A Detailed Report on Supporting Individuals in End of Life Care (2024)

This report delves into the multifaceted aspects of end-of-life care, exploring legal requirements, emotional and psychological processes, and the influence of beliefs, religion, and culture. It outlines legal frameworks like the Data Protection Act and the Human Rights Act, emphasizing their application in protecting individual rights. The report examines various emotional theories, such as Kubler-Ross's stages of grief, and the role of key people in providing emotional, social, and spiritual support. It highlights the importance of advance care planning, ethical considerations, and the significance of recording significant conversations. The report also discusses the roles of support organizations, advocates, and spiritual support, as well as the management of personal feelings and after-death care wishes. Overall, the report offers a comprehensive overview of the essential elements of end-of-life care, focusing on the well-being and rights of individuals and their families.

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SUPPORT
INDIVIDUALS

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Table of Contents
QUESTION- ( 1.1 )...........................................................................................................................4
Outline legal requirements and agreed ways of working designed to protect the rights of
individuals in end of life care. ......................................................................................................4
QUESTION- ( 1.2 )......................................................................................................................5
Explain how legislation designed to protect the rights of individuals in end of life care applies
to own job role..............................................................................................................................5
QUESTION- ( 2.1 )...........................................................................................................................6
Outline key points of theories about the emotional and psychological processes that individuals
and key people may experience. ..................................................................................................6
QUESTION- ( 2.2 )...........................................................................................................................8
Explain how the beliefs, religion and culture of individuals and key people influence end of life
care. ..............................................................................................................................................8
QUESTION- ( 2.3 )...........................................................................................................................9
Explain why key people may have a distinctive role in an individual’s end of life.....................9
Care...............................................................................................................................................9
QUESTION- ( 2.4 ).........................................................................................................................10
Explain why support for an individual’s health and well-being may not always relate to their
terminal condition.......................................................................................................................10
QUESTION- ( 3.1 ).........................................................................................................................12
Describe the benefits to an individual of having as much control as possible over their end of
life care........................................................................................................................................12
QUESTION- ( 3.2 ).........................................................................................................................13
Explain the purpose of advance care planning in relation to end of life care.............................13
QUESTION- ( 3.3 ).........................................................................................................................14
Describe own role in supporting and recording decisions about advance care planning..........14
QUESTION- ( 3.4 ).........................................................................................................................16
Outline ethical and legal issues that may arise in relation to advance care planning.................16
QUESTION- ( 5.1 ).........................................................................................................................17
Explain the importance of recording significant conversations during end of life care.............17
QUESTION- ( 5.2 ).........................................................................................................................19
Explain factors that influence who should give significant news to an individual or key people.
.....................................................................................................................................................19
QUESTION- ( 5.3 ).........................................................................................................................20
Describe conflicts and legal or ethical issues that may arise in relation to death, dying or end of
life care........................................................................................................................................20
QUESTION- ( 5.4 ).........................................................................................................................21
Analyse ways to address such conflicts......................................................................................21
QUESTION- ( 6.1 ).........................................................................................................................23
Describe the role of support organisations and specialist services that may contribute to end of
life care........................................................................................................................................23
QUESTION- ( 6.2 ).........................................................................................................................24
Analyse the role and value of an advocate in relation to end of life care...................................24
QUESTION- ( 6.3 ).........................................................................................................................25
Explain how to establish when an advocate may be beneficial..................................................25
QUESTION- ( 6.4 ).........................................................................................................................27
Explain why support for spiritual needs may be especially important at the end of life............27
QUESTION- ( 6.5 ).........................................................................................................................28
Describe a range of sources of support to address spiritual needs..............................................28
QUESTION- ( 7.1 ).........................................................................................................................29
Identify when support would best be offered by other members of the team.............................29

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QUESTION- ( 9.1 ).........................................................................................................................30
Explain why it is important to know about an individual’s wishes for their after-death care....30
QUESTION- ( 9.3 ).........................................................................................................................32
Describe ways to support key people immediately following an individual’s death..................32
QUESTION- ( 10.1 ).......................................................................................................................33
Identify ways to manage own feelings in relation to an individual’s dying or death.................33

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QUESTION- ( 1.1 )
Outline legal requirements and agreed ways of working designed to
protect the rights of individuals in end of life care.
ANSWER
Legal and agreed measures of working involves policies and methods and it can be related
to the following terms:
 Guests
 Adults which are unsafe are required to be protected.
 Proceeding with dead people.
 Managing private properties of people.
 Protecting data and maintaining confidentiality of the data.
 Information should be distributed among everyone.
 Equality should be maintained. There should not be discrimination among people.
When any person is about to die in nearly 12 months at that time The General Medical
Council understands individual (Aoun and et.al., 2015).
The Data Protection Act 1998
The above stated law came into existence in March 2000.It provides rights to the individual
to ingress their data through the providers of adult social care. There are eight principles in
the Act that shows how any information and data are recorded. It also shows how to
maintain the confidentiality of data.
The Freedom of Information Act 2000
This Act give rights to access information of all the types that have been recorded and
have maintained confidentiality.

