Technology Annotated Bibliography

Running head: ANNOTATED BIBLIOGRAPHY
ANNOTATED BIBLIOGRAPHY
Name of the student:
Name of the university:
Author note:

1ANNOTATED BIBLIOGRAPHY
Introduction:
Cystic fibrosis has emerged as a hereditary disease which affects the lungs and digestive
system and reduce the life span. The case study involves the adolescent Emily, a 15 years old girl
who has been diagnosed with pancreatic insufficiency but does not suffer from cystic fibrosis
related diabetes mellitus. For better management of the situation, technology is require to use
that can facilitate person centred care. The purpose of the assignment is to provide an annotated
bibliography on safe use of technology to facilitate person centred nursing care across the
lifespan within the sub-acute and community settings based on a case study.
Annotation:
Aldiss, S., Baggott, C., Gibson, F., Mobbs, S., & Taylor, R. M. (2015). A critical review of
the use of technology to provide psychosocial support for children and young people
with long-term conditions. Journal of pediatric nursing, 30(1), 87-101.
The purpose of the research is to provide a critical review of the use of technology in
providing the psychosocial support to the children as well as young people with long-term
conditions like diabetes and cystic fibrosis. The researchers conducted a systematic review for
obtaining relevant journals that evaluated the use of technology to support the children and
adolescent with long term condition using electronic data bases. The researchers incorporated
total 26 articles that matched the inclusion criteria and conducted data analysis for obtaining
relevant results. The researchers suggested that the use of technology facilitate the knowledge
associated with the chronic disease like cystic fibrosis and improve psychosocial behaviours of
the children. It provide an opportunity to the patients of cystic fibrosis to connect with peers and
increase psychosocial behaviour. It also reduce the possibility to visiting health care sector

2ANNOTATED BIBLIOGRAPHY
physically as the technology resolve majority of the concerns. The limitation of the study is lack
of comprehensive methodological quality of current evidence as well as lack of involvement of
users in product development. This paper is relevant to the research since it will provide a
direction to health professionals to gain understanding of the safe use of technology and provide
person centred care to Emily and reduce anxiety of her mother.
Barbosa, I. D. A., & Silva, M. J. P. D. (2017). Nursing care by telehealth: what is the
influence of distance on communication?. Revista brasileira de enfermagem, 70(5),
928-934.
The purpose of the research is to provide a critical review of the Nursing care by using
Tele-health and influence of distance of the communication. The researchers conducted
qualitative research with the focus group of with seven nurses working in Tele-health where semi
structured interview to gather the information. A questionnaire with open questions was applied
followed by analysis of the dialogues was conducted, in order to focus on thematic analysis so
that relevant theme can be developed. The result of the study suggested that four themes were
identified from the semi structured interview such as understanding the significance of
communication; communication using technology, the interpersonal relationship interrupting
with communication; and Learning the communication process. Each of the themes suggested
that Tele-health facilitated professional practice but it failed to facilitate the communication
amongst nursing professionals. It affected the communication as many health professionals and
parents of the patients are unaware of use of technology. The limitation of the study is that it is
not primary study which reduced the reliability of the research. Moreover, as researchers
conducted interview, the personal biases are present which impacted the external validity. This

