Fetal Alcohol Spectrum Disorder and CanFASD: Providing Support and Services
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This article discusses Fetal Alcohol Spectrum Disorder (FASD) and the services provided by CanFASD, a health organization in Canada. It explores the impacts of FASD and the importance of FASD-informed practice. The article also highlights how CanFASD supports pregnant women with substance use problems and their families.
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Running head: FETAL ALCOHOL SPECTRUM DISORDER FETAL ALCOHOL SPECTRUM DISORDER Name of the Student: Name of the University: Author note:
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1FETAL ALCOHOL SPECTRUM DISORDER Introduction Thereisincreasingrecognitionamongsthealthandsocialcareserviceproviders particularly the ones engaged in community based initiatives with women or youths with problems related to substance use. These substance users have been encountering hostility, apprehension, distress with a range of their program contributors who have been prenatally inclining towards several models of drug such as alcohol, drug and thus suffer from FASD (Fetal Alcohol Spectrum Disorder) (Rutman, 2016). FASD is identified as an umbrella concept that is used in order to explain a number of analyses arising from prenatal exposure to alcohol which includesFetalAlcoholSyndrome(FAS),partialFASinadditiontoalcoholassociated neurodevelopmental disorder. Wartnik and Brown (2016) have noted that the impacts of FASD typically include physical irregularities,characteristic facial features in addition to central nervoussystemharm.The followingpaper willfocuson FASDand one of thehealth organizations in Canada that has been providing services to individuals suffering from such a substance use problem. Discussion Recently several scholars along with child welfare researchers are growingly identifying that a analysis of FASD in youths exhibits a prospect to recognize as well as use FASD well- versed adaptations and developments in order to aid young aged individuals and as a significant chancetorealizeandseekthemultifacetedrequestsofpregnantwomenandfamilyin identification of the diversity of problems related to FASD (Anderson, Mela & Stewart, 2018). However, one such health organization who has been providing efficient health care services to FASD users is CanFASD. This organization recognized as Canada Fetal Alcohol Spectrum
2FETAL ALCOHOL SPECTRUM DISORDER Disorder Research Network which is a collaborative and interdisciplinary research framework. The organization primarily operates with collaborators, researchers and associates across several regions of Canada.The primary mission of the organization is to efficiently support Canada’s leadership in successfully seeking exceptional issues related to FASD. CanFASD has been successfully identifying and considering the critical importance that research contributes in informing policy program development and service delivery (CanFASD, 2019). The organization’s strategies have been aligned with alcohol model of addiction which is extensively consumed by pregnant women across the world. Such consumption thus raises the risk during pregnancy and further result to enduring consequences for the child. CanFASD with collaborating with national entities dealing with FASD and involving Public Health Agency of Canada (PHAC), Health Canada along with NeuroDevNet have been introducing regime and services to aid FASD affected individuals (CanFASD, 2019). The organizations’ target base mainly comprises of women who consume alcohol during pregnancy and tend to be at high risk of giving birth to children with prenatal alcohol exposure. CanFASD efficiently serves online training programs for front-line health as well as socials service professionals by offering them with adequate knowledge, expertise as well as confidence in order to involve as well as engage patients in a highly supportive as well as non-judgemental discussion related to substance use during pregnancy (CanFASD, 2019). While alcohol use amongst expecting women has been studied in human model systems thus defining the possibility level of fetal alcohol coverage, substance use has been convoluted by independent determinants such as frequent maternal consumption of alcohol with toxicity profile in addition to a lack of quantitative indicators of alcohol exposure. Popova, Lange, Probst and Parunashvili et al. (2017) have noted that animal model of chinchilla that has demonstrated
3FETAL ALCOHOL SPECTRUM DISORDER its capacity in obstetric research and its potential utility for MRI and CT measures in the placenta. Furthermore, this model has generated mechanistic information on the maternal-fetal kinetics as well as toxicity level of alcohol which can further be construed within the framework of fetal pharmacology as well as developmental psychobiology.According to Ceccanti, Fiorentino, Ciolli, Coriale and Messina (2016), the chinchilla model typically has reproduced the distribution kinetics that has been found in humans and further considered by a reasonably rapid divisionphasealongwithlong-terminalhalf-lifemostlydeterminedbythewidespread distribution of THC into adipose tissue. Moreover, research conducted by Williams, Smith and Committee on Substance Abuse (2015) have noted that THC tends to be exclusively eliminated by means of metabolism in rats and comparable to what has been seen in humans whereby only 15% of the dosage is emitted in urine. Howlett, Mackenzie, Strehle, Rankin and Gray (2019) have noted that the role of biliary secretion in rats has been observed by using the isolated perfused rat liver model whereby around 90% of the perfused THC radioactivity has been secreted into the bile. Furthermore, research of Hoyme, Kalberg, Elliott, Blankenship and Buckley et al. (2016) in rats has further suggested that enterohepatic circulation of THC metabolites may occur. This result thus suggests that that placental along with potential fetal factors have been identified as highly chief factors regulating fetal THC exposures at unvarying maternal exposure. On the other hand, research conducted by Cook, Green, Lilley, Anderson & Baldwin et al. (2016) have revealed that in preclinical model systems of human developmental exposure, fetal absorption tend to show lower level in comparison to the level observed in pregnant mothers and thus shows significant dependence on route of administration. “Joanna, a 23 years old young Christian woman of economically low status has revealed that she got divorced within 5 months of her second marriage due to confrontation with her
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4FETAL ALCOHOL SPECTRUM DISORDER husband over her addiction to pethidine that she started injecting almost daily within one week of marriage because of severe abdominal pain. However, eventually after 2 years due to severe poor economic condition she switched over alcohol consumption. After getting married for the third time she could not abstain herself from this addiction but continued it despite receiving strong resistance from her husband and being aware of risks to the fetus. Furthermore, on the occasion of during her second trimester she consumed alcohol around five times a day without any food consumption. Even during her lactation period she continued consuming alcohol and less food, but her routine medical investigations did not show any abnormal limits of blood sugar or disruptive liver functioning. Moreover, post delivery of a 2.4 kg weighing baby girl showed everything within limits with no history of poor mother child relationship or faulty association. However, recent medical reports of the child have shown delayed developmental milestones in the child particularly in areas of language as well as motor areas. In addition to this, the report of the child revealed that motor in coordination has also been noticed with hypotonia in all four limbs with severe lack of anxiety towards unknown individuals.” At this point of discussion, as a point of considering factors which comprise the FASD- informed practice and programming, it is imperative to recognize the major principles that strengthen the approach. Moreover drawing relevance on the emerging literature on FASD- informed practice, the principles of FASD informed approach must be identified. Reports of Popova, Lange, Shield, Mihic and Chudley (2016) have revealed that the CanFASD primarily focuses on providing health and social services of developing awareness of FASD among pregnant women and their families who engage in substance use during pregnancy. Essential to the principle of developing awareness of FASD the organization has been identifying an extensive changeability in the potentials, means as well as challenges of pregnant women with
5FETAL ALCOHOL SPECTRUM DISORDER FASD because of cerebral effects of FASD along with the concept of developmental age that is considered to be more effective in comparison to chronological age in providing a sense of pregnant women’s functioning (Popova, Lange, Probst & Parunashvili et al.,2017). CanFASD while providing this particular informed practice has introduced supportive campaigns which target women primarily belonging to socially and economically disadvantaged andgiven birth to an FASD-affected child. The aim of this campaign is to increase the level of awareness among women by providing mental health treatment for their mental health disorders. Furthermore, the organization primarily engages in creating protection and being association based; for women withFASD,comprisingasafe,reliableconnectionwheretheywillnotencounterany judgemental approach or being misinterpreted or being stigmatized (CanFASD, 2019). Thus, for CanFASD being non-judgmental has been regarded as the primary value to reliability, trust and relationship construction which further has been identified to be highly essential to willingness or enthusiasm to successfully establish aims, goals and develop changesassociatedwith individualgrowth andwellness. Furthermore,CanFASDto provideefficientservicesfor cognitive, information dispensation along with receptive language complications that many people with FASD experience, accommodations or adaptations to communication approach has taken these approaches as highly essential. Moreover, use of explicit communication as well as engaging the FASD affected individual and her family to process is highly vital (CanFASD, 2019). Conclusion Hence to conclude, CanFASD must use practical approaches while working with women with FASD. Such approaches must inform the FASD affected women the required action or behaviour, modeling, activities related to role playing as well as education services. It is
6FETAL ALCOHOL SPECTRUM DISORDER important to note that CanFASD along with using other FASD-informed approaches must provide experiential learning on a fragmentary base, with significant number of prospects for practicing rather than supporting the idea that the person will consider or oversimplify from one situation to the following.
