This essay focuses on the palliative care approach for terminally ill patients, with a case study of Mrs Brown. It discusses person-centered and community-centered care strategies to provide holistic support. Recommendations are given for Mrs Brown's specific needs.
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Running head: PALLIATIVE CARE APPROACH PALLIATIVE CARE APPROACH Name of the student Name of the University Author Note
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1PALLIATIVE CARE APPROACH Palliative care approach is a nursing mechanism or approach that helps the terminally ill patients live well as much as possible and live long as much as possible (Lynch, Connor & Clark, 2013). While death is considered to be inevitable and a part of life, palliative care approach seeks to give maximum support (physical, medical, social and spiritual) to the carers as well as their family and friends who are fighting against the illness and trauma associated with it. Various national-level palliative care strategies have been taken up in the recent times, which include not only family and caregivers, but society, groups, communities and cultural groups taking part in the caregiving sessions too (Perez et al., 2015). The respective essay intends to focus on a case study of a terminally ill patient, Mrs Brown and recommend various strategies and approaches to palliative care for Mrs Brown in her final days of life. In case of Mrs Brown who has been suffering from acute breathlessness which has been detoriating day by day and turning into a terminal illness that could claim life, she had been diagnosed with depression by her general physician. Her general physician prescribed palliative care for herself as she was at the juncture of end of her life. However, Mrs Brown seemed unaware of palliative care, its definition and whereabouts. As she was a senior citizen, she was unaware of the new and latest changes that has been happening in case of social care sectors in the country. Mrs Brown is entitled to receive a holistic palliative care approach which is both person centred as well as community centred.Person centred palliative care approach shows respect to the patient’s values, preferences and needs (medical, psychological and/or spiritual) and give the best possible nursing aid to them according to their social and cultural settings (Brännström & Boman, 2014). Mrs Brown is entitled to receive both physiological as well as psychological treatment that might help to reduce her chronic pain and breathlessness. For physiological treatment, Mrs Brown should be provided with certain drugs such as
2 PALLIATIVE CARE APPROACH Bronchodilators which is necessary for chronic breathlessness happening during regular activities or opiates such as Morphine that sedates the patient, thereby, temporarily relieving them from acute or chronic pain related to their respective illness. But it also should be kept in mind that the patient does not get used to or addicted towards any of the drugs (Claessens et al., 2014). A person- centred palliative care approach focuses on unique health needs of every patient keeping in mind their psychological as well as psychosocial wellbeing. As far as depression is concerned, she should be assisted with a counsellor who would often counsel her periodically to take care of her psychological and spiritual needs (Murray et al., 2017). It is assumed that the acute depression, which Mrs Brown had been diagnosed with previously, might be the cause of her being claustrophobic or a feel of any form of anxiety. To eradicate claustrophobia from her mind, steps such as intense psychological counselling, consultation and spiritual healing should be inculcated. The family of Mrs Brown should also be considered while providing with person centered palliative care strategy. In this case, Mrs Brown’s husband should be taken as a unit. Mr Brown should be provided necessary guidelines to meet the emotional and sentimental demands of Mrs Brown and should also be advised to spend as much time as possible with his wife. Special caregivers, who also work as psychological healers should be given proper training in befriending Mrs Brown so that she doesn’t feel isolated due to her ill-health and age related mobility issues amidst the vast world outside. Acommunitycentredpalliativecarestrategyensuresthatthecommunity palliative care centre nurses might be integrated and inculcated into a single team, which would expose the nursesandthe caregiversto different environment and ambience while dealing with the patients from various walks of life (Hilbers et al., 2018)..A community care centered palliative care strategy focuses on brining in the locality, society or a community to the patients who are battling with life claiming diseases. In a