3ANNOTATED BIBLIOGRAPHY
paper is relevant to the research since it will provide a direction to health professionals to use
technology at certain level in order to facilitate the care process for Emily.
Baumann, L. A., Baker, J., & Elshaug, A. G. (2018). The impact of electronic health record
systems on clinical documentation times: A systematic review. Health Policy, 122(8),
827-836.
The purpose of the research is to provide a critical review of the impact of technology
like electronic health record on clinical documentation time. The researchers conducted a
systematic review of studies that examined the effectiveness of the electronic health record in
supporting the safe health care practice by reducing clinical documentation time. CINAHL,
Embase, PsycINFO as well as PubMed databases were used for optimizing search and inclusion
criteria was developed to obtain relevant articles. The researchers incorporated total 28 articles
that matched the inclusion criteria and conducted data analysis for obtaining relevant results. The
result of the study suggested that initial implement of electronic health record increased the
documentation time but familiarity with electronic health record reduce the documentation time
and facilitate the patient centred care of the nurses within the community health care setting. It
increase the ability to the nursing professionals with comply with the person centred care by
using advance technology. The limitation of the study is that is secondary study with selection
biases and lack of follow up after certain period. This paper is relevant to the research since it
will provide a direction to health professionals to provide person centred care using advanced
technology.
Bowtell, E. C., Aroni, R., Green, J., & Sawyer, S. M. (2018). Contrasting disclosure
practices and experiences of school support for Australian adolescents with cancer,

4ANNOTATED BIBLIOGRAPHY
cystic fibrosis and anorexia nervosa: parent perspectives. International Journal of
Inclusive Education, 22(2), 176-191.
The purpose of the research is to compare the disclosure practices as well as experiences
of the school support for the Australian adolescent patients suffering from cancer, cystic fibrosis
and anorexia nervosa. The researchers conducted a qualitative study in order to explore
stakeholders’ experiences. In-depth interviews were conducted as a data collection method where
focus group was 38 parents of upper secondary school students suffering from cystic fibrosis,
anorexia nervosa or cancer. The researchers conducted data analysis through using a modified
grounded theory approach in order to identify themes. The themes will reflect the experience of
the parents and school practices for supporting the adolescents with chronic health conditions.
The comparison of data suggested that while all parents consider the informed educator as the
most suitable means of providing tailored based support, the parental experience differs as the
major cohort reported the diversity between disclosure behaviour and school based support. The
limitation of the study is that it is not primary study which reduced the reliability of the research
and as researchers conducted interview, the personal biases present that impact the external
validity. This paper is relevant to the research since it will provide a guide to health
professionals to suggest Emily and her mother to seek the school support through person centred
care.
Eggerth, A., Hayn, D., & Schreier, G. (2019). Medication management needs information
and communications technology‐based approaches, including telehealth and
artificial intelligence. British Journal of Clinical Pharmacology

5ANNOTATED BIBLIOGRAPHY
The purpose of the research is conduct a narrative review on the role of communication
technology and information technology in medication management. It focuses on three major
aspects such as latest technologies, current applications, as well as patient related issues. The
researchers conducted a narrative review on the role of Tele-health and artificial intelligence.
The result of the study suggested that information and communications technology offers new
perceptions for enlightening medications adherence. These technological services assist health
care providers to implement closed‐loop healthcare paradigms and facilitate collaborative care
networks by connecting all relevant stakeholders relevant so that overall medication therapy can
be optimized. The communication technology like electronic health records enable data driven
decision making which eliminate the possibility of the errors. In this context, data sources are
required to make available for making comprehensive dataset and create the basis for data‐
driven methods. The limitation of the research is that no comprehensive research design was
adopted by the researchers which reduced the reliability of the research and validity of the
research. This paper is relevant to the research since it will provide a guide health professionals
to provide person centred care to Emily using advance technology.
Gur, M., Nir, V., Teleshov, A., Bar-Yoseph, R., Manor, E., Diab, G., & Bentur, L. (2017).
The use of telehealth (text messaging and video communications) in patients with
cystic fibrosis: A pilot study. Journal of telemedicine and telecare, 23(4), 489-493.
The purpose of the research is to assess the usage of Tele-health (text messaging and
video communications) amongst patients suffering from chronic disease like cystic fibrosis. The
researchers assessed feasibility of using Tele-health for improving communication process. The
researchers conducted pilot study included CF patients older than eight years of age where they
were assigned to two groups (one with the intervention and one group without intervention). The

