Health-related Quality of Life in People with Disabilities

This assignment involves designing, conducting, and analyzing a study to investigate the effect of disabilities on health-related quality of life. It requires reviewing existing literature, collecting and interpreting data, and drawing conclusions based on findings. The study will focus on people with physical disabilities, cerebral palsy, traumatic spinal cord injuries, and other conditions, examining how these affect their overall well-being and quality of life.

RESEARCH
PROJECT

Table of Contents
1.2 Research questions:................................................................................................................1
1.2 Rational:.................................................................................................................................2
1.3 Literature review....................................................................................................................2
1.4 Research methodology...........................................................................................................6
1.5 Data collection.......................................................................................................................7
REFERENCES................................................................................................................................8

Student Name:
1.1 Topic: Living with disability and long term conditions
Aim:
To investigate the impact of quality of life of people living with disability for long term:
A study on Cerebral palsy.
Objective:
 To identify the meaning of disability.
 To identify the Impact of disability upon quality of people life.
 To recommend further improvements and services for disable people.
1.2 Research questions:
 What is the meaning of disability
 How disability impact upon the quality of life of people and family
 How can professional help in further improvement in service for disable people.
Research will take place in UK by analysing the impact on quality of life of people from
disability.

1.2 Rational:
Researcher chose this topic as Living with disability and long term conditions, to
identify the impact of disability on life of people's. This topic is important for researcher that
helps a lot to determine the affect of disability upon human life, as well as family, friends and
other members. Disability among people is increases more and more which affect people life,
this research is related to community, where disability get develop consistently. Researcher is
interested to know more about disability, how it can develop among people and how it effects
their quality of life as whole. They want to investigate more about it in detail, just to understand
disability impacts and its influence on family and other members. Researcher choice this topic
to determine services offer by professional to disable people and they are interested to know
how its helps to improve quality of people life. It is very important to identify impact of
disability as it contribute to improve disability or Cerebral palsy disease.
1.3 Literature review
Meaning of disability-
As discussed by Goodridge, (2015) disability is mental or physical conditions that limits
individual's senses, movements or activities. It is continuing medical condition that restricts
person every day activities or actions. Disability is damage that can be developmental,
cognitive, mental, sensory, intellectual, physical and combination of some of these. In other
words, disability define as societal disadvantage rise from impairments. Disabilities is like
umbrella term, activity limitations, covering impairments and participation restrictions.
Impairment or damage is issues in body structure or functions, participation restrictions is issue
that individual experienced in life situations, while activity limitations is very difficult for
individual or person as they will not be able to perform any action or task due to disability. It is
complex phenomenon not just the health issues, it reflects interaction between features or
characteristic of individual's body and feature of community in which she or he lives.
According to Zimmerman (2014) disability is concept of contested, with various meaning in
different societies, it can be used to define to mental or physical attributes that some
organizations, particularly medicine, consider as needing to be set. Disability is part of human
diversity, one in five persons in UK, almost 4 million individual, have disability and this
symmetry is maximizing with the ageing population.
According to Shogren (2014) disability is some conditions of human mind or body that create
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more difficulties for person with that condition to do some activities. Individual with disability
face many difficulties while if they interact with other person's around them. Vision, thinking,
movement, learning, mental health, physical health, communicating etc. are the types of
disabilities that affect quality of human life cycle the most. Although, person with disabilities,
sometimes define to individual population, this is really a diverse team of people with number
of wants. Two person with equal types of disability can impact in different terms, some
disabilities is hidden or not been easy to find or see. Cerebral palsy is considered as physical
disability that affect person live and life quality more and more. CP is unit of permanent
movement disorders that shows in early childhood. In UK there are many children's who are
facing this disease and live their life with it. Poor coordination, weak muscles, stiff muscles,
tremors etc. are Cerebral palsy symptoms. Younger with CP face issues to hear, speak, vision
and in other activities, often small babies with this disease do not roll over, crawl, sit or walk as
early as another children's of its age.
Impact of disability on quality of life of people-
Discussed by Huttmann, (2015) disability is one of the most serious and harmful physical and
mental conditions that affect human life and quality of person life the most. Person with
disability partial or totally loss their body and mental functions, they will not be able to work
and do some things in their lives, till when they do not take appropriate treatment for it.
Cerebral palsy is one of types of disability that impact babies life the most, it caused by
abnormal development and damage to part of person brain that managed or control body
movement, posture and balance. Every seen, the CP issue occur during pregnancy period,
moreover, it may occur during baby birth or shortly after birth. Disability is longer term
condition which destroy person life quality that affect its family members and other person
around them. Autism is also known as disability as it considered as development disorder that
create many difficulties for small babies to interact with other children's and communicates
with them. It associated with combination of environment factors and genetic factors, risk
factor is high of this disease during pregnancy.
As discussed by Magasi, (2015) disability have devastating impact on quality of life of disable
or normal people. It effects on person normal live styles and activities which they did every
day, it also impacts on employment, educational attainment and emotional state of person.