3PALLIATIVE CARE APPROACH community centred palliative care centre, the nurses and caregivers are given training and education on group involvement in case of palliative nursing.While it is evident in case of Mrs Brown that her husband Mr Brown does not stay at home with her in her last few days as he goes for his part-time job which he has enrolled in, it is assumed that Mrs Brown has quite a number of times, felt lonely and helpless, thereby falling into the trap of acute depression that led her to get into eating disorder which made her physiologically weak with poor health and frailty. Moreover, her increasing COPD has acted as a catalyst in detoriating her physical health which is affecting her psychosomatically.If an approach of brining in community of nurses or enrolling Mrs Brown to a community that takes care of terminally ill patients who are in need of palliative care, a reasonable change in her attitude can be noticed as it is assumed that the acute depression which she is right now going through can be curbed to a certain extent by social exposure.With a social exposure to various other terminally ill patients as well as survivors, opportunities and platforms for exchanging words and conversing about death as a natural way and part of life, loss, grievances associated with dying and loss, spiritual destruction felt and survived by the patients would ensure Mrs Brown identifying people more like her. A naturally occurring community connector would help her foster a compassionate and benevolent community that would ensure her practical and pragmatic support in case of end-of-life care and emotional needs (Abel et al., 2013). Such network communities that work for compassion and benevolence for the needy would ensure Mrs Brown to ventilate her grievances related to her health, medicines prescribed to her, the caregivers in charge of her, her psychological and spiritual conflicts, her loneliness and isolation. Such ventilation of grievances and problems would ensure Mrs Brown safer, happier, joyful and less painful old-age life that would also help her minimise pain (physical and mental) as much as possible. The approach of concepts of
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4 PALLIATIVE CARE APPROACH person-centred care to network-centred care might help Mrs Brown fight the difficulties she is facing in the final phase of her illness and her life. I, being a student of psychology and palliative care approach, would recommend “community-centred” palliative care approach for Mrs Brown.Community- centred palliative care approach would provide Mrs Brown with a vast social exposure wherein she might find herself identical to the other terminally ill patients who are also surviving with their illness and has embraced death as a natural phenomenon which is inevitable. A community centred palliative approach might help Mrs Brown cope up and curb the acute depression she is right now going through which has also ignited claustrophobia inside her making her last few days tougher and difficult. With eradication of depression through a network based personal care, she would find joy and happiness revisited in her final days of her life, thereby, enabling her to cope with her illness as much as possible and as far as possible.
5PALLIATIVE CARE APPROACH References: Abel, J., Walter, T., Carey, L. B., Rosenberg, J., Noonan, K., Horsfall, D., ... & Morris, D. (2013). Circles of care: should community development redefine the practice of palliative care?.BMJ supportive & palliative care,3(4), 383-388. Brännström, M., & Boman, K. (2014). Effects of person‐centred and integrated chronic heart failure and palliative home care. PREFER: a randomized controlled study.European journal of heart failure,16(10), 1142-1151. Claessens, P., Menten, J., Schotsmans, P., & Broeckaert, B. (2014). Food and fluid intake and palliative sedation in palliative care units: A longitudinal prospective study.Progress in Palliative Care,22(1), 1-8. Hilbers, J., Rankin-Smith, H., Horsfall, D., & Aoun, S. M. (2018). “We are all in this together”: Building capacity for a community-centred approach to caring, dying and grieving in Australia.European Journal for Person Centered Healthcare,6(4), 685- 692. Lynch, T., Connor, S., & Clark, D. (2013). Mapping levels of palliative care development: a global update.Journal of pain and symptom management,45(6), 1094-1106. Murray, S. A., Kendall, M., Mitchell, G., Moine, S., Amblàs-Novellas, J., & Boyd, K. (2017). Palliative care from diagnosis to death.Bmj,356, j878. Perez, G. K., Haime, V., Jackson, V., Chittenden, E., Mehta, D. H., & Park, E. R. (2015). Promoting resiliency among palliative care clinicians: stressors, coping strategies, and training needs.Journal of palliative medicine,18(4), 332-337.