6ANNOTATED BIBLIOGRAPHY
intervention group received Skype-based online video chats as well as WhatsApp messages from
the health care professionals. CF questionnaires and CFQ-R scores were used in order to
measure the knowledge as well as satisfaction of the patient. The survey was also conducted for
the feasibility of the Tele-health in this context. The result of the suggested that Tele-health-
based approach by utilizing Skype video chats as well as WhatsApp messages were proved to be
feasible and acceptable. However, the use of these technology may breach the confidentiality of
the patients and subject patients with cystic fibrosis to potential harm. The limitation of the
study is that it is small pilot study with limited sample size that may impact the reliability of the
research. This paper is relevant to the research since it will provide nursing professionals to
comply with the safe use of technology according nursing standards to provide care to Emily
without breaching confidentiality.
Helms, S. W., Christon, L. M., Dellon, E. P., & Prinstein, M. J. (2017). Patient and provider
perspectives on communication about body image with adolescents and young
adults with cystic fibrosis. Journal of pediatric psychology, 42(9), 1040-1050.
The purpose of the research is evaluate the patient and provider perspective on the
communicating regarding the body image with adolescents and young adults suffering from
cystic fibrosis. The researchers conducted mixed method study for examining the perspective
of adolescents and young adults on the body image. The researchers conducted interviews and
questionnaire on the 28 health care provider and 20 adolescents and young adults. The
frequency was calculated for the patients and provider responses to the close ended questions
using descriptive analysis method and qualitative data analysis was conducted for the assessing
interview. The result of the study suggested that patients and providers both consider body

7ANNOTATED BIBLIOGRAPHY
image as an important issue that are required address distinctively. The patients preferred to
discuss the concept distinctively and separated from the professionals compared to health care
providers. In this health care provider must reduce the barriers associated with effective
communication about this important topic. The limitation of the study is that the researchers
represented a preliminary examinations of the patients within limited sample size. Another
limitation is responses were not examined separately by gender, provider discipline or other
demographic factors which impacted the internal validity of the research. This paper is relevant
to the research since it will provide a roadmap to support Emily and effectively communicating
with her regarding body image.
Jessup, M., Smyth, W., Abernethy, G., Shields, L., Douglas, T., & AREST‐CF. (2018).
Family‐centred care for families living with cystic fibrosis in a rural setting: A
qualitative study. Journal of clinical nursing, 27(3-4), e590-e599.
The purpose of the research is to explore the experience of parents of children with
cystic fibrosis living in the rural area regarding family centred care and to understand the impact
of distances on their care. The researchers conducted a phenomenological design using a Van
Manen (1990) approach. After data collection, data was analysed for designed themes associated
with the therapy. The result of the study suggested that family centred care is considered as the
use for intervention for improving adherence to the medication and family centred care using the
technology can reduce the issues associated with the distance that hinder care process. They
suggested that a collaborative approach to their child's care is effective to support the
management of cystic fibrosis and it provide a way of living a purposeful life. The limitation of
the study is that it is secondary study which reduced the reliability of the research and as

8ANNOTATED BIBLIOGRAPHY
researchers conducted interview, the personal biases present. This paper is relevant to the
research since it will provide a direction to health professionals to use technology for mitigating
the issues with transportation and provide Emily with person centred care.
Kirk, S., & Milnes, L. (2016). An exploration of how young people and parents use online
support in the context of living with cystic fibrosis. Health Expectations, 19(2), 309-
321
The purpose of research is to explore online peer support is utilized by the parents
and young individuals with cystic fibrosis. The researchers conducted an ethnographic study
based on the downloading and discussion post of the patients. The posting till 4 months periods
were included with 152 discussion thread. The researchers incorporated total 279 individuals
including young patients with cystic fibrosis and parents of the patients based on charity website
focused on cystic fibrosis. The result of the research suggested that the online setting enable a
physically disconnected patients with cystic fibrosis to create and connect a safe place for other
patients with the similar experience. The online website enable them to share common
experience of cystic fibrosis and receive support from the health care providers regarding the
cystic fibrosis and how to live a purposeful life with cystic fibrosis. It also enable parents to
exchange advice regarding use of specific therapies and strategies to maintain their child’s
health. The limitation of the study is the absence of the background and demographic
information of patients which impacted the credibility of the obtained result. This paper is
relevant to the research since it will provide a guide to health professionals for reducing anxiety
of her mother and restore relationship with the health care professionals.
Lang, R. L., Wilson, C., Stockton, K., Russell, T., & Johnston, L. M. (2019). CyFiT
telehealth: protocol for a randomised controlled trial of an online outpatient