Disability jeopardized person personal, social and family life as whole. Common influence of
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disability include loss of independence and freedom, mental health problems including
depression and anxiety. Due to disability, disable person get frustrated at having to rely on
another person where there family member or friends. For example, if person can not be able to
work or perform their daily task because he/she is handy cape. It gets affected their living styles
and whole life quality and they get frustrated due to dependency. Mental illness or disability is
condition that impacted the person's feeling, thinking or mood. Disable conditions affect
someone's capability to relate to another and function each day. Environment, genetics and
lifestyle impact whether someone develops the mental health situation. Schizophrenia,
depression, eating disorder, anxiety disorders and addictive behaviours is the examples of
mental disability. Physical disability also affect person life and functions the most, it affects
individual capacity to communicate, learn and interact with another's. It impacts mobility or
ability of person upper and lower body.
Disability impact on family-
According to Findlay, (2016) Living with disable person can have profound affects on whole
family, parents and extended family members. Impacts of disable people likely depend on types
of severity and conditions as well as emotional, physical, financial etc. In UK rates of disability
is increased due to population ageing and maximizes in chronic health situations among another
causes. Person with disabilities has less resources to health care services and therefore they
experience unmet care needs. Having one individual within family with disability can impact
on each of the members. They feel hesitation to take care about younger person who are having
disability, most of the person get depress due to this. Child with Cerebral palsy disability or
disease face many difficulties, as its family members also suffer a lot. Living with CP child
effect on its siblings, parents and others. Financial costs and time, logistical complexities,
emotional and physical demands associated with disable child that effect longer term in its life.
For family having child with disability increase stress and depression, take toll on physical and
mental health, it makes difficult to find affordable and appropriate child care.
Professional role and help in further improvement in service for disable people-
Discussed by Tietze, (2014) health care professionals play essential role in context of
improving life quality of disable individual or person. In UK government play vital role as they
collect funds to helps disable people. By offering these services, they support to give disables
opportunities to live in ordinary life style. Disable people receive excess support from number
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of professional who helps to improve living standards of ill person. Health cares professional
provide appropriate treatments to disable individual at right time which helps to develop or
improve their health more and more rather than before. Most of the hospitals in UK design
slops in its building, that is easy for disable person to get in or out of organization. Buses and
trains services also arrange slops facilities to that people which makes their travelling life easy
and comfortable. Most of the societies perceived that disable person is helpless and sick, they
need to being take care of itself and one have situation that is indeed deplorable. As according
to DiFazio, (2016) today individual who become permanently mental and physical disable finds
himself as bewildering world, as different and new world with the helps of professional.
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1.4 Research methodology
Research philosophy:
It will take in consideration by company which help in setting up of research process and data
assessment in significant and effective manner. Effective adoption and setting up of research
philosophy support suitable plans and bring out of evaluation procedure and data assessment to
investigate the impact of disability on quality of life of people. It helps in developing the
positive knowledge which has been followed by researcher in order to reach appropriate and
desired outputs context to research procedure carried out. Realism, interpretivism and
positivism are the three types of research philosophy. Research operation's and measures that
are been carried out measurable, quantified and visible easily.
Research approach:
After research approach is been selected by researcher, effective theoretical approach is chosen.
Research approach is main section or method of this research procedure that helps in caring
positive outcomes. Suitable selection of research approach lead to placing upper of right
guidelines connected to evaluation procedure and data assessment. In present research,
researcher used theoretical approach that formulated to predict, explain and understand
phenomena and many cases. It helps to extend and challenge existing knowledge within limits
of captious bounding premise. Theoretical framework is one of the best structure that support
and hold the theory of research report.
Data collection:
Data collection is one of the most essential part of current research, it is the procedure of
gathering information or data in context of present topic. Research in this report used secondary
data collection method in which they collect all the informations via reading magazine,
newspaper, articles and they also gather data through internet that is one of the fastest way to
get the accurate information.
Researcher used theoretical approach that is one of the reason behind its connection with
secondary data collection methods.
1.5 Data collection
Data collection:
Researcher used secondary data collection ways that helps to collect all the information
relevant to research. There are the different types of data collection methods which can be used
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by researcher, but they chose secondary. Magazine, new and media articles, newspaper,
internet, books and journals are the data sources that help researcher to accomplish this research
and also contribute to gather accurate information. By reading books, using media articles and
other things' researcher collect data or details which support to get more information how
disability affect quality of people life as well as their families.
Data analysis:
Data analysis is one of the second process after data collection, it helps to evaluate
effectiveness of collected information. Quantitative and qualitative research are the two types
of data analysis that helps researcher a lot in process of making report. Researcher in this
research used quantitative research methods to analyse the information or data. Data analysis is
the procedure of evaluating information or data using logical and analytical reasoning to
examine component of information provided.
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Activity 5th
Feb
2019
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1st
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Identify
research topic
Review of
Literature
Drafting
Methodologies
Complete
Proposal
Designing
questionnaire
Collection of
data
Analysing data
and
interpretation
Discussion and
Conclusion
Submitting

