatment despite having high vulnerability to stressful living and deteriorating health condition. Family based therapy (FBT) or the Maudsley approach is one of the most popular intervention in which instead of hospitalising adolescents parents are engaged in the process to help their child for restoring healthy weight. AN patients may show resistivity towards medication or the treatment process. Thus, the support and control from parents on eating habits and weight management can provide significant results to the health of patient. Along with the weight and eating practices of adolescents FBT also has positive impact upon parent- adolescent relationship. 9
2.3 The role of parents in adolescents with chronic medical illness Theindividualsparentingadolescentswithchronicdiseaseshavetosuffer various psychological challenges. It not only affect the health outcomes of patient but alsoinfluencethequalityofinterventionsusedbytheparent.Todealwiththe complexities and health care challenges parents are expected to support their child in terms of structural barriers such as family and health settings, structural barriers to care andcareissuesinschools.Theparentsmayalsorequiredtosupportthedaily functioning challenges related to their child(SadehโSharvit and et.al., 2018). During caretheinteractionbetweenchildandparent caninfluencetheirrelation,overall environment of family as well as health conditions of the child. The parenting styles or the consistent pattern used by the parents for interaction with the adolescent child plays a significant role in the well being of child. For instance even if the nursing care staff is available within house then parents are required to emphasis on the medication, care needs and nutritional habits of the child. The support, love, care and guidance provided by the parents affect the recovery and health management of the child. The effectiveness of the treatment strategies also depends upon the parenting strategies and their interaction with the child. It beocmes more critical with adolescent child as they are witnessing various changes in terms of growth(Forsberg and et.al., 2017). The supportive parenting style can help children to understand their disease and its interventions. Contrary to this if behaviour of parents is harsh and less cooperative than child may tend to hide their condition and may also neglect the adaptation of the nursing interventions. Chapter 3: Methodology The research methodology is defined as the use of systematic approaches and techniques so that research can be accomplished. The data collection and analysis process makes the research effective in terms of obtaining results and interpretations. This chapter will discuss the data collection methods used in this research along with their justification. The study uses secondary data and thus for data gathering secondary sources are used. For quality outcomes it is very important that literature search used in the secondary data analysis must be effective and proper selection criteria is used for theproject(Cooper,2015).Thechapterwilldiscusstheimpactandmethodsof 10
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assessing the quality of articles used in the study so that research methodology can be improved. 3.1. Literature Search Literature is defined as the scholarly writing for the analysis of particular subject or the topic. The literature sources includes articles, books and dissertation papers. For this project various literature sources related to Anorexia Nervosa are reviewed and analysed. Though scholarly articles and books are analysed for the study purpose but to get more in-depth knowledge previous research works are also analysed. This research project is qualitative and thus for the literature review chosen for the study purpose were alsoqualitative. Theliteraturesearchis very helpfulinthe research as it allows investigating the data and aspects which have not been analysed. The search and review process also helps to enhance the understanding of the key concepts involved in the study and to support knowledge through the suitable evidences. Avarietyandvastrangeofliteraturesourcesareusedforthisstudyso alternative perspective can be understood. It is very important to analyse the treatment and management process of Anorexia Nervosa from the point of view of patients, familiesaswellashealthcareprofessionals(Sung,ChangandLiu,2016).The literature search can be considered as effective way to synthesise the accurate and suitable information for the analysis purpose. To evaluate the good quality literature sourcesforeachofthesourcesreviewedinthisprojectauthorscredentialslike educationalbackground,writingexperiencewerealsoanalysedsothatit canbe assured that the chosen literature source is valid and reliable in terms of quality. 3.2. Rationale for Metasynthesis Meta synthesis is known as coherent approach for analysing the qualitative data in the research studies. The approach allow researcher to search for a specific research question and then to investigate the suitable qualitative evidences for addressing the research question. In this type of synthesis method existing literatures studies are interpreted so that greater meaning can be constructed and better conclusions can be drawn. For instance use of meta synthesis approach to explore the Anorexia Nervosa assist in discovering the existing philosophies, concepts and theoretical frameworks for the disease(Aspfors and Fransson, 2015). 11
Thus, the main rationale for using meta synthesis is to identify the gaps and similarities between multiple studies so that variations as well as consistency among the data can be evaluated. In order to make the research exploratory and descriptive in terms of reliable information meta analysis can assist in identifying the causes of literature gaps. While conducting a secondary research, the study results may vary from one study to another. However, in order to present the improved and satisfactory study outcomes it is required that a well defined mechanism must be used which can be applied to different studies for data synthesis. Contrary to the meta analysis several studies also uses narrative review, however the key reason for choosing meta synthesis instead of narrative is providers better findings when multiple studies are involved. Narrative review is of subjective in nature, it means that each of the author has differentconclusions.Forthisprojectthiscanbeactasdrawbackasvarious perspectives can make it hard to develop a suitable strategy for the treatment of AN. ForthebetteranalysisoftheAnorexiaNervosaitisvitalthatalongwiththe physiological changes, psychological aspects of patient and parental perspectives are also taken into account. It cannot be accomplished by using a single or narrow range of studies. Thus, to meet the required objectives a meta synthesis is used. One of the significant reason to use meta synthesis in this project is that this type of synthesis is more suitable for the research works related to psychology and health care as it explores the interventions which delivers the best output. The approach is also used to collect the evidences in social psychology and other forms of research. Oneofthepopularaspectwhichmakesthemetasynthesissuitableand appropriate for this project is that it can also play supporting document and evidence for many studies(Gurevitch and et.al., 2018). Thus, for the future studies which will emphasis on treatment methods for PN and parenting strategies to improve the health of teenagers in adolescence phase this study can also act as supportive evidence and guiding material. The analysis is also capable to determine and conclude the research questions which are not justified or explained by the researcher. On the basis of this gap future recommendations and necessary interventions can be suggested. Another critical factor which makes the use of meta synthesis justifiable for the research is that along with the formation of evidences for the future research it also addresses the 12
existing gaps in the literatures which enhances the quality of study outcomes. Thus, secondary analysis of the resources can be improved by using this approach of data synthesis. The use of meta synthesis method can be considered as effective for the study as it easily integrate with the complexities of psychological and medical studies. The approach allow transforming the generalised clinical implications and findings into highly abstracted theoretical framework(Zheng and et.al., 2016). The scientific value of this approach helps in proposing the generalised and interpreted content of the concepts. It can be achieved by providing a summary of various studies. For the proposed project of AN treatment analysis meta synthesis gives scientific background, progression at each phase as well as subjective portion of the therapy. 3.3. Study Design Theresearchdesignisknownastheframeworkwhichconsistofvarious techniques and methods to combine different research components in logical manner so that research question can be solved. Thus study design helps researcher to investigate the research using specific methodology. The use of appropriate research design minimise the bias in data and also enhances the data collection and analysis process. The research design is mainly of three types which and researcher can use any of the following design: Descriptive design: This type of study design is suitable for the studies which aims to analyse a problem or issues so that a relevant solution can be researched. For using descriptive design hypothesis are required so that existing theories can be used to discover the solution of the issue(Leung, 2015). With the use of descriptive research design the major emphasis of the researcher is to describe a particular case or the situation through a theory based design. Contrary to the exploratory design in this type of approach more structured and pre planned design is used. Descriptive design is widely preferredforthequantitativestudiesandallowresearchertoprovidesuitable recommendations for the subject. This approach also collect huge data so that detailed analysis can be performed and study limitations can be understood. 13
