Dementia and Decision Making: Involvement of Patients in Healthcare Decisions

Running head: DEMENTIA AND DECISION MAKING 1
Should a person living with dementia be involved in making decision regarding their health care?
Student’s Name
University

DEMENTIA AND DECISION MAKING 2
Should a person living with dementia be involved in making decision regarding their health
care?
P: Patient living with dementia
I: involvement in decision making
C: lack of involvement or partial involvement with family members
O: quality of decision made by dementia patient
PART 1 - The Flow Chart
The databases used for this study were PubMed, CINAHL, and MEDLINE. The search for the
studies was based on the use of the terms “dementia” and “decision making” which led to 4213
studies. When the search was refined to set for year of publication to be 2010-2019, 318 papers
were found on the topic. The search was refined further to full text articles, academic language of
English and 103 articles were found. This led to the need for a review of the articles found to
pick the best articles that reflected the topic. This led to ten articles which were from different
study designs. The studies found were systematic reviews, rapid scoping review, qualitative
study with a prospective, multiperspective design, Case study and Qualitative multi-case design.
No study was found on randomized controlled trials, cross-sectional study and observational
studies

DEMENTIA AND DECISION MAKING 3
APPENDIX 1: Flow Chart diagram
MEDLINE
318 articles found from 2010-2018
10 articles extracted
103 articles found
21 articles extracted
4000+ articles found
CINAHL
Dementia
Decision making
MEDLINE PUBMED
3682 articles discarded
215 articles discarded
3682 articles discarded

DEMENTIA AND DECISION MAKING 4
PART 2: literature review table
study origin Study design Sample size
and population
analysis Key findings
Barker, S.,
Lynch, M.,
&
Hopkinson,
J. (2017).
UK rapid scoping
review
20 studies were
included
Data was
analyzed
through themes
identified in
the study
Dementia patients
want to be
involved in
decision making
Daly, R. L.,
Bunn, F., &
Goodman,
C. (2018)
UK systematic
review
19 studies
included in the
review
Data extracted
from the
articles was
coded for
review
It is important to
involve patients in
decision making
De-Ven, L.
G. et al.
(2017)
Netherlands qualitative
study with a
prospective,
multiperspect
ive design,
19 patients and
38 caregivers
Data was
analyzed with
Atlas.ti
software
An adapted shared
decision making is
important for
involvement of
patients
Hegde, S.,
&
Ellajosyula,
R. (2016)
India Literature
review
Review of
different
studies
Themes used
to present the
findings
There is need to
balance between
patient autonomy
and representing
their interest.
Fields &
Calvert
(2015)
USA Literature e
review
49 sources
were used in
the study
Data was
analyzed
according to
themes that
relate to the
topic
Consent need to be
assessed and if it is
not possible then
alternative consent
needs to be used
Lord, K.,
Livingston,
G.,
Robertson,
S., &
Cooper, C.
(2016)
England Case study Participants
purposively
sampled
Nvivo 9 code
was used to
analyze data
Facilitated
decision aid is
important in
dementia p
Dunn, Alici,
& Roberts
(2015)
USA Literature
review
rapid scoping
review of
literature
Relevant
studies were
used
Surrogate consent
is important in
patient autonomy
Smebye, K.
L.,
Kirkevold,
M., &
Engedal, K.
(2012)
Norway Qualitative
multi-case
design.
30 participants Framework
analysis
There was
variability in the
ability of dementia
persons to make
decisions