Living with disability and long-term conditions

This research project explores the impact of disability on quality of life and the role of professionals in providing care. It includes chapters on research diary, data analysis, and conclusion and recommendation. The study focuses on living with disability and long-term conditions, specifically cerebral palsy.

Research Project

Table of Contents
TITLE .............................................................................................................................................1
Chapter 2: Research Diary ..............................................................................................................1
2.2 The proposed research investigation in accordance with the agreed specification and
procedures...................................................................................................................................1
2.3 Record and collate relevant data where appropriate.............................................................4
Chapter 3: Data Analysis ................................................................................................................5
3.1 Appropriate research evaluation techniques. .......................................................................5
3.2 Interpret and analyse the results............................................................................................5
3.3 Recommendation ..................................................................................................................7
REFERENCES................................................................................................................................9

TITLE
Living with disability and long-term conditions.
Chapter 2: Research Diary
2.2 The proposed research investigation in accordance with the agreed specification and
procedures.
Research Diary is refers as a written record of the investigator's activities, throughout and
feelings during the investigation process from design, through information accumulation and
analysis to writing an presenting investigation over a chosen subject area (Pound and et. al.,
2018). In this proper detailed regarding the activities of the investigation are mentioned with the
appropriate tasks covered in the activity.
Research Diary
Activity 1 Introduction
Activity Task Covered Aim Work-done Outcome
Introduction Overview of
the research,
background of
the Research,
Rational of the
research,
Research aim,
research
objectives and
research
questions
The key aim of this
section is to
providing a proper
outline specification
with the proper
discussion that
covers the aim and
objectives of the
research.
In the present
investigation
work 14 days is
needed to
complete the
introduction
section.
Proper execution
of introduction is
mainly helps the
investigator in
assisting the
overall work in
right manner as it
covers a proper
brief description
regarding the
project area and
covers the aim
and objectives
which are
significant in
determining the
1

purpose of
research in proper
way.
Activity 2: Literature Review
Activity Task Covered Aim Work-done Outcome
Literature Review Theoretical
Description
The major reason for
conducting literature
is developing an
appropriate base
with the support to
secondary resources
like books, journals,
published research
articles etc.,
Therefore in this
critical review is
executed in which
information is being
gathered via the
support of past
investigation
journals, books or
analysis of the
opinion of authors
and writers.
This section
needs 20 days to
be completed.
The potential
outcome of this
area is that it is
providing an in-
depth evaluation
over the area of
analysing the
impact of quality
of life of people
living with
disability for long
term. This area
mainly supports
in providing
proper
information to the
learner to enhance
their knowledge
base in regards to
the selected area.
Activity 3: Research Methodology
Activity Task Covered Aim Work-done Outcome
Research
Methodology
Type of
Investigation,
The key aim of this
section is to
This area needs
17 days, as this
The proper idea
regarding the
2

Research
Design
Research
Approach,
Research
philosophy.
Data collection
tools, ethical
consideration
providing support to
the overall work via
the appropriate
section of
methodologies
which are effective
in carry out the work
in right manner to
reaching at the
potential outcome.
In this suitable
selection of
methodologies are
based over the
information
accumulated by the
researcher.
sections covers
various
applications that
all are effective to
support the work
towards right
manner.
methodology
helps the
researcher in
accumulation of
information from
the right sources,
as in the present
investigation
work proper
methodological
assistance helps
the investigator in
accumulation of
secondary
information to
investigate the
issue of analysing
the impact of
quality of life of
people living with
disability for long
term, in right
manner.
Activity 4: Data Analysis
Activity Task Covered Aim Work-done Outcome
Data Analysis Analysis of
secondary
information
Via thematic
analysis
The potential aim of
this section is to
analysing the
information in
proper manner for
25 Days is
required to
complete this
section.
This area of
investigation is
mainly effective
in execution of
proper analysis
3

the purpose of
reaching at the final
outcome.
over the chosen
subject area via
the help of
thematic analysis.
In the present
investigation
work data
analysis is
effectual in
determining the
area of analysing
the impact of
quality of life of
people living with
disability for long
term.
Activity 5: Conclusion and Recommendation
Activity Task Covered Aim Work-done Outcome
Conclusion and
Recommendation
Conclusion,
Recommendati
on
The major aim of
this section is to
determining the
findings for
developing proper
recommendation.
10 Days In this present
investigation this
section is
effective in
providing proper
conclusion and
recommendation
over the findings
of the research.
4

2.3 Record and collate relevant data where appropriate.
In the procedure of an investigation work, data collection is refers as the key
consideration of an investigation on which the overall work is based. In the existing investigation
based on the area of analysing the influence of quality of life of people living with disability for
long term, secondary research is applied by the researcher as it is suitable in gathering
information which are already published (Francesca and et. al., 2011). This method is effective in
determining the information over the area of analysing the impact of quality of life of people
living with disability for long term via the support of secondary sources like books, journals,
published research articles etc.
Chapter 3: Data Analysis
3.1 Appropriate research evaluation techniques.
Research evaluation is effective in providing suitable support to the overall work in
reaching at the potential outcome. There are two important assessment techniques that are
effective in evaluating the result and outcome of the investigation in right manner. These
methods are evaluated as below:
Formative Assessment: This section is mainly refers as the most important area which includes
Identification of information, a range of formal and informal assessment procedure that are
executed by the researcher to carry out the work in right manner (Iwashyna and et. al., 2012).
This is an important assessment that helps in developing a better and effective understanding
about the results of research.
Summative Assessment: The key purpose of summative assessment is to analyse students or
learners learning at the end of an education unit by conducting an comparative analysis that are
based on some specified standard or criterion. This assessment of learning refers to the
assessment of analysis of information where the major concern is based on the results of the
program.
3.2 Interpret and analyse the results
This section is refers as the process of assigning meaning to the accumulated information
and analysing the conclusions, significance and implications of the outcome (Caffrey and et. al.,
2012). In the present investigation work data is being analysed via the help of thematic analysis
as in this themes are developed that covers the aim and objectives of the research.
5