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Exploratory design: Another type of study design is known as the exploratory design in which specific issues or the subject is analysed in multiple aspects so that its various dimensions can be analysed and evaluated.One of the advantage of using exploratory design is that it helps to explore and conduct an in-depth analysis of the research subject(Lockwood, Munn and Porritt, 2015). The clear problem description and statement also assist in identifying various issues related to the study. They key purpose of using exploratory study design is to gain familiarity for the research problem which is in preliminary stage of the research and investigation. Thus, it is highly useful in developing background information and to clarify the existing concepts of the topic. One of the advantage of using exploratory design isthat it is flexible and helps in prioritising the research questions. Causal: This study design is also known as the experimental design and is usually preferred for the studies which required to analyse and determine the cause and impact of any phenomenon or the process. Causal studies are highly recommended for the experimental studies in which dependent parameters affects the phenomenons. The key objective of using this study design is to create a relationship between effect and cause of any situation(Ludvigsen and et.al., 2016). Causal studies are also structured and qualitative design. Causaldesign is used when the aim of the research is to measure and evaluate the impact of particular change on existing assumptions or the norms. One of the advantage of causal study design is that with this study design replication is possible and study has higher degree of internal validity. However, the causal design is applicable to only when necessary conditions determining causality are satisfied such as non spuriousness and empirical association. In this study exploratory design is used so that with thorough analysis of existing status ofparentingintreatmentofANimprovementareascanalsobeanalysed (Mohammed, Moles and Chen, 2016). The study approach also helps in exploring alternative actions which can be used to deal wit the situation and the priority areas which required more statistical or accurate research. The use of exploratory design supports in developing new assumptions and tentative theories so that feasibility of the 14
study can also be evaluated(Topcu and et.al., 2016). Since the project is also using meta synthesis review the use of exploratory design assist is refining issues as well as new research questions for directing future research. 3.4. Search strategy and selection Criteria In this study secondary sources are such as articles, journals, books and other scholarly work is used to collect the data for analysis purpose. For collecting the data meta synthesis approach is used in which various qualitative studies are analysed so that reliable and suitable data for the research can be collected and reviewed. With this approach though data is collected from multiple qualitative sources but the results are integrated to provide relevant conclusions(Thorne, 2016). For selecting the studies specific search criteria is used so that only reliable and valid data is obtained for the analysis purpose. The data collection process was accomplished by using systematic searching. For this purpose the topic was searched in various data bases such as EMBASE, Medline,CINAHL, SSCI and PsyciNFO in the time range 1980-2018. The use of appropriate search terms and keywords is oneof the essentialaspect in improving the search results. To execute this study search terms such as Anorexia Nervosa, role of parents inAnorexia Nervosa treatment in adolescents, parental perspective on AN treatment were searched. In the search strategy the reliability of the sources, authenticity, and relevancy to the subject was also considered so that only good quality sources are chosen for the research purpose(Elmore, Wright and Paradis, 2018). The quality of the chosen and searched secondary sources is one of the priority in search strategy. Thus, during searching also it was assured that quality of the study is not compromised and they are relevant to the research subject. For selecting any study at first it is assured that it is qualitative and its various themes are in accordance to the research objectives. For choosing the studies specific inclusion and exclusion criteria is also used. For the research purpose only qualitative studies are used which are published in English language. In order to evaluate the evolution and progression of the subject a wide range of time period is chosen for the selection criteria. For instance the for the analysis purpose the studies which were published in the between 1980 to 2018 are selected. Another criteria which was used to select the meta synthesis is that though there are several secondary sources describing 15
the treatment interventions of Anorexia Nervosa but only those studies were selected in whichemphasiswasgiventotreatmentinterventionsforadolescentsformthe perspective and involvement of parents. In addition to these criteria specific exclusion criteria are also used so that highly specific qualitative studies are selected for the research. Since the use of mixed methodology makes study very complex and less exploratory towards the research object the secondary sources based upon mixed methodology are avoided in this project(Phillippi and Lauderdale, 2018). The key focus of the project is on treatment of Anorexia Nervosa thus the qualitative studies which are based upon different eating disorders or obesity are not included in this research. The perspective and the role of parents is one of the critical and essential aspect of this project and thus the studies in which role of parents in treatment of adolescents is not considered were excluded from the selection. 3.5. Assessment of Article Quality The data collection is one of the most important aspect of the research as it develops the foundation for analysing the data. The results and evidences gathered fromdatacollectionandanalysisprocessplaysmajorroleinexecutionand accomplishment of the research. The assessment of the selected article not only enhances the quality and accuracy of the research but it also assists in achieving research goals(Lee and et.al., 2015). The quality of the searched and reviewed article is measured and evaluated in various aspects such as in terms of quality, validity, authenticity, efficiency and accuracy. For this purpose at first it was analysed that if article is peer reviewed or not. Thesecondarysourceswhicharereviewedandevaluatedbyexperiences researchers are considered to be more effective in terms of quality. Another criteria which is use for the quality assessment of the study is the description of the key terms and components of the research. For instance the secondary sources in which brief description of the key research variables, concepts and analytic techniques is given in the form of abstract are considered to be more effective(Finfgeld-Connett, 2018). Thus, the final selection of any study for the data collection purpose was also based upon this qualitymeasurement.Theresearchvalidityisoneofthevitalattributewhichis measured as the means of quality. 16
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It is the responsibility of the researcher to ensure that the articles or secondary sources chosen for the study are reliable and valid. The study which satisfy all attributes for quality satisfy all types of validity aspects such as internal validity, external and construct validity. The external validity is defined as the extent up to which study results can be applied or generalised to various settings. For example the findings and the treatmentstrategiesanalysedandsearchedwithinarticleisapplicabletovarious circumstances(Aspfors and Fransson, 2015). For instance the meta synthesis of the chosen secondary sources can also be applied to parenting role in all chronic diseases among adolescent groups instead of limiting to only AN. However contrary to this the major emphasis of good quality sources is on internal validity of the study. The studies are said to highly reliable and validate when all dependent and independent research variables are taken into account in the selected study. The evaluation of these parameters helps to chosen studies which provide validate conclusion and foundation for the synthesis. Another criteria which must be used to asses the quality of reviewed paper is its relevancy to the time frame and authenticityoftheauthors.Forinstancethequalitativestudiespresentedbythe authorities who are expertise in the field tend to provide more accurate and validate results. To assess this aspect the selected articles must also be reviewed and compared onthebasisofauthorsandorganisationtowhomarticlecorrespondsto.The information provided by the article must be relevant to the modern time changes and must not emphasis on outdated interventions and trends(SadehโSharvit and et.al., 2018). The chosen article must satisfy the all quality aspect of CRAAP test in which the aspect such as currency, relevance, authority, accuracy and purpose of the source is analysed to assess the quality of the secondary sources. The assessment of the quality of article must be conducted carefully so that only good quality and reliable sources are chosen for the meta synthesis purpose. It not only make the research reliable and accurate but also helps in enhancing research feasibility from the future research perspective. 17