REFERENCES
Books and Journals
DiFazio, R. and et.al., 2016. Effect of hip reconstructive surgery on health-related quality of life
of non-ambulatory children with cerebral palsy. JBJS. 98(14). pp.1190-1198.
Findlay, B. and et.al., 2016. Investigating the impact of pain, age, Gross Motor Function
Classification System, and sex on health‐related quality of life in children with cerebral
palsy. Developmental Medicine & Child Neurology. 58(3). pp.292-297.
Goodridge, D. and et.al., 2015. Access to health and support services: perspectives of people
living with a long-term traumatic spinal cord injury in rural and urban areas. Disability
and rehabilitation. 37(16). pp.1401-1410.
Huttmann, S.E., Windisch, W. and Storre, J.H., 2015. Invasive home mechanical ventilation:
living conditions and health-related quality of life. Respiration. 89(4). pp.312-321.
Magasi, S. and et.al., 2015. Theoretical foundations for the measurement of environmental
factors and their impact on participation among people with disabilities. Archives of
Physical Medicine and Rehabilitation. 96(4). pp.569-577.
March, L. and et.al., 2014. Burden of disability due to musculoskeletal (MSK) disorders. Best
practice & research Clinical rheumatology. 28(3). pp.353-366.
Shogren, K.A., Luckasson, R. and Schalock, R.L., 2014. The definition of “context” and its
application in the field of intellectual disability. Journal of Policy and practice in
Intellectual Disabilities. 11(2). pp.109-116.
Tietze, A.L. and et.al., 2014. Sleep disturbances in children, adolescents, and young adults with
severe psychomotor impairment: impact on parental quality of life and
sleep. Developmental Medicine & Child Neurology. 56(12). pp.1187-1193.
Zimmerman, S., Sloane, P.D. and Reed, D., 2014. Dementia prevalence and care in assisted
living. Health Affairs. 33(4). pp.658-666.
Online
Physical disability. 2018.[Online].Available through:<https://achieveaustralia.org.au/disability-
services/physical-disability/>