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Continue on a separate page if necessary...
QUESTION- ( 1.2 )
Explain how legislation designed to protect the rights of individuals in
end of life care applies to own job role.
ANSWER
The laws are constructed in such a way by giving support to the family of deceased people
and helping them financially (Bates and et.al., 2017).According to the Act , if any of the
public supremacy has broken your rights, you are capable enough to take necessary steps
under the Act.
The Equality Act 2010
It emphasize on fairly making of decisions and strategies including those people which are
concerned with end of life care.
The Human Right Act 1998
The law was constructed and came into existence on November 1998. The law was
Arabically designed to show human rights. There were several rights under the Act . Act
contains :
 right for death penalty
 right to life
 right to praise for individual's private life .
 Right to consider family life.
 Right to opt any religion.
The law is applicable to the following:
 how to obey local policies and national policies.
 How to provide support to yourself.
 How to avail services to yourself.
 to make available information about services available to the families of individual .

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Continue on a separate page if necessary...
QUESTION- ( 2.1 )
Outline key points of theories about the emotional and psychological
processes that individuals and key people may experience.
ANSWER
There are several theories for emotional as well as psychological processes that people
are experiencing . The theories are useful to support and help people that are supporting
end of life care to obtain superior perception into feelings and belief (Cherry and et.al.,
2016).

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Let's take an example of Kubler-Ross Theory. According to the theory,people go through
various steps with the death approachable person will experience something different with
daleth approach and that would be distinct from others. Therefore, everybody will not face
the same stages that are defined in this theory.
 Denial and Isolation: Person has a feeling of loneliness and sometimes it may feel
shocked due to circumstances.
 Anger : In this person have sense of anger and throws out anger on themselves or
people living around them.
 Bargaining: Its like negotiation. Person asks questions like “ if it is not then “ . eg, if I
do not complete my work on time, will allow to enter in class?
 Depression: feeling of sorrow.
 Acceptance: sense of endurance.

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Continue on a separate page if necessary...
QUESTION- ( 2.2 )
Explain how the beliefs, religion and culture of individuals and key
people influence end of life care.
ANSWER
Single person or their important members such as friends and family and few others that
are essential for the living of an individual, everybody has distinct requirements and
choices which are according to their culture they live in and also relies on their religion and
beliefs. All such factors impacts end of life care (Corrigan, 2014 ).
It is important to respect beliefs and religion and culture of the individuals and their
important people to safeguard that the protection and treatment given to them are noble
and are according to their desire. By doing such it might give strength and ease to those
people who are involved in it. Culture influences a person in a way it has taken food and
clothes that are worn during ceremonies after death process. Some of the cultures
celebrate life before death and other fear death. Culture and beliefs greatly influences the
factors that whom you are and want to be with during last stage or want to die at your
home place.

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Continue on a separate page if necessary...
QUESTION- ( 2.3 )
Explain why key people may have a distinctive role in an individual’s
end of life
Care.
ANSWER
End of life care involves variety of people that may include family members and friends that
provides emotional and social support (Aoun and at.al, 2015). There is range of people that
are included such as consultant of hospital that provides details about the diagnosis and
the available treatments. Care takers present there provides physical care all day and all
night.
Emotional needs are fulfilled by their family members and friends. These may also be
accomplished by someone they rely on. Their could be advocate or some representative to
which they can express their thoughts and share feelings.
Representatives of social groups plays an important role to ensure social needs are fulfilled
of an individual by engaging them into other environment outside to their present
surroundings .
Religious groups are helpful in providing spiritual support to the individual of their religion
and culture.
Support might be required to the individual at the end stage therefore, key people should
be aware of all types of people that can provide support to their individual.

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Continue on a separate page if necessary...
QUESTION- ( 2.4 )
Explain why support for an individual’s health and well-being may not
always relate to their terminal condition.
ANSWER
As we know the quality of life depends on the individuals distinct requirements and
choices. That is why support for an individual's health is not always related to their terminal
condition ( Ferrell and et.al., 2014). An individual may be concerned about the financial
factors for housing and may requires financial support to ensure secure housing.
Individual may ask for help to be involved into activities that are beneficial. Activities could
be charity or hobby classes which will make them to meet new people and interact with

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others .There are many situations in life where due to some circumstances issue arises
between family members or into any relationship, thereby individual may ask support to
provide help in solving issues with them.
At the end of life people may require to fulfil their remaining wishes and may ask financial
support to provide support to make it come true. There could be some areas which might
ned support that may include health needs, or mental needs etc.
Continue on a separate page if necessary...

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QUESTION- ( 3.1 )
Describe the benefits to an individual of having as much control as
possible over their end of life care.
ANSWER
Benefits are associated with controlling end of life care . Approaches that re person-
centred works on it. There are several choices that an individual can made when he has
control over it (Gangadharan and et.al., 2016).
 Choice of place for dying whether hospital or home.
 Choice of Personal beliefs should be made with prayers or hymns etc.
 what kind of treatment like to have.
 To die among family members or want to die alone.
 How to fulfil religious needs through visiting temples or by wearing religious
ornament.
 To whom you want to talk and see before dying either family members or friends or
some other people.
 How to fulfil cultural needs that is either care provided by female carer or male
carer.
 What kind of support is accessible or what they want to use.
According to the 'End of life care strategy' a good death is:
 individual being treated with respect as well dignity is not lost.
 Their should not be any symptoms of pain .
 To be into known surroundings.