This essay discusses the aspects related to person centred care in providing care to dementia patients. It also covers the requirements for nurse and clinical resources necessary for providing person centred care to dementia patients.
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Transition in Dementia Care 1
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Introduction: Dementia is incurable disease. Multiple factors need to be considered for providing care to the dementia patient like Tom. In this essay, all these aspects are being discussed. Patient and familymembersexperienceofdementiaduringhospitaladmissionarementioned. Behavioural, psychological and functional approaches are being considered for understanding Tom and his family members experience. Aspects related to person centred care in providing care to dementia patients are being discussed. Requirements for nurse and clinical resources necessary for providing person centred care to Tom are being discussed. Person centred care is essential for providing care to both pathology and philosophy of person centred care. Interpersonal relations need to be established between Tom and nurse to design and build care around requirements of Tom. Behavioural and psychological symptoms are present in almost every patient with dementia. Behavioural and psychological symptoms exist in the form of complex cluster; however, at least one symptom should be present in patient with dementia. Behavioural and psychological symptoms can occur due to neurobiological disease factors,unmetneeds,caregiverfactors,environmentaltriggers,andinteractionsof individual, care giver, and environmental factors. Factors need to be considered while providing care to dementia patients are being discussed. Patient and family experience: Tom and his family members would be going through substantial changes after admission to the hospital. Tom was never being admitted to the hospital. Hence, he would have become restless and agitated. In such scenario, his family members could have taken charge of him and tried to make him calm. However, it would be difficult task for his family members because due to dementia he would have been not identifying them. He would treat them as un-known people. Scenario would have become serious issue because Tom would become more agitated. His family members would have imagining that he is identifying them and they can control his agitation. However, situation would become more difficult because imagination of both Tom and his family members would go in the opposite direction. He would forget to take medication for angina due to his dementia. It can lead to exaggeration of his angina condition. His family members would have become more worried because due to forgetfulness in medication consumption. His family members would imagine that he would become worried because his incapability to participate in the community services. From the case study, it is evident that he is more interested in community services (Murray, 2014). 2
Most difficult situation during his admission to hospital would have been when he lashed out at the nursing staff. Family members would be worried that nursing staff might become disappointed due to this type of erratic behaviour. This erratic behaviour of Tom might be due to dementia. He would forget that nursing staff are very important aspects of his care. Due to this erratic behaviour, Tom would develop symptoms like decreased concentration, insomnia, apathy, communication difficulties and anxiety (Fukuda et al., 2015). All these symptoms can adversely affect Tom’s and his family members day-to-day living. Due to this erratic behaviour, there is possibility that nursing staff and family members might feel fear about him and these people might keep distance from him. It might lead to feeling of loneliness and there might be development of stigma in him. Hence, he might try to keep himself away from community. His admission in the hospital can lead to development of financial strain on his family members. Family members of Tom would learn symptoms of dementia and would try to manage behaviour of Tom with respect to symptoms of dementia. Family members might get experience in decision making in his care (Helgesen et al., 2013). Person centred care (PCC): Nurse need to know Tom for providing person centred care to him. Tom is experiencing chest pain in addition to his dementia condition. This chest pain might be exaggerating his dementia condition due to lack of concentration. Nurse also need to know his past and present values, beliefs, interests, abilities, likes and dislikes. These can be helpful in effective communication with Tom and his family members because in PCC, effective communication is very important aspect. Nurse need to recognize and accept Tom’s reality. Nurse need to think from the perspective of Tom. His current behaviour need to be taken into consideration while communication with him. It can be helpful in understanding his feelings and it can connect effectively with him. Meaningful engagement with the patient can improve outcome of PCC (Edvardsson et al., 2014). Identifying and supporting ongoing opportunities can be helpful in establishing meaningful engagement with Tom. Tom’s ongoing behaviour is erratic. Hence, nurse need to consider this behaviour and implement intervention to control his erratic behaviour and improve in his dementia condition. Upto some extent, nurse need to support his erratic behaviour because it might give pleasure, joy, comfort and meaning in life to him. It can be helpful in improving his dementia condition. Nurse need to build and nurture authentic and caring relationship with Tom. Tom become restless, agitated and erratic due to his pain. Hence, it might give him 3
feeling of dis-respect for himself and others. However, nurse need to treat him with dignity and respect and his individuality need to be supported. It can be achieved through effective interaction with Tom instead of solely concentrating on medical tasks for improving his medical condition. Nurse need to provide intervention to Tom by incorporating his family members in his care. Nurse need to assist in creating and maintaining supportive community for Tom and his family members (McGreevy, 2015). It is evident that Tom is interested in lot of community services. Supportive community can be helpful in improving comfort level and creating opportunities for improving dementia condition of Tom. Community engagement can value Tom’s requirements and respect Tom. It can also be helpful in improving his engagement in care and providing him autonomy. Nurse need to evaluate dementia care interventions provided to him on regular basis and should make necessary changes based on the outcome of the provided intervention. Nurse need to discuss outcomes with other healthcare professionals and his family members (Manthorpe & Samsi, 2016). Managing Behavioural and Psychological Symptoms (BPSD) of Dementia: In dementia patients, prevention of BPSD is very important because only few BPSDs can be recognised and other BPSDs cannot be recognised easily. Hence, assessment of BPSDs is very important aspect in providing intervention for it. Accurate assessment can also be useful in deciding frequency and type of intervention to be provided to Tom. Family members need to be included in his care and PCC need to be provided for preventing his BPSDs. BPSDs in Tom need to be managed by non-pharmacological intervention rather than pharmacological intervention (Jones et al., 2014). In few patients, it can be prevented by antipsychotic drugs; however, little evidence is available for this. Different therapies like music therapy, pet therapy and hand massage or touch therapy can be implemented in him to prevent occurrence of BPSDs in Tom (Trivedi et al., 2013). However, there is little evidence available for prevention of BPSDs using these therapies. Structured therapies proved to be beneficial in improving BPSDs in dementia patients. These structured therapies can be considered as the non-drug interventions for preventing BPSDs. These structured therapies include distraction, redirection, reassurance and reorientation. These core behavioural interventions require extra effort from the nurse because nurse need to spend extra time other than the staff time. Nurse need to provide these interventions on the individualised basis and triggers for occurrence of each of the BPSDs need to be considered 4
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while providing intervention to prevent BPSDs. Nurse need to identify, trigger behind his erratic, restless and agitated behaviour and also need to identify time for the occurrence of this behaviour (Livingston et al., 2014). Nurse need to focus on reducing triggers. This can be achievedbyactivelylistening,respondingandreassuringthepatient.Nurseneedto implement both verbal communication and non-verbal cues for BPSDs. Multiple assessments and interventions need to be avoided and intervention need to be provided by single staff only because it can be helpful in establishing therapeutic communication with Tom. In case of failure of non-pharmacological treatment only, nurse need to provide pharmacological treatment for Tom for preventing his BPSDs. BPSD symptoms are complex cluster; however, intervention for one symptom might not cure another symptom. Nurse need to consider history of Tom and his cultural and social aspects for providing intervention for his BPSDs. Nurse need to consider other health issues in Tom while providing intervention for BPSDs. Tom is associated chest pain. It might exaggerate his BPSDs. Hence, nurse need to plan intervention to him considering his chest pain (Azermai et al., 2012). Acute care: Mini-Mental State Examination can be useful in measuring cognition in Tom. This scale can be easily implemented with minimal training and it takes around approximately 10 minutes. This scale can be useful in assessing orientation, memory, attention and calculation, language and visual construction. These areas are useful in establishing effective communication with the Tom for providing PCC to him. This scale can be effectively translated in terms of severity of dementia (Carnero-Pardo, 2014). Neuropsychiatric Inventory can be helpful in assessing wide range of behaviours associated withdementia.Itcanalso behelpfulin identifyingfrequencyandseverityof these behaviours. Behaviours like delusions, agitation, depression, irritability and apathy can be assessed using Neuropsychiatric Inventory. This scale can be implemented within time of 10 minutes in acute care settings. This test has good psychometric properties and it can be effectively used in patients with limited behavioural issues. Tom is also exhibiting limited behavioural issues like agitation, restlessness and erratic behaviour (Mao et al., 2015). Clinical nurse consultant need to be provided for Tom. It allows to initiate discharge plan at the earlier stage and to provide information related to the rehabilitation services. Accurate assessment need to be carried out for determining care needs and planning intervention. Multi-disciplinary care need to be designed for providing high quality care to dementia 5
patients. Optimum care pathways need to be implemented in the acute care hospitals which can be helpful in reducing complications and improving hospital efficiency. Communication with carers need to be improved for understanding patient experience and improving patient outcome. Communication need to be improved for providing effective care to patients with dementia because it is difficult to communicate people with dementia like Tom. Nurse need to use short sentences with Tom and should exhibit empathy and care towards him. It can be helpfulreducingfrustrationofbothpatientandnurse.Nurseneedtofollowsimple communication steps like introducing themselves, maintaining eye contact, remaining calm and not allowing patients with multiple choices at one time. Nurse need to minimize use of antipsychotic drugs to prevent occurrence of adverse reactions in Tom because most of the antipsychoticdrugsareassociatedwithmultipleadversereactions.Insteadofusing medication treatment, nurse need to use psychosocial interventions for providing care to Tom. Psychosocial intervention can be more useful in Tom because he is more inclined towards community. It can be helpful in providing PCC and individualised care by increasing monitoring and supervising by the staff (Thompson, 2015). Conclusion: Change in Tom and his family members are considered while providing care to dementia patients. His care was designed based on his current health condition like agitation, erratic behaviour. His social and cultural aspects are considered while providing care to the patients. Social and community involvement proved helpful in dementia symptoms. Nurse considered personal aspects of Tom for providing person centred care to him. It includes values, beliefs, interests, abilities, likes and dislikes of Tom. Effective communication proved useful in providingpatientcentredcaretoTom.Considerationofcurrentbehaviouraland psychological aspects of Tom helped in establishing effective therapeutic relationship with him. Accurate assessment of BPSD proved useful in providing specific care to the BPSD because BPSD is complex cluster and most of the symptoms are overlapping with each other. Firstpreferencewasgiventothenon-pharmacologicalinterventionforBPSD. Pharmacologicalinterventionwasavoidedtoeliminateriskofadversereactions. Multifactorial interventions were avoided in BPSD. Mini-Mental State Examination and Neuropsychiatric Inventory were used as assessment tools for dementia in acute care setting. Thesetoolswere usedbecausethesearerapidtestsand relevanttoTomcondition. Multidisciplinary care was provided for him in acute setting. 6
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