ETHICS IN RESEARCH PROCESSES2 Part 1 Louise Brown was the first baby bone through In Vitro Fertilization. The media termed her as the world’s first test-tube baby. In vitro fertilization occurs when eggs and sperms are removed from the reproductive organs and are combined in a laboratory dish (Kuwahara, Irahara, Iwasa, Ishikawa, Ishihara, Kugu, & Saito, 2017).The process takes place outside the body and the doctors do alter the environment the eggs and sperms are placed for fertilization to occur. After fertilization, the embryos are placed in the mother’s womb for development to occur. The process became a success in 1978 and scientists were happy and it brought a lot of mix emotions around the world. Some ethical issues were raise as the scientists who performed the procedure never informed the couple that they had tried the procedure before and it failed (Orvieto, Vanni, & Gleicher, 2017). The couple doctors did not disclose all the information to the couple. The informed consent is important as the subjects have the right to decline or participate in the research. They should have been a way of the potential risks involved in conducting the procedure. Even though the procedure was success, another ethical issue that was clear is confidentiality. The news of the success of the procedure was public and the couple received a lot of hate mails from different parts of the world. They lacked privacy which could have been avoided by not letting the world know who the success procedure was performed on. It could have remained an anonymous to ensure the security and privacy of the couple is maintained. Confidentiality of subjects in research is very important and should be observed (Kuwahara et al., 2017). Apart from confidentiality, lack of privacy and informed consent, there are other ethical considerations during research are as follows;
ETHICS IN RESEARCH PROCESSES3 Beneficence- Do not harm The principle refers to the need to perform a significant and effective research to serve and promote the welfare of the constituents better. The researcher is required to have the best interests of the constituent when performing the research. Sometimes in qualitative research beneficence is difficult to predict when writing a hypothesis as the result may be negative from what was expected hence not beneficial as expected. Vulnerable group of people Vulnerable people refer to characteristics of people who are unable to protect their welfare and rights. These include group includes physically disables, captive populations, aged people, chronically ill and others. Their inability to provide informed consent makes them a target for researchers as they are at greater risks of being deceived (Pulverer & Armbruster, 2017) Competency The researcher should have specific skills and knowledge in their area of research. The lack of knowledge in a given area should be stated, and researchers should also be aware of their limits. Inexperienced workers to work under the supervision of experienced researchers who have been reviewed by the ethical committee. In conclusion, ethics plays an important role in guiding and regulating the limits of the researchers and protecting the rights of the subjects. The ethical standards should clearly state and understood by the researchers in all the fields. The awareness of the issues emerging during research practices should be created and an effective framework to deal with human rights problems.
ETHICS IN RESEARCH PROCESSES4 Part 2 Research question: Are the ethical codes maintained in the research process? Survey question: 1.Have you understood the process of IVF and willing to participate in the procedure voluntarily? 2.Do you understand the risk factors and side effects involved in the process? 3.Are you still willing to undergo the procedure? 4.Would you like to share your story with others or would like it to remain anonymous? 5.Are you aware of the alternatives to IVF? Research Hypothesis:It is hypothesized that most women would like to undergo the IVF procedure to conceive, but prefers to keep anonymous to protect their identity and privacy. Some of the ethical concerns needed in the introductory survey statement include the following: The researcher should not use deception on the participants and should provide all the right information t0 the participants. The researcher should also obtain informed consent from the entire subjects involved. They should be asked for voluntary participation, and they are to be assured of confidentiality and privacy whenever possible. The participant may prefer to remain anonymous to protect their identity from the public. Hence confidentiality and privacy are key to performing any research work. The purpose of the study should be clearly stated and explained to all the participants involved in the undertaking the survey. It enables the participant to make decisions on whether to participate or not. The informed consent allows the researcher to obtain data which is approved by the participants. It should also not have rewards or binding contracts. These types of contracts bind the researcher and might cause chaos in circumstance of disagreements. The rewards also
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ETHICS IN RESEARCH PROCESSES5 look as if the researcher bribed the participants which should not be the case as the participation is voluntary. The researcher should use the correct information provided and should not be attempted to falsify or commit fraud. The data obtained is what would be used in the results. The introductory statement should also appreciate and thank the participants for taking their time and participating in the research (Rose, Iguchi, & Panicker, 2018). If the information is sensitive, it is important to send an invite to the target population before conducting the survey. With emotionally challenging participant, it would be important to use strategies for emotional distancing need. The level of the relationship development necessary should be perfectly clear. The strategies of ending the relationships should be well defined and indicated before the survey begins. Indicate on the survey introduction that one respects the persons participating in the survey, decision making and the autonomy of the participant. The participants feel appreciated and the importance of the survey hence providing information required. The researcher should also indicate how the research would benefit the participants and the community or group of people at large. The values and interests of the community should be protected at whole time and prevented from harm.
ETHICS IN RESEARCH PROCESSES6 References Kuwahara, A., Irahara, M., Iwasa, T., Ishikawa, T., Ishihara, O., Kugu, K., & Saito, H. (2017). Assisted reproductive technology in Japan: a summary report of 1992-2014 by the Ethics Committee, Japan Society of Obstetrics and Gynecology.Reproductive Medicine & Biology,16(2), 126-132. doi:10.1002/rmb2.12014 Orvieto, R., Vanni, V. S., & Gleicher, N. (2017). The myths surrounding mild stimulation in vitro fertilization (IVF).Reproductive Biology & Endocrinology,151-4. doi:10.1186/s12958- 017-0266-1 Pulverer, B., & Armbruster, C. (2017). Where does the buck stop? Research ethics and publishing.Information Services & Use,37(1), 13-16. doi:10.3233/ISU-160820 Ross, M. W., Iguchi, M. Y., & Panicker, S. (2018). Ethical aspects of data sharing and research participant protections.American Psychologist,73(2), 138-145. doi:10.1037/amp0000240