9ANNOTATED BIBLIOGRAPHY
physiotherapy service for children with cystic fibrosis. BMC pulmonary
medicine, 19(1), 21.
The purpose of the research is to examine the usefulness of a multimodal telehealth-
based outpatient physiotherapy facility and evaluate effect on quality of life. The researchers
conducted prospective, parallel and single centre randomised, controlled, non-inferiority trial
for recruiting 110 teenagers with cystic fibrosis aged between 8 to 18 years. The six month
follow up were conducted where quality of life, participation in daily activity of living, capacity
of the exercise and perception of care. The data was assessed using Children’s Assessment of
Participation and Enjoyment (CAPE), Cystic Fibrosis Questionnaire-Revised, Measure of
Process of Care (MPOC-20) questionnaire and Modified Shuttle Test-25 (MST25). The
physiological measures were also incorporated in this context such as spirometer, height and
body weight. The result of the study suggested that multi-modal tele-health services increase
patient options for accessing the care process and improve the quality of life. Furthermore, it
enable health care professionals to increase the quality of care by minimising infection control
risks to patients without negotiating their health outcomes. The limitations of the study is the
limited evidence regarding success of multimodal Tele-health-based outpatient physiotherapy
facility. This paper is relevant to the research since it will provide health professionals to
provide multimodal Tele-health-based outpatient physiotherapy to Emily in order to comply with
person centred care.
Speyer, R., Denman, D., Wilkes-Gillan, S., Chen, Y. W., Bogaardt, H., Kim, J. H., ... &
Cordier, R. (2018). Effects of telehealth by allied health professionals and nurses in

10ANNOTATED BIBLIOGRAPHY
rural and remote areas: a systematic review and meta-analysis. Journal of
rehabilitation medicine, 50(3), 225-235.
The purpose of the research is to examine usefulness of tele-health by allied health
professionals and nurses in rural and remote areas for supporting patients suffering from cystic
fibrosis. The researchers conducted a systematic review and meta-analysis of studies that
examined the effectiveness of the tele-health in supporting the safe health care practice for
providing care to the patients with chronic condition living in the rural and remote area.
CINAHL, Embase, PsycINFO as well as PubMed databases were used for optimizing search
and inclusion criteria was developed to obtain relevant articles. The strength of the study is
that QualSyst critical appraisal tool was used to assess the relevancy and quality of the result to
the current context. After assessment, a total of 43 studies were incorporated that met the
inclusion criteria. The researchers suggested that Tele-health services is proved to be as
effective as face-to-face care and it encourages health care professionals to comply with Tele-
health services so that optimized care can be provided in terms of healthcare access, time as
well as cost savings. The limitation of the study include limited data of compliance with the
Tele-health and secondary study with selection bias. This paper is relevant to the research since
it will provide nursing professionals to comply with the Tele-health and assess nursing practice
while providing care to Emily.
Wood, J., Mulrennan, S., Hill, K., Cecins, N., Morey, S., & Jenkins, S. (2017). Telehealth
clinics increase access to care for adults with cystic fibrosis living in rural and
remote Western Australia. Journal of telemedicine and telecare, 23(7), 673-679.