Chapter 4: Results 4.1 Data analysis The data analysis for this study is performed by the principle of meta synthesis. The analysis process is initiated with the attentive reading which is then followed by iterative readings of title, subject, abstract and content of the secondary sources. At first the formal characteristics of the study were analysed and extracted so that first order study results can be understood. In addition to this the interpretation of the authors, result discussion is also vital for the result analysis. The thematic analysis of data is possible only when effective themes are developed(Sharkey-orgnero, 1999). The data obtained from the qualitative studies was managed properly so that development of themes can be facilitated. Through the analysis of each article or secondary source various themes were assembled and compared so that key themes with similar features can be developed to answer the research question. 4.2 Presentation of studies For the study total 1200 references, 700 after elimination duplicate references were selected. On the basis of suitability of title, abstract and content around 500 articles were discarded. We read 200 articles and out of them only 13 sources satisfy the inclusion criteria of the study. Thus, only 1.08% of the total references are used for the analysis and result synthesis. During the analysis of chosen 13 studies all were published between 1999 and 2019. 2 of the selected studies included only adolescent's perspective who have experienced or recovering form the AN. A majority of 10 studies were based upon the perspective of parents and their role in the treatment of AN while 1 studies contain the perspective of health care professionals. One study was based upon integration of parents and health care professionals. Though all the studies were stated as eating disorders but the participants included in the study were the parents of AN diagnosed adolescents. In the selection process of the studies the search criteria, inclusion and exclusion criteria of the study and suitability of the abstract and secondary source with the research topic. 18
4.3 Quality assessment (Using CASP) While using the secondary sources for the research purpose it becomes vital for the researcher to assure that only reliable and quality data sources are chosen for the research. Thus, quality assessment criteria is used to evaluate the quality of the study chosen for the research purpose. The CASP (critical appraisal skill program tool) is used to provide strict criteria so that quality of the study can be assured. Though ethical considerations of the selected studies is found to be hard in assessment process but the criteria greatly helped to eliminate the less reliable studies. One of the criteria used by CASP tool is to assess the relevance of study goals and aims of the study. The selection of the study was also based upon qualitative methodologies. The chosen studies included subjective interpretation of participants. The research studies in which justification of the research design is not provided were discarded.Forassessingthequalityofstudiesitwasalsoanalysedthatifdata collection setting was suitable or appropriate for the study or not. The studies in which ethical issues were not considered or in which findings were not clearly described are not included in the study process. 4.4 Thematic analysis Article 1: Sharkey-orgnero I. Anorexia Nervosa: A Qualitative Analysis of Parentsโ Perspectives on Recovery. Eating Disorders 1999;7(2): 123โ41. Theme1:Cause,SymptomsandPrevalenceandTreatmentsof Anorexia Nervosa in Adolescents As per the views in secondary research supported that, Anorexia nervosa is an eating disorder in which a person intentionally limits the intake of food or beverages of strong drive for thinness and an intense fear of gaining weight. However, this can happen if an individual is already thin. The perception of body shape and weight is distorted and has an unduly strong influence on self concept of the person. The resulting weight loss as well as imbalance in nutrition lead to serious complications including death. It has been identified that this disease is not just an eating disorder but it is a protracted course of illness as well as highest mortality rate among all psychiatric 19
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illnesses (Westmoreland and et.al., 2016). Anorexia Nervosa is mainly of two types which are Restrictor types and Bulimic type. In Restrictor type people with this type severely limit how much food they eat that consist of high fat and carbohydrates food items. Whereas, in bulimia people eat too much food and then make themselves throw up. It has been determined from the views in secondary research that there is not any single cause of AN but it is associated with many factors. Predisposing (vulnerable to develop), perpetuating (maintain the disorder of eating) and precipitating factors (trigger the onset). These are the causes that a person develop when suffering from eating disorder. Further, it has also been identified that eating disorder is also starts simply through dieting especially in girls to get in shape and to become healthier. This disease is also developed by the social attitudes towards the appearance of body, genetics and influenced of family. TheviewsofauthorshasalsostatedthesymptomsofANdiseasein adolescence and it is very important to take corrective measures as soon as possible because the death rate is continuously rising. The first and most common symptom which is identified among adolescence is the body weight is contentiously declining and which comes under 85 percent to the normal weight. People having intense fear of gaining more weight even so the weight is losing, excessive workouts and eating behaviour is transformed to bizarre eating behaviour. Further, some more symptoms of AN are identified in females are the absence of three consecutive menstrual cycles without another cause as well as denies hunger feelings. When family member or any person advice them to maintain there body weight, they used to refuse due to fear of gaining body weight. From the study, some other symptoms are also discovered which aredryskin,dehydration,paininabdominal,fatigue,constipation,hyperthermia, emication, stress fractures, yellowness in the skin tone (Mascolo and et.al., 2017). According to the findings from secondary sources, it has been discovered that prevalence of Anorexia Nervosa is very high as females. Prevalence is the total number of population divided by total number of diseased person. Girls are highly suffering from eating disorder as they were seen highly concern about there body shape and weight. It has been identified from the Anorexia Nervosa Statistics and facts that the highest 20
mortality rate is from AN in which 1 out 10 dies within 10 years after the development of this disease. Further, it has also been identified that 4 out of 10 females are suffering from Anorexia Nervosa (Anorexia Nervosa in Adolescents,2018). The prevalence of eating disorder in females is continuously increasing as it has been founded that there are some girls in today's era who are developing this disorder at the age of six. The findings from secondary supported that, treatment is very important to cure this disease. Intervention is very crucial part in getting rid of disease. If person is not treated on time, or making delays, it will lead to give birth to many such diseases. Medical care is the treatment where it is necessary to monitor as well as address the health issues related to AN in adolescence for example, low blood pressure and imbalance in electrolyte. Whereas, nutritional counselling is also important to bring the health of person back. In addition to this, medication, talk therapy, dual diagnosis and family therapy is also a type of treatment that is associated with AN. Among that, family therapy is best for adolescence to treat them suffering from this disease (Ma, 2008). It has been identified from secondary review that family therapy is said to be the most successful treatment of eating disorder. The integration of FBT in the treatment process of AN allows parents to assure the improvement in the practices and behaviour of their adolescent child. Thus instead of shifting entire responsibility to child, parents share equal responsibility which is mandatory for achieving treatment goal (Marucci and et.al., 2018). It has also been analysed that one of the component that make teens highly conscious about family involvement is the privacy concerns. Through the participation of the parents in treatment parents take decisions regarding eating practices of their child. Theme2:SignificanceoftreatmentofAnorexiaNervosain Adolescents The views in literature supported that, It is very important to have a treatment of this disease because this eating disorder has featured by a limitations of intake or consumption of energy food that result in severe health conditions and can cause death. It is the responsibilities of parents to look over there child activities because the risk associated with this disease has very critical measures. The lasting consequences on both the sufferer and their family with the highest mortality rate of any psychiatric illness 21
(Zipfenl and et.al., 2015). The consequences of AN is death and even it has been noticed that adolescence commit suicide by having fear of gaining weight. So, it is very necessary to treat the disease as soon as possible. Further, it has also been stated from the secondary sources that, ignoring or avoiding treatment of AN have very dangerous and serious impact on the internal organ of the body which is the root cause of developing many chronic diseases which is sometimes nit able to cure like health failure, heart stroke cancer, damage of brain etc. Treatment is very important to get rid of all these chronic diseases because the problems are very serious and it will lead to damage of body organs as a whole. In addition to this, it can be sated from the author views point that, eating disorder can not only overcome or solve through will power or desire as it requires proper treatment and diagnosis to cure the child. Willpower cannot able to restore the normal weight as well as eating habits but it also treatments also addresses underlying psychological issues so it is better to treat rather than ignoring or avoiding Parents should take there children's to hospitals and consult doctors because taking treatment at early stage can revealed more better results. Further, there various other issues related to health identified from AN is irregular heartbeat, thinning of bones, sensitivity to cold (Honey and et.al., 2007). Adolescence cannot able to focus on their education as their mind only think for losing weight and having fear of gaining weight on the body as well as they also feel helplessness. So in order to overcome all these diseases, it is very important to undertake treatment on time because delay in treatment doesn't have good results. Article 2 Tierney S. The Treatment of Adolescent Anorexia Nervosa: A Qualitative Study of the Views of Parents, Eating Disorders. 2005; 13(4): 369โ379 Theme 1 Diagnosis and impact of Anorexia Nervosa on Adolescents and family relations There are few symptoms which helps in diagnosis of Anorexia Nervosa. Parents, teachers or other people may observe such symptoms within Adolescents withAnorexia only if adolescents keep their symptoms open or public. If they keep their illness hidden or private then it becomes quite difficult for patents to identify this eating disorder. 22