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7FETAL ALCOHOL SPECTRUM DISORDER References Anderson, T., Mela, M., & Stewart, M. (2018). The Implementation of the 2012 Mental Health Strategy for Canada Through the Lens of FASD.Canadian Journal of Community Mental Health,36(Special Issue), 69-81.doi:10.7870/cjcmh-2017-031 CanFASD. (2019). Home - CanFASD. Retrieved fromhttps://canfasd.ca/ Ceccanti, M., Fiorentino, D., Ciolli, P., Coriale, G., & Messina, M. P. (2016). Investigating Alcohol Consumption during Pregnancy for the Prevention of Fetal Alcohol Spectrum Disorders(FASD).ObstetGynecolCasesRev,3,076.Retrievedfrom https://www.researchgate.net/profile/Mauro_Ceccanti/publication/313355053_Investigati ng_Alcohol_Consumption_during_Pregnancy_for_the_Prevention_of_Fetal_Alcohol_Sp ectrum_Disorders_FASD/links/5b72888b299bf14c6da19939/Investigating-Alcohol- Consumption-during-Pregnancy-for-the-Prevention-of-Fetal-Alcohol-Spectrum- Disorders-FASD.pdf Cook, J. L., Green, C. R., Lilley, C. M., Anderson, S. M., Baldwin, M. E., Chudley, A. E., ... & Mallon, B. F. (2016). Fetal alcohol spectrum disorder: a guideline for diagnosis across the lifespan.Cmaj,188(3), 191-197. doi:10.1503/cmaj.141593 Di Pietro, N., De Vries, J., Paolozza, A., Reid, D., Reynolds, J. N., Salmon, A., ... & Illes, J. (2016). Ethical Challenges in Contemporary FASD Research and Practice: A Global HealthPerspective.CambridgeQuarterlyofHealthcareEthics,25(4),726-732. doi:10.1017/S096318011600044X
8FETAL ALCOHOL SPECTRUM DISORDER Howlett, H., Mackenzie, S., Strehle, E. M., Rankin, J., & Gray, W. K. (2019). A Survey of Health Care Professionals’ Knowledge and Experience of Foetal Alcohol Spectrum DisorderandAlcoholUseinPregnancy.ClinicalMedicineInsights:Reproductive Health,13, 1179558119838872. DOI: 10.1177/1179558119838872 Hoyme, H. E., Kalberg, W. O., Elliott, A. J., Blankenship, J., Buckley, D., Marais, A. S., ... & Jewett, T. (2016). Updated clinical guidelines for diagnosing fetal alcohol spectrum disorders.Pediatrics,138(2).doi:10.1542/peds.2015-4256 Popova, S., Lange, S., Probst, C., Parunashvili, N., & Rehm, J. (2017). Prevalence of alcohol consumption during pregnancy and Fetal Alcohol Spectrum Disorders among the general and Aboriginal populations in Canada and the United States.European journal of medical genetics,60(1), 32-48.https://doi.org/10.1016/j.ejmg.2016.09.010 Popova, S., Lange, S., Shield, K., Mihic, A., Chudley, A. E., Mukherjee, R. A., ... & Rehm, J. (2016). Comorbidity of fetal alcohol spectrum disorder: a systematic review and meta- analysis.TheLancet,387(10022),978-987.http://dx.doi.org/10.1016/S0140- 6736(15)01345-8 Rutman, D. (2016). Article Commentary: Becoming FASD Informed: Strengthening Practice andProgramsWorkingwithWomenwithFASD.Substanceabuse:researchand treatment,10, SART-S34543. doi:10.4137/SART.S34543 Wartnik, A. P., & Brown, J. (2016). Fetal alcohol spectrum disorders (FASD) and the criminal justicesystem:Causes,consequences,andsuggestedcommunication approaches.Forensic Scholars Today,1(4), 1-5. Retrieved fromhttp://online.csp.edu/wp-
9FETAL ALCOHOL SPECTRUM DISORDER content/uploads/2016/04/FST-1.4-FASD-and-the-Criminal-Justice-System-Causes- Consequences-and-Suggested-Communication-Approaches.pdf Williams, J. F., Smith, V. C., & Committee on Substance Abuse. (2015). Fetal alcohol spectrum disorders.Pediatrics,136(5), e1395-e1406. DOI: 10.1542/peds.2015-3113