1ETHICS IN HEALTHCARE Section 1- Summary In The Immortal Life of Henrietta Lacks, a journalist named as Rebecca Skloot is found to be the recounting the learning of the African American woman called Henrietta Lacks who died of having cervical cancer in the year 1951. However, the cancerous cells of Henrietta became the first immortal human cell line named as HeLa. It has been explained by Rebecca that some of most significant discoveries of 21stcentury had made HeLa possible. Next, the daughter of Henrietta called Deborah Lacks has been introduced who is a key figure in the quest of Rebecca. The first visit of Henrietta has been narrated by Rebecca to the hospital of John Hopkins. It is where the doctor eventually diagnoses here with the cervical cancer treating her with the radiation(Beskow, 2016). The work is about the unethical research practices of the day which is emblemized by Chester Southam who had injected cancel cell cells into the patients without all of their knowledge that was reprimanded later. The case is the beginning of a debate questioning about the medical consent. Henrietta had developed cervical cancer at the age of 30 and the doctors had removed sample of flesh from her body without taking any consent of her family. This cell line HeLa revolutionized science but the family of Henrietta was never informed about the contributions of their mother to science .Also, they never received any type of financial compensation rather they struggled with poverty, racism and the untimely death of Henrietta. They only knew about the importance of HeLa having read articles which other people had written with intimate details about the death of Henrietta. Rebecca Skloot is found to be revealing the truth of Henrietta in collaboration with Henrietta daughter. Skoolt then provides a significant voice to the family of Henrietta Lacks highlighting the issue in medical ethics regarding the ownership of biological materials and patient consent.
2ETHICS IN HEALTHCARE Section 2- Ethical concerns related to the removal of Henrietta cells for Research It is seen that there is a situation where the doctor picks up a sharp knife and shaves two dime-sized tissue pieces from the cervix of Henrietta. These samples were taken in the name of research and not to treat her cancer. With this activity, there are some implications related to the ethics of medical science. Firstly informed consent is one of the most important healthcare principles that have been breached in this case(Lee et al., 2019).In the form of the ethical doctrine, the informed consent is actually a process of communication where a patient is quite enabled to make a voluntary and informed decision regarding the acceptance or declining of the medical care.The seeking of the informed consent usually expresses respect for the patient, respect for the moral right of patient and support to the freedom of the patient for making decisions(Acog.org. 2020). In the book, Rebecca Skloot has pointed out that decade ago Henrietta Lacks had been recognized as the source of the HeLa cells(Dimaano & Spigner, 2017). In the recent years, the researchers had sequenced the genome of the HeLa cells and published the results having posted it in one such public database. This surely affects the privacy rights of Ms. Lacks along with her family members. The significant issues in this specific case is related to the lack of proper respect for the family of Ms. Lacks, her family, race, justice and the social class. The modern medical innovations were being fueled by the HeLa cells but her family did not have the access to the fundamental care and they were not also aware of any of this happening. Also, according to the virtue ethics theory, a person’ character is the real determinative factor in terms of discerning the extent of the person’ being a good person. The moral virtues consist of the courage, the compassion, honesty, generosity, justice and others. It is applicable directly to the health care sector because the health care professionals are found to be exhibiting
3ETHICS IN HEALTHCARE some moral virtues. This ethical theory of medicine also shows that the principle of honesty has become breached in the Hopkins’ hospital. The doctor should not have removed the cells of Henrietta without her consent breaking the honesty for the benefits of science. Section -3 Next, it is found that the HeLa cells did many benefits to humanity opening new ways for science and mankind. Henrietta Lacks who was a poor Southern tobacco farmer working in the same land as the slave ancestors of herself. Her cells were taken without her own knowledge and consent being the most significant tool in the field of medical science. The HeLa cells have been quite vital in the terms of developing the polio vaccine, uncovering of the cancer secrets, the effects of atom bomb. The taking of the samples from Ms. Lacks and then using them for the purpose of research without her consent did not actually violate the legal standards. But, the rules have been changed and the rules are being changed till date(Lynch & Joffe, 2017). The requirements have been modified in terms of the usage of tissues and the related data in the research. As per the new standards, the researchers are required to comply with new policies. This policy is made for promoting the genomic information sharing protecting the privacy of people who had contributed in donating samples for the research. The policy also asks for the consent of future usage of all tissues without the inclusion of any personal information. Therefore, it is for sure that contribution of Ms. Lacks had generated huge benefits for the medical science. However, the fact cannot be neglected that the sample was taken unethically from a patient not to treat her disease but to serve the field of medical science. According to the views of Kant and his moral theories, the rightness or the wrongness of the actions does not really depend on the outcomes or consequences but on the fact of whether they fulfill the duty or not. Kant actually believed in the supreme principle of morality anything beyond the morality
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4ETHICS IN HEALTHCARE cannot be ethical or clean. From this perspective, it can be said that the benefits to humanity provided by HeLa cells cannot outweigh the means by which the cells were acquired. As per the informed consent for the Biospecimen research, the individuals usually take some voluntary decisions regarding participating in the research with the understanding of the purpose, the risks, the procedures and the alternatives too(Virtue et al., 2018).The key aspect of the informed consent consists of the provision of information regarding a research. From this perspective also the way the cells were obtained is unethical because the patient was not informed about the direction it is going to be used in.
5ETHICS IN HEALTHCARE References Acog.org.(2020).InformedConsent-ACOG.Retrieved26February2020,from https://www.acog.org/Clinical-Guidance-and-Publications/Committee-Opinions/ Committee-on-Ethics/Informed-Consent?IsMobileSet=false Beskow, L. M. (2016). Lessons from HeLa cells: the ethics and policy of biospecimens. Annual review of genomics and human genetics, 17, 395-417. Dimaano, C., & Spigner, C. (2017). Teaching from The Immortal Life of Henrietta Lacks: Studentperspectivesonhealthdisparitiesandmedicalethics.HealthEducation Journal,76(3), 259-270. Lee, S. S. J., Cho, M. K., Kraft, S. A., Varsava, N., Gillespie, K., Ormond, K. E., ... & Magnus, D. (2019). “I don’t want to be Henrietta Lacks”: diverse patient perspectives on donating biospecimens for precision medicine research. Genetics in Medicine, 21(1), 107-113. Lynch, H. F., & Joffe, S. T. E. V. E. N. (2017). A lesson from the Henrietta Lacks story: science needs your cells. The New York Times. Virtue, E., Wells, G., MacKusick, C., Murphy-Nugen, A., Rose, A., & Snyder, M. M. (2018). The Immortal Life of Henrietta Lacks: Using a Common Read to Transform a Learning Community.Learning Communities Research and Practice,6(1), 4.