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Mental health experts or child psychiatrist can diagnose Anorexia Nervosa among adolescents. They can also talk to parents and make them understand their child's behaviour. In many cases even such experts fail to diagnose Anorexia which then requires mental health testing. It has been observed that this Anorexia Nervosa is quite common in adolescents especially in young females. Adolescents who are self critical, perfectionist, introverted, hard working and resist changes are prone to have Anorexia Nervosa as they have very low self esteem for their body image. It can be diagnosed by observing the behaviour of the patient i.e. adolescents with eating disorder reduce their food intake, increases calorie output or burn extra calories, achieve maximum weight loss. These are the main symptoms which can be observed within adolescents which will help the medical practitioners or parents to diagnose Anorexia Nervosa within the patient. According to Brown and et.al., (2018) There are few criteria that are required to be fulfilled in order to diagnose Anorexia Nervosa. First criteria is restriction of intake energy required which leads to significantly lower body weight with respect to their age, sex, physical health. Second criteria is intense fear of weight gain or becoming fat despite of the fact that they will be underweight. Third criteria is denial of seriousness of such low body weight. If all the three criteria get fulfilled then the patient comes under the category of Anorexia Nervosa. There are few alarming signs and symptoms that can also help in diagnosis of Anorexia Nervosa. These signs are divided into two types first is behavioural and emotional, and second is physical.Behavioural and emotional signs are: drastic weight loss, hide weight loss, constantly occupied with thoughts of food, weight, calorie and dieting, restriction of food intake and refusal to eat healthy food, constant comments of feeling overweight or feeling fat despite of the fact that they are already underweight, denial of feeling hungry and many more. Physical signs are: sleeping problem, feeling cold all the time, dry skin, muscle weakness, hair thinning, poor immune system and many more. Parents or family members need to observe such symptoms in order to detect Anorexia Nervosa among their children. As per the view of Mustelin and et.al., (2016) Observation of such symptoms at early stage can help the parents or family members to start their adolescents early treatment.This can further help in reducing future problems. Its diagnosis is extremely important as it impacts each and every organ 23
of a human body. Many times adolescent's make an eating ritual in which they set a schedule or a behaviour like vomiting every time after eating. These rituals help them to reduce their weight below normal weight but reduces their immunity, make them prone to many problems such as stomach cramps, fever etc. Anorexia Nervosa is quite common in adolescents especially girls. Approximately more than 90 percent of such patients are girls which impacts their body in a drastic manner negatively. This negative impact on body can also become a way to observe and diagnose this eating disorder for medical practitioners. Negative impact such as low immunity, missing mensuration cycle formorethan3times,suddenmoodswings,continuousfatigue.Diagnosisand treatment of Anorexia Nervosa can help to improve confidants within children, build a strong relationship between parents and children and with other family members. Impactonadolescents:Kandemirandet.al.,(2017)explainsthatAnorexia Nervosa impacts children physically, emotionally and mentally. Some of the impacts are short termed but some of them are life long. Many times it happens that even after treatment and proper recovery, some effects becomes serious, permanent and remain throughout their lives. With the treatment of Anorexia Nervosa it is important for medical practitioners and family members to focus on such effects as well, because if these effects take a serious turn then they can become life threatening. Adolescents with this disorder have a great risk of depression, self harm and anxiety in their adulthood. Impact on family relation: Ely, Wierenga and Kaye, (2016) further explains that Anorexia Nervosa impacts adolescents parents and their other family members as well. If it is not handled in a proper manner then this eating disorder can impact relationship of adolescents and their family members. Tension within the family can increase and each and every member in different manner.Parents need to focus heir children suffering from Anorexia Nervosa and bring changes within their behaviour and the way their deal with their children. Anorexia Nervosa impacts all Adolescents, their parents and family relations. It has been observed that even diagnosis and treatment may impact confidants and self esteemofanadolescentand their relationshipwiththeir parents.Itis extremely important for the adolescents to accept that they are suffering from Anorexia Nervosa because if they do not accept that they have this problem they can start lying to their 24
parents, it might hurt their self esteem which might work as a barrier between them and their parents relationship. As per the view of Wanby and et.al., (2016) It is extremely important for the parents and family members to understand the way to tackle their children who are suffering from Anorexia Nervosa. It not only affects an individual's physicalandmentalhealthbutmanytimesitalsocreatestensionwithinfamily members. Adolescent's family members struggle with the tension that is created by their current state. If parent's fail to diagnose their adolescent's condition at earlier stages thenitcancreateafeelingofguiltandhelplessnesswithintheirparent's.They constantly feel responsible for their child's condition and blame themselves for ignoring their children. Most of the family members feel angry and frustrated because of their adolescent's condition. If the adolescents are forced to accept their condition then this might create communication gap and misunderstanding within them and their parents. They might stop talking to their parents, stop sharing their feeling or current condition with them due to which misunderstanding among them can be created. It is quite important for family members to understand their problem, understand different ways to tackle their situation. There are various kinds of do and don't that are required to be followedbyfamilymemberssothatAnorexiaNervosaimpactthemandtheir adolescents in positive manner and can be cured. Do' s such as:praise them whenever possible, parents should not be judgemental and should be patient, should plan all the meals beforehand, provide support and lint the level of care that is being provided to them. Don't s such as do not label food in good and bad category, do not threaten them, avoid making harsh comments, do not force them on recovery and many more. Fennig and et.al., (2017) explains that These do' s and don't s help both the adolescents and their parents to reduce thenegative impact of Anorexia Nervosa. These points will also help the family members to build a strong relationship with the individual with eating disorder. Many times impact of this eating disorder is not positive onadolescentswhichdirectlyimpacttheadolescentsandindirectlytheirfamily members. If it is not treated within time and in proper manner then it can directly impact the individual in many ways can cause depression, anxiety disorder, develop suicidal tendencies, cause severe trauma and many other kinds of health disorders. Due to this, children's family members are impacted indirectly as they need to focus more on their 25
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children, feel depressed as these symptoms start to grow within the children, they feel tensed and helpless when they do not have any kind of solution to cure such issues related to Anorexia Nervosa. This impact also increases roles and responsibilities of parents as they need to focus more on their children's behaviour, eating habit, therapies and treatment that is being provided to them. According to a case study Westwood and Tchanturia, (2017) impact of Anorexia Nervosa on family members is equivalent to the impactofadolescent'ssufferingfromthiseatingdisorder.It'simpactcaneither strengthen the bond between children and parents or can weaken it. Many times it also impacts the overall behaviour or attitude of family members both in positive manner or in negative manner. In positive manner it can develop feeling of sportiveness, caring attitude, helping nature towards the individual with eating disorder which helps the adolescents to overcome with this Anorexia Nervosa. In negative manner it can make adolescents family members quite distant from them, avoid communicating with them, develop frustration within the family members. Parents might feel responsible for their current condition due to which they might ignore other family members like adolescents siblings and other members. So it can be said that Anorexia Nervosa impact both adolescents and their family members and relation both positively and negatively. Article 3: Engman-Bredvik S, Carballeira Suarez N, Levi R, Nilsson K. Multi-Family Therapy in AnorexiaNervosaโAQualitativeStudyofParentalExperiences.Eating Disorders 2016;24(2): 186-197 Theme 1: Family based therapy (FBT) treatment for Anorexia Nervosa FBTisoneoftheeffectivetreatmentchoicefortheyoungadultsand adolescents. In this treatment approach parents are considered as the major force to facilitaterecoveryofANpatients.FBTincludesdifferentphaseswhichaimsat encouraging adolescent child to change their perspective towards weight gain. In the first phase of FBT parents and therapists works in collaboration so that alternative ways to re-feed the child can be determined(Tan, Hope and Stewart, 2003). It will assist in integrating parent control in the weight restoration. With the gradual improvement in the second phase parents try to lower their control so that adolescent's can understand their own responsibility of eating practices. 26