Theme 1: Meaning of disability.
As per the opinion analysis of the author it has been discussed that, disability is a mental
or physical state which limits an individual's senses, movements and activities. In addition to this
disability recognised as a condition or function judged to be importantly impaired relative to the
usual standard of a person or group of people. This aspect if mainly implemented for analysing
an individual functioning which involves physical impairment, sensory impairment, cognitive
impairment, intellectual impairment mental illness, and various types of chronic disease. The
analysis of the opinion of the authors, it has also been discussed that, disability is defined as a
multidimensional experience for the individual involved. Disability may affects the area in which
an individual is participating or affects on organs or body parts. According to the detailed
analysis of the survey it has also been evaluated that, Disability is a part of human diversity, and
in UK the disability is around 4 million and it is rapidly increasing with the ageing population. In
addition to this disability is a general cognition which caused due to accident, trauma, genetics or
disease and it may also restrict an individual's mental processes, senses or mobility. Disability
has a direct influence over an individual lifer and affects their living too. Cerebral palsy, is also
an effective sort of disability which is mainly found in the people, it is a group of disease that
affects the movement and muscle tone or posture of an individual. The reason of Cerebral palsy
is the abnormal brain development, often before birth. This disability is appears from the early
childhood and can be identified via its symptoms which involves exaggerated reflexes,
involuntary motions and rigid limbs. This kind of disability affects the living of the individual
their family and society too.
Theme 2: Impact of disability on quality of life of people.
According to the discussed help of the investigation area it has been analysed that,
authors are also in the favour of the aspect, that disability is a major issue by which people are
affected and not even able to live a good or healthy life. Living with disability is not an easy task
as the wants and needs of individual's are fluctuate during their lifespan and this includes social,
financial and emotional conflicts. The discussion of the authors on the same area reflects that,
disability has direct influence on the quality of life of disable people, with a potentially negative
influence on their educational attainment, career development, marriage, emotional state and
employment. Disability negatively affects the living of individual and decrease their moral to
live a life, so it is important for the family of disabled people to provide them an effective
6

environment or proper care so that their perception regarding living a life is never change and
also encourage them to put efforts for curing their issue or disability.
Theme 3: Disability impact on family.
As per the views analysis of the authors it has been discussed that, disability places a set
of excess demands or challenges on the family system as most of the needs and demands are
lasts for a long time which may have direct influence over the entire family of disable individual.
Disability negatively affects the family of disabled people as family with disable person requires
to provide proper care to the person for giving them a protective life span. For family or its
members responsibility are enhanced, as caring for a disabled family member may develops
stress. Families are also facing financial and cost issue as it is quite hard for a family to bear all
treatments of medication as few are very much cost consuming in nature.
Theme 4: Professional role and help in further improvement in service for disable people.
From the views evaluation of the authors it has been interpreted that, professionals plays
vital role in further providing improvement in the condition of disabled people. Professionals are
mainly concern over providing proper health care facilities to the individual's for curing their
issues in respect to providing them a good and healthy life. Professional like doctors, nurses,
therapist, trainers etc. are plays vital role in providing proper care and facilities to the disabled
individual for improvising their health condition. In the context of Cerebral palsy, it is important
for the individual to taking proper care and treatments from the professional for improvising their
health conditions.
3.3 Recommendation
The investigation into consideration is based on analysing the impact of quality of life of
people living with disability for long term. thus it is a wide area of investigation which is
effective in exploring the idea and knowledge base of individual in regards to the chosen subject
area. From the in-depth evaluation of the project it has been recommended that people with the
disability of Cerebral palsy, requires long term treatment and it is being suggested that, it is
important for the family member to provide proper treatment to the patients in respect to
developing their health condition. The people with disability should be treated in proper manner
as physical exercises and special education should be provided to the individual's who are
suffering from the issue of Cerebral palsy. It is also important for the family member of the
patients to providing proper self care to the individual for curing the issue in proper manner and
7

it doesn't affects the living of the individual, Therefore, people who are suffering by such kind of
issues mainly loss the hope of living, so it is required for the family of friends to provide proper
friendly and effective environment so that encouragement can be build. Patients should also get
proper medication which involves muscle relaxant and sedative, that are effective in providing
proper relaxation to the people who are facing the issue of Cerebral palsy. This disability is
mainly arises from the birth, so it is also important for the society to keep on proper check-up of
pregnant women so that proper procurement can be taken for reducing the disability of Cerebral
palsy.
8

REFERENCES
Books and Journals
Caffrey, C. and et. al., 2012. Residents living in residential care facilities; United States, 2010.
Francesca, C. and et. al., 2011. OECD health policy studies help wanted? Providing and paying
for long-term care: providing and paying for long-term care (Vol. 2011). OECD
publishing.
Hanlon, P. and et. al., 2018. Long-term condition management in adults with intellectual
disability in primary care: a systematic review. BJGP open. 2(1).
p.bjgpopen18X101445.
Iwashyna, T. J. and et. al., 2012. Spurious inferences about long-term outcomes: the case of
severe sepsis and geriatric conditions. American journal of respiratory and critical care
medicine. 185(8). pp.835-841.
Pound, C. and et. al., 2018. Beyond aphasia: Therapies for living with communication disability.
Routledge.
Smith, J., Cheater, F. and Bekker, H., 2015. Parents' experiences of living with a child with a
long‐term condition: a rapid structured review of the literature. Health Expectations.
18(4). pp.452-474.
9