11ANNOTATED BIBLIOGRAPHY
The researchers emphasized on the effectiveness of Tele-health clinics in increasing
access to care for adolescents and adults suffering cystic fibrosis living in rural and remote area
of Western Australia. The researchers conducted video conference of 12 months period for
increasing the access to the care for adolescents and adults suffering cystic fibrosis and assessed
the satisfactions as well as adherence of the patients. They were provided with opportunities to
attend the clinical within this period. The findings of the research suggested that in 21
participants, the clinic visits increased from 46 to 100 within 12 months. 66 tele-health clinic
out of 100 tele-health clinic provided care to the patients with cystic fibrosis. The researchers
also suggested that it reduced hospital admission, increased detection as well as treatment of
exacerbation amongst patients. The Tele-health clinic increased satisfaction of the patients with
cystic fibrosis by providing advice regarding specific therapies and strategies to maintain the
health. The limitation of the study is the large sample size who accessed the clinic. This paper is
relevant to the research since it will provide a guide to health professionals to provide person
centred care within the community setting without physically presented in the hospital.

12ANNOTATED BIBLIOGRAPHY
Bibliography:
Aldiss, S., Baggott, C., Gibson, F., Mobbs, S., & Taylor, R. M. (2015). A critical review of the
use of technology to provide psychosocial support for children and young people with
long-term conditions. Journal of pediatric nursing, 30(1), 87-101.
Barbosa, I. D. A., & Silva, M. J. P. D. (2017). Nursing care by telehealth: what is the influence
of distance on communication?. Revista brasileira de enfermagem, 70(5), 928-934.
Baumann, L. A., Baker, J., & Elshaug, A. G. (2018). The impact of electronic health record
systems on clinical documentation times: A systematic review. Health Policy, 122(8),
827-836.
Bowtell, E. C., Aroni, R., Green, J., & Sawyer, S. M. (2018). Contrasting disclosure practices
and experiences of school support for Australian adolescents with cancer, cystic fibrosis
and anorexia nervosa: parent perspectives. International Journal of Inclusive
Education, 22(2), 176-191.
Eggerth, A., Hayn, D., & Schreier, G. (2019). Medication management needs information and
communications technology‐based approaches, including telehealth and artificial
intelligence. British Journal of Clinical Pharmacology.
Gur, M., Nir, V., Teleshov, A., Bar-Yoseph, R., Manor, E., Diab, G., & Bentur, L. (2017). The
use of telehealth (text messaging and video communications) in patients with cystic
fibrosis: A pilot study. Journal of telemedicine and telecare, 23(4), 489-493.
Helms, S. W., Christon, L. M., Dellon, E. P., & Prinstein, M. J. (2017). Patient and provider
perspectives on communication about body image with adolescents and young adults
with cystic fibrosis. Journal of pediatric psychology, 42(9), 1040-1050.

13ANNOTATED BIBLIOGRAPHY
Jessup, M., Smyth, W., Abernethy, G., Shields, L., Douglas, T., & AREST‐CF. (2018). Family‐
centred care for families living with cystic fibrosis in a rural setting: A qualitative
study. Journal of clinical nursing, 27(3-4), e590-e599.
Kirk, S., & Milnes, L. (2016). An exploration of how young people and parents use online
support in the context of living with cystic fibrosis. Health Expectations, 19(2), 309-321.
Lang, R. L., Wilson, C., Stockton, K., Russell, T., & Johnston, L. M. (2019). CyFiT telehealth:
protocol for a randomised controlled trial of an online outpatient physiotherapy service
for children with cystic fibrosis. BMC pulmonary medicine, 19(1), 21.
Speyer, R., Denman, D., Wilkes-Gillan, S., Chen, Y. W., Bogaardt, H., Kim, J. H., & Cordier,
R. (2018). Effects of telehealth by allied health professionals and nurses in rural and
remote areas: a systematic review and meta-analysis. Journal of rehabilitation
medicine, 50(3), 225-235.
Wood, J., Mulrennan, S., Hill, K., Cecins, N., Morey, S., & Jenkins, S. (2017). Telehealth
clinics increase access to care for adults with cystic fibrosis living in rural and remote
Western Australia. Journal of telemedicine and telecare, 23(7), 673-679.