Thus, it assists child in developing self management and care practices so that healthy eating habits can be developed in the child and their behaviour and perspective can also be changed. In the final phase of the treatment when parents and therapists are assured about weight recovery goals then they address the relapse planning so that treatment can be completed(Tierney, 2005). One of the advantage of FBT therapy is that it allows parents to initiate the treatment without any need of motivation or insight to adolescents. In majority of cases parental support and decision making override the strong urge of adolescents to resist the meal changes. The treatment also seems to be cost effective and less time consuming. There is popular misconception about AN among adolescents that negligence of parents and family environment is responsible for encouraging the eating disorder. However, from several studies it has been demonstrated that AN is result of behavioural, psychological and physical changes among individual and thus parents must not be blamed for the same.Theinvolvementofparentsintreatmentproceduressaveshugecostof residential care home and also add more value to the outcomes. ContrarytothetraditionalapproachesoftreatmentFBTnotonlyincludes professionals from multiple disciplines but also engage family at the leading scale. It reduces the professional role by providing more intensive care and monitoring in the family environment. The element which is used in FBT to promote the well being of child is emotional bond between children and parents. Since parents are assumed to be experts for their child their role in treatment process of AN is highly valuable(Honey andet.al,2007).DuringtheFBTapproachtheeatingbehaviourofotherfamily members is also observed There are several advantages of using FBT. The therapists provide guidance to the parents so that they can learn the skills to bring behavioural changes and nutritional support to the adolescent child who may not consider themselves as ill. The strategy also has better outcomes on the psychological and behavioural perspective of child and thus eliminates the medical repercussions. It boosts the recovery process so that with the residential care and assistance from the parents quick results can be obtained. In the first phase of FBT parents and therapists both emphasis on malnutrition impacts associated with AN. 27
In response to the limitations and obstacles of FBT along with the patient and parents therapists also try to align with the siblings(Ma, 2008). This interaction assist in creating a family environment favouring to good family relations and eating habits. In order to accomplish this various strategies are also incorporated by the health care service providers which ensure the active participation of the families. For example during the therapy sessions family meals are also conducted so that therapist can get information regarding eating pattern of family, how other family members and patient interact during meal. Through these sessions as a part of treatment process parents are taught that how they can encourage child to eat more. Through interactions and actions parents can convince their child that starvation is not the appropriate solution for the weight loss and there are other healthy and safer choices as well. In the first phase of FBT along with the restoration of the weight of child parents are also coached so that they can expressempathytowardsadolescent(Engman-Bredvik,2016).Thereareseveral symptoms which indicate the beginning and need of initiating second phase. These symptoms include steady weight gain and gradual acceptance of the patient towards parental demand of increased food. Thus, in this phase of FBT it is suggested to focus upon to motivate parents so that they can have more control over food intake of their child. In this phase parents and therapistscanintroduceordiscusstheissuessuchasparentalstyle,family relationships, regular concerns of adolescence age and other parenting issues. With the gradual attention and treatment care when patient is able to manage ideal weight at their own then FBT treatment aims at developing a healthy adolescent identity for the young child. This is marked as the initiation of the third phase of FBT. Since up to this phase adolescents are able to manage the weight management and healthy eating practices the treatment focuses on central issues and complications associated with the adolescence(Bezance, Holliday, 2014). Since such issues can again act as trigger for the recurrence of Anorexia nervosa in the final phase of the treatment emphasis is laid to such issues. The final phase of FBT also focus on enhancing personal autonomy and decision making for adolescents and formulation suitable parental boundaries. The approach is not only used for the treatment of 28
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Anorexia- nervosa but also for the several other types of eating disorders such as ARFID and bulimia nervosa. Instead of shifting and prioritising the responsible and cause of AN FBT approach aims at exploring all possible ways which can be used to deliver best approaches for the child. For the adolescent's development and improving eating practices family and children must work in the collaboration. The treatment procedures cannot respond effective outcomes if parents are not well trained and educated regarding the same. For instance even if appropriate interventions are recommended by the therapist but it depends upon the parents that they make their child willing and able to adopt such interventions(McCormack, McCann, 2015). Through the coach meal training provided to the parents quality lessons are provided to them sothat firm support can be delivered to parents for reversing the starvation impact. The primary concept used in this treatment approach is that therapists along with the support of families aims at restoring weight of the adolescent. When weight is restored to normal it becomes very east to minimise the physical impact of starvation and then individual can continue to normal eating. Along with the weight issues the emotionaldistress isalsooneoftheunderlyingissueinfluencingthepatientsof Anorexia- nervosa. After the primary goals of weight management and eating habits are achieved the FBT deals with the psychological or the emotional perspective of the disorder. The practice is made better by first evaluating the actual cause of disorder instead of directly shifting blame to the parents. For example many people becomes vulnerable to the disorder because of bullying or because of negative body shaming comments within family environment. Though FBT is preferred for AN treatment but the approach is also accompanied by the multidisciplinary team so that other psychological and nutritional needs of child can be satisfied(Berends, 2018). The health goals of the adolescent cannot be achieved without cooperation between parents, therapist and multidisciplinary teams. The factors such as insurance coverage, resources and service availability, parenting sytle, family environment and values can play a critical role in the treatment of AN and behaviour pattern of adolescents. 29
Along with the family support and encouragement effectiveness of the FBT treatment also depends upon consistent instructions and guidance from the therapist and assistance from the treatment tenets. However, the approach can be applied and suitable to only intact families which have well functioning(Wufong, Rhoes, Conti, 2019). The families which often suffer from the issues of internal conflicts or lack of cooperation or emotional attachment may not receive the significant impact of FBT outcomes. In some instances it can be considered that the treatment does not include the emotional perspective of adolescent patients(Mitrofan and et.al., 2019). However, it cannot be considered as true as through the equal participation of the parents it is assured that both nutritional and emotional needs of the patients are fulfilled. Article 4 McCormack, C. and McCann, E., 2015. Caring for an adolescent with anorexia nervosa: parentโs views and experiences.Archives of psychiatric nursing,29(3), pp.143- 147. Theme 1 Roles of parents in management of Anorexia Nervosa According to the author it has been stated that the role played by parents in treating the patient suffering fromAnorexia Nervosa in adolescence is very significant. There is nothing has been important that parents in treating the AN (Bezance and Holliday, 2014). The most studied interventions for AN focuses on the parents that highly depends on the support and seriousness of parents to effect a behavioural change leading to a recovery of the young person. Nurses and Caregivers are an integral part of recovery. First of all if they are force for stopping or leaving that activity, teens will start hiding the problems they are facing. So, parents should act as friends in managing of Anorexia Nervosa. It is quite important that parent should look over all the activities of parents like when there child has stop eating or when there child is eating in excessive food in short period. It has been identified that there are some behaviours that parents should note like excessive physical exercise, self-induces vomiting, laxative use etc. If there child is doing activities like that parents should take them to doctors intermediately because it has been discussed above that if there is delay AN might damage the internal organs. Further, parents should refined the meal time of there child like parents should provide 6 meals in a day regularly. Having family meals daily at 30
home so that parents can not child eating habits on daily basis. Family therapy is said to be the best treatment of eating disorder. It can be identified from the view point of authors from secondary sources that having carry neutral conversation with there child especially at meals in order to understand the views of adolescence in food. In addition to this, when child is having eating disorder at that time parents support is very important because this is the disease that lead the person towards committing suicide and death. Parents should helps their child in following the schedule and advices given by doctors (McCormack and McCann, 2015). Complete or close monitoring is required when child is suffering from eating disorder. Moreover, communication also plays an important role in respect to parents as at the time of AN, child need to focus ion feelings and relationship as opposed to weight and food. Parents should not pin on the look of there child especially to girls because it might be very dangerous to there life. Thus, it can be said from the findings that parents role is significant in the managing the eating disorder of the adolescence or their child. Article 5 Honey, A., Boughtwood, D., Clarke, S., Halse, C., Kohn, M. and Madden, S., 2007. Supportforparentsofchildrenwithanorexia:whatparentswant.Eating disorders,16(1), pp.40-51. Theme1:ChallengesandlimitationsinFBTfortreatmentof adolescent patients FBT also suffers from several limitations and thus make this approach less suitable for each and every patient of AN. There are huge variations among nature of families as well as specific needs of an adolescent. The strategies which suits one family may not address the needs of patient in other family. The FBT needs complete support and love from the parents(McArdle, 2019). Thus, the treatment is not suitable or effective for the families in which parents are abusive or addicted to alcohol or drugs. InadditiontothisforFBTparentsarerequiredtohaveroutineinteractionand monitoring by spending good amount of time with them. However, this may not be possible when both the parents are working or there are limited financial resources. The unavailability of time or the sufficient monetary sources may not allow parents to provide nutritional rich diet to their children's. In some 31
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adolescents severe AN is present along with the critical psychiatric comorbidities like suicide attempts. For such patients FBT may prove to be slower and unsafe. The parent child relationship is also one of the challenging aspect influencing its effectiveness. For instance there are many adolescents who does share good bond with the parents (Medway, 2019). The children may be too independent or the old enough to accept and encourage the parental support. In such situations interventions and care from the parents may seem disturbing to the child and they may show more rebelling attitude. Implementing FBT based interventions for such families can be quite complex. The different perceptions and personal differences among children and parents can also lead to several conflicts in adaptation of treatment strategy. When adolescents do not have trust or understanding with their parents then they must not show agreement to the interventions and principles of FBT. In such situations it becomes very essential to first resolve the emotional differences so that families can easily incorporate in the decision making of child. In many circumstances the resource availability is also considered as the key obstacle in treatment process. The parents may not have sufficient resources to provide adequate nutritional food and therapeutic care services. The lack of awareness and limited knowledge of the parents can also serve as the influential barrier. For instance in the engaged working life parents may not have time to interact with their child(Byrne and et.al., 2015). During adolescents period when child is undergoing through several body changes there is need for parents to support their children. However due to communication gap with the child parents fails to recognise the symptoms as well a treatment needs of Anorexia Nervosa. In such families it may not be possible to refer FBT as there is lack of family commitment which is essential for the quality outcomes. The lack of knowledge can also restrict the possibility to incorporate FBT into practice. When parents themselves are not aware of the FBT principles then they cannot develop a healthy family environment for their adolescent child. Another barrier which challenges the implementation of FBT is the lack of training and supervision. Since nature of every family is different health professionals are required to be highly 32
trained so that they can work in collaboration with diverse families and patients. The limited knowledge and experience can affect the quality and efficacy of treatment. As compare to the traditional approaches within FBT there are higher possibilities that parents must involve and interrupt in the activities and personal space of their adolescents child. This can cause an emotional barrier between them which in turn becomes more complex to incorporate FBT. It is also observed that as compare to traditionalapproachesthereishigherpossibilitythatthetreatmentofchildmay influenced negatively due to enhanced flexibility in FBT(Wallis and et.al., 2017). For example in the traditional approaches it is the complete responsibility of the therapist to regulate that improvement process of the child. In FBT as parents hold this responsibility many times their emotional attachment becomes a barrier. The adolescents especially who are very lovable and pampered by their parents are more likely to get affected by this. Such types of AN patients when argue for avoiding eating required amount of food then at first parents show resistance. However, when children's are not in mood to surrender and continuous to the harmful weight management plan then due to emotional attachment, fear and love parents usually surrender and allow their child to do as their desire(Allan and et.al., 2018). As compare to the therapy centres, parents may not show strictness towards their children at homes. Thus, for such types of families FBT may proves less significant. One of the limitation of FBT is that its implementation can leads to several other complications in the families. Especially in those families which have more than one adolescent child. When parents pay more emphasis to the adolescent AN patient then other child may feel insecure or less attention can be provided to their needs. Similarly, AN patient may also feel that their parents are being more rude and insensitive towards their needs as compare to the other siblings. This can further trigger more complications in AN and associated symptoms. Thus, it is also one of the challenging aspect that if parents implement FBT then they must assure that it does not lead to adverse impact on the psychological development of the child. Along with the treatment interventions parents must also assure that their care and strategies does not make child feel isolated and separated from the rest of family members. FBT not only demands for the support from parents but also from the all the 33
members of family(Patton and et.al., 2016). If the approach is not implemented in correct manner then it can affect severity of AN as well as other family outcomes. The parenting styles used by the parents also influences the FBT implementation and suitability in various families. The families in which parents share good emotional connectivity and communication with the children FBT is supposed to deliver more desirable outcomes. However, when parents have very formal and limited connectivity with their children then instead of FBT other therapeutic options are preferred for the AN. With the treatment of adolescent patients it is also observed that parents do not find strength to feed their children or to monitor their meals. The parents believe that since their child is grown up they lack enough confidence to use their parenting in feeding or eating practice. In order to deal with this obstacle parents must remember that they have once used to set rules for their toddlers and their same child need support in its adolescent period(Dimitropoulos and et.al., 2019). Chapter 5: Discussion Anorexia nervosa is considered as the physical as well as psychological disorder which can be treated by extensive support from parents as well as clinicians. As compare to others AN adolescents experience greater family impairment as compare to their parents. Such patients also find it hard to communicate with the family members. Thus, family processes may have adverse impact on the outcomes and treatment progression. While suffering from the Anorexia nervous adolescents are affected by high stress level and emotional disturbance(Ganci, Pradel and Hughes, 2018). Thus, availability of parental support, emotional tuning can help to achieve the purpose of nutritional monitoring among them. It has been also observed that many adolescents who does not share good communicationandattachmentswiththeirfamiliesmayhesitatetodiscusstheir concerns and can even consider the treatment efforts as potential threat for their well being.Thistypeofaspectscanincreasetheresistancetowardsthetreatment procedures. It is also possible that the relation and behaviour of the family can be one of the reason for the development of AN. For instance the families which tend to criticise 34
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the adolescents for their weight or eating practices regularly are more influenced by weight stigmas. As a result the vulnerability of disease exposure is also increased. It has been also evaluated that instead of continuously interacting on the topic of anorexia parents must have relaxation and social interaction during meals. It will help ANpatients to avoid actors at home which contribute to the development and severity of anorexia. During the treatment course when families are equally engaged then it becomes easy for the health care professionals to have continuous monitoring of the weight and other symptoms of relapse(Peterson and et.al., 2016). With FBT, anorexia is given priority as medical illness and foods are used only as therapeutic agents. At the adolescence children are not able to make good judgements and decisions about their health. Thus, the eating pattern and behaviour adopted by them also lacks the sensibility and accuracy. In order to deal with such situations it becomes vital for the adolescent AN patients that their family members particularly parents must take decisions for them sothattheirstarvationcanberegulated.ForthetreatmentofAnorexianervosa appropriate food habits have better outcome than pharmacological treatments. The FBT cannot be considered as an easy intervention for the adolescence age as it is labor intensive and challenging process(Murray and et.al.,2015). The parents are required to demonstrate immense love, remarkable patience, support and persistence towards child. Thus, irrespective of the long period taken by the child to finish meals parents mustmonitorthefoodintakeoftheirchild.Fordealingwiththeadversehealth consequences of AN normalising eating and weight restoration is first priority of the health professionals. Thecontrolhandlingfrom thesideof parents is necessity for this aspect. However, in addition to these issues, several other adolescent issues like sexuality, independenceandparentadolescentrelationshiparealsoderailedbyAN.The individuals especially adolescents receiving treatment of AN face difficulty in balancing their needs of dependence and independence. In the initial stages of treatment role of parents can be considered as critical but in the later stages treatment efficiency and participation of the parents depends upon prevailing family climate. 35
The treatment does not found to be effective for every individuals as there are many adolescents who feels that involvement of family make them more stressful and nervous(Martin-Wagar, Holmes and Bhatnagar, 2019). Contrary to this it has been assumed that family involvement in the treatment process helps therapists to assess and understand the progression of disorder and the factors which support AN symptoms of patient. The involvement of parents can be visualised as effective in terms of tracing the development of disorder. However one of the limitation which can be associated with FBT for adolescents is that they may not be able to share their issues freely with the parents. For instance if weight loss purpose for such patients is related to stigmas related to appearance then individuals may not find it comfortable or relevant to share it with the parents. In addition to this if family conditions are also one of the factor for contributing health situation then also FBT may not deliver quality outcomes for improving the health. The eating disorders such as Anorexia nervosa not only affect the individual suffering from the disorder but also has critical impact upon the family members. For instance the attention and focus of parents completely shifts to the affected individual and this can create tension with other siblings(Fishman, 2017). The other family members may feel that their needs are being neglected due to the sufferings of just one person. During adolescence psychiatric complications are very frequent along with the high mortality rate. Thus, this is also one of the reason thatAnorexia nervosa often develops during adolescence. It has been also observed that treatment trajectory for AN among adolescents can also have relapsing course after dropping out of treatment. AN is also considered as the ego syntonic and thus individuals may also show resistance towards treatment. Itisquitecommonthatsupportandprotectiveroleofparentscanhelp adolescents to mitigate the adverse consequences. Emotional attunement, availability of parents provides a sense of security to young children and thus effective in solving problems during high stress level of both parents and adolescents. It has been analysed that the first priority and intervention of family based treatment is to regulate and control the eating habits and food. As a result of this negative emotions may trigger among young children and they may consider the efforts of their parents as potential threat to 36
their weight reduction plans. In addition to the health outcomes of the adolescents the parents may also suffer from anxiety and thus their parental coping can be influenced (Lindstedt and et.al., 2015). Thus, there may be evidences that the commencement of FBT can affect the parent- adolescence support mechanism due to misinterpretation of both parents and adolescents. The application of FBT can be very complex as it can make parental relationships stressed and stained. For effective treatment therapeutic relationship is core element and thus during treatment process of AN strong emphasis is put upon developing good therapeutic relationships. For this purpose ineffective communication and mutual distrust are considered as the potential barrier. In order to assure the adolescents that parents are supporting and concerned for their welfare a trust must be developed among them. When individuals have trust on their parents then theysupportthetreatmentinterventions.Forinstancewithtrustandregular communication it becomes very easy for the therapists to control the eating habits of the individual. Without support of the parent's treatment of AN can be considered as difficult oralmostimpossible.Themajorreasonforthisaspectisthatmorethanthe physiological changes adolescents continued to believe on their perception of being thinner(DerMarderosian and et.al., 2018). Thus, the parents and therapeutic support must have characteristics such as accessibility, empathy, thoughtfulness, reliability, understanding and availability. It has been analysed that contrary to the FBT therapies when only therapeutic support is provided to AN the treatment results seems to be less effective. For instance in the adolescence age individuals may find it hard to trust on health care professionals. The hormonal changes undergoing in the growth phase as well as psychological perspectives related to AN make it almost impossible for the adolescents to easily trust the interventions of service providers. The Anorexia Nervosa canhaveserioushealthimplicationssuchashormonalimbalance,electrolyte imbalance, kidney issues and anemia(Lindstedt and et.al., 2015). The fear of gaining weight and perception of having distorted body image forces adolescents to starve themselves so that their weight can be managed. Apart from avoiding food such individuals also use various approaches like use of laxatives, intense exercise, inducing vomiting without considering the adverse impacts of such practices on their health. Since the individuals may not consider these attempts as harmful or unacceptable it 37
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dependscompletelyonparentsthatsuchbehaviouralsignsarerecognisedand identified on time. The identification of AN in the initial phases can help to minimise the adverse health impact which may occur while following such practices. The parents of adolescents faces number of obstacles and AN not only affect the healthoftheindividuals butalsotheir familyrelationships.Thepersonalitytraits, emotions and thinking patterns can also influence the development of AN. The low self esteem, loneliness, anger, anxiety and inappropriate care and attention from parents and friends can also contribute to this chronic illness. It has been also observed that pressure and bullying from the peers or family, troubled personal relationships, physical changes due to hormonal change in adolescence period can also lead to disordered eating behaviour. Theprimeandthefirstrolewhichisplayedbyparentsintreatmentand managementofANistheidentificationofthedisease.Sincemostofthetime adolescentsspendwiththeirfamiliesparentshaveclearlooksforidentifyingthe symptoms of AN. The adolescents may not be aware of the changing physical and behavioural aspects of their eating habits. Thus, the parents can observed them and get the idea of their eating disorders. In order to improve the health outcomes of the patients, parents must identify AN treatment programs which helps in treating both psychological and physical condition of the child. For this purpose the disease must be treated by professional team consisting of physician as well as mental health professionals. The recovery programs of Anorexia Nervosaprovidesmedicalcare,nutritionalcounselling,therapysessionsand medicationsifrequired.Certainantidepressantsarealsobeneficialintreating depression and anxiety. The strong support from the family members can bring positive changes to the behaviour of individuals (Sung, Chang and Liu, 2016). In most of the family's communication barriers is one of the factor which affects the relationship between parents and adolescents. For the better outcomes parents must not hesitate to interact with their children regarding physical appearance, weight issues and eating disorders. Parents must also assure and support the child so that they follow all the recommendations given by clinics and health care teams. After treatment it relies 38
completely on parents to effectively manage the house environment, negative coping behaviour of the child so that post treatment complications does not trigger AN again. When adolescents suffering from AN shows defensive response then parents must not make criticism, shaming and judgements. It will create trust between them and patient will find it easy to open up with parents. The interaction plays a great role in formulating suitable interventions. When parents identify eating disorder then they must not neglect the symptoms insteadtheymustusenecessarystepstoprovidecareandtreatmenttotheir adolescent child. The feature which makes FBT as the most effective approach for AN is that with this method parents share equal responsibility to restore the physical health and weight of their child. The collaboration between parents and interdisciplinary teams assist in managing eating behaviour of children in their own environment. It acts as beneficial as support from family members has great contribution in the long term recovery of the patients. Under FBT parents are also educated about the necessity of confronting symptoms of eating disorder. Parentsarealsoencouragedtounderstandthattheymustnotblame adolescents for the illness. Thus parents must understand that instead of criticism or blamingtheirchildneedsupportfromthem.Athomeparentsaremustinterrupt abnormal exercise or the food related habits so that adequate amount of nutrition can be provided to children. Despite effectiveness of FBT, its time consuming nature and practical complications may affect the outcomes. For instance many parents may have engaged schedule and thus it can be hard or impossible for them to supervise the nutritional intake of their child. Further some parents also assumes that due to AN schooling must not be suffered. Thus, for assuring that suitable food is consumed by the child in lunch or in school(DerMarderosian and et.al., 2018). To deal with these challenges parents can make additional efforts so that health of child can be improved. For example parents can take permissions from their employers so that they can visit home early or can bring their child from school for the lunch. Though at each and every aspect of FBT family is involved but the visit to therapist must begin with the personal and alone interaction with the adolescents. The 39
openandfriendlyinteractionwithprivacywillallowpatienttoeasilysharetheir experience to health professionals. The open communication with parents and families help in identifying various other factors which contribute the nutritional intake of young children. Chapter 6: Conclusion It has been concluded from the study that for developing better understanding of health issues of adolescents parents play a significant role. In order to provide the better treatment and health care services toAnorexia nervosa patients health professionals seeks advantage of the resources which are constituted by parents. It has been also evaluated that though role of family in treatment cannot be neglected but in many situations therapists are required to emphasis on other treatment options for AN instead of sorting complex family situations. From the analysis of various aspects of FBT it has also been analysed that one of the factor which make adolescents highly conscious about family involvement is the privacy concerns. Many patients may resist to treatment thinking that family based interventions interfere with their privacy.Thus, it is very essential that during therapies professionalsmustassurethattheconfidentialityandprivacyofthepatientis maintained. However, the safety concerns such as events of fainting episodes or suicidal intent which affect the well being of child must be discussed and informed to parents. In addition to the personal interaction with the patient There are various challenges as well which parents may face while providing care to their child. The unavailability of resources and time limitations due to long working hours can impose barriers to the quality care. In addition to this it is also possible that to avoid conflicts with child or due to emotional breakdown parents may struggle to insist their child for reducing weight or to consume adequate meals. Such situations can be dealt with regular encouragement and motivation from the physicians that conflicts are natural part of the process to assure the well being of their child. The avoidance of conflicts and necessary actions can enhance the duration and severity of AN disorder. It can also be concluded that as soon as diagnosis is made care interventions must be used for the adolescents. Initially parents must be empowered so that firm 40
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actions can be taken against eating disorder behaviour. It is recommended that when AN is diagnosed a special counselling must be provided to parent so that they can understand the eating pattern and exercise needs of their child. It is important for the parents to monitor and assure that they monitor the snacks and meals of their child and they does not perform physical exercises excessively. The medical visit must not only include adolescents but must also include family and parents. Though patient must be provided a chance to interact with the physicians alone as well but parents must also be included in the treatment procedure. From the report it has been also evaluated that apart from adopting interventions and strategies care service providers and parents must monitor the improvement in the eating practices of child. For instance if despite following all recommended practices also weight of the child is not increasing then parents and physicians must try to ascertain the factors due to which results are not obtaining. The result of each and every exercise and eating behaviour must be supervise to avoid any kind of adverse implications. It has been observed that among adolescents various factors contribute to increase the risks of Anorexia Nervosa. These actors include perfectionist tendency, weightgain,Involvementintheactivitieswhichdemandsforbetterphysical appearance, family history, stressful life events and difficulties in emotional expression or coping skills. The health outcomes of adolescents can be improved by paying close attention to their personality, behaviour, relationship with food and body image. The parents must not considered the changing behaviour of their children as manipulative and dramatic and thus emphasis must be paid to them. The treatment outcomes can be improved when parents are well aware of the consequences and treatment strategies for AN. The knowledge will provide greater empathy to parents and families so that psychological state and changes of the patients can be understood. It has been also witnessed that many parents scold and punish their adolescents for encouraging them to take proper diet. However, the approach cannot be justified or considered appropriate as it can enhance the complexities and child can also think of suicidal attempts or the refusal to treatment procedure. Instead of these parents 41
must use natural consequences which inspires and help young children to distinguish between healthy and non-healthy eating practices. It becomes important for the family members to provide love and support to the patient instead of showing irrational attitude or criticism. The lack of cooperation and rational behaviour from the love ones can make anorexians in more baffling situation and thus their psychological sufferings can be increased. In addition to the improvement in eating practices parents must also emphasis on their behaviour. This is also one of the integral part of the family based therapy. For instance parents can try to make their meals enjoyable and relaxing so that instead of deteriorating family relations and grievances on each other. Another critical and impressive approach which can be used by parents of AN adolescent is that they must try to model self acceptance and healthy eating. For instance if parents regularly complain or criticise others or themselves for weight gain or physical appearance then the struggling child can also get influenced by such remarks. In such situations it becomes more complex for the parents to make their children understand. For enhancing the quality of treatment parents must try to spend quality time with the children. They must aim to develop a relation so that adolescent child is always comfortable in sharing difficulties or the perspectives. Anorexia patients also experience various ups and downs and different levels of depression. These risks makes them potentially vulnerable to aggression, suicidal thoughts and behavioural changes. Thus, it is required that emotional support and assistance must be provided by parents. This can be achieved by developing a healthy atmosphere at home so that the treatment practices and therapies does not have adverse impact on children's mental health. It can also be concluded that adolescent's treatment forAnorexia Nervosamust involve families instead of providing therapies which only emphasis on patient. After one or two year of treatment the vulnerability of patient to again become affected from AN increases if appropriate family support is not provided. This is one of the important reason that family based therapy has become one of the most effective treatment approach for the patients of AN. For the long time parents were also considered as the obstacle for the treatment of AN. Since due to emotional attachment or negligence to 42
monitoring of child behaviour and eating habits parents tend to avoid the symptoms or severity of AN. In many cases even after knowing that child is suffering from eating disorder parents used to encourage them due to unconditional love. This has harmful impact upon the child and due to support from parents and families individuals often neglect the treatment therapies and intervention. There has been difference between individual therapies and family therapies. Though the individual treatment therapies are helpful in managing weight gain of the adolescents and to balance their emotional traumas but to gain more effective outcome family therapy is also required in assistance. The integration of FBT in the treatment process of AN allows parents to assure the improvement in the practices and behaviour of their adolescent child. Thus instead of shifting entire responsibility to child, parents share equal responsibility which is mandatory for achieving treatment goal. Through the participationoftheparentsintreatmentparentstakedecisionsregardingeating practices of their child. OneofthechallengingobstacleforthetreatmentofANisthatanorexian adolescents may not agree that there is requirement for change in their practices. Thus, for the heath care authorities it can be difficult to take decisions as in such cases they may face strong resistance from the individual. Contrary to this when parents are given this authority the resistance is reduced to a great extent. Thus, recovery time for the patient is reduced and they recover the healthy weight gain at the earliest. The changes suggested and controlled by the parents are often more influencing and effective. It is recommended that parents must interact with their adolescents children's so that they can be informed about the significance and practices of healthy eating, energy level and appearance. This will help adolescents to enhance their self esteem and to adopt healthy practices of eating. For encouraging these families must develop practice of eating together so that AN risk can be avoided. There must be a friendly bond and information exchange between parents and children so that children can easily express their doubts or concerns regarding physical appearance or anorexian life style. One of the most effective treatment strategy for AN is to make children aware of healthyimageofphysicalappearance.Parentsmustinformtheirchildrenthat comments on the basis of physical characteristics are not good and in the family 43
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environment as well such comments must be neglected. In addition to these parents must also support their adolescent child to foster self esteem by enhancing qualities such as generosity, curiosity, sense of humour and acceptance of physical diversity. The increase in awareness regarding emotional eating can also be helpful for the patients of AN. These approaches cannot be incorporated into the practices without integration of parents. Thus, it can be concluded that adolescents patients of AN requires emotional and assistive support from their parents. Their regular guidance and communication can be helpful in making AN treatment approaches more impactful. 44
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