Pain Management in Dementia Patients

This assignment focuses on pain management strategies specifically tailored for patients living with dementia. It highlights the crucial role of nurses in accurately assessing and managing pain through appropriate tools and individualized care plans. The text emphasizes the importance of ongoing training for nurses to enhance their skills and knowledge in recognizing and addressing pain in dementia patients. Additionally, it explores the value of collaboration between nurses, pain specialists, family members, and caregivers in providing holistic pain management.

What factors affect the effective management of pain for individuals living with
dementia in an acute hospital setting?
Section 1
Introduction
It has been well documented that pain affects one in three elderly adults in community. It is
a common problem that pain is unrecognized and poorly managed in adult patients with dementia,
who are then admitted to acute hospital wards (Horgas and Tsai, 1998; Corbett et al., 2012 and
Lautenbacher, 2014). Research findings show that some reasons for undiagnosed and untreated pain
in patients with dementia may be that they are unable to understand pain in a meaningful way. Also,
they have been found to be unable in verbally expressing that they are in pain due to their cognitive
impairment resulting from the decline of their brain functioning (Schofield, 2014). Moreover, some
other contributors in ineffective pain management strategies on this particular population that
includes healthcare professionals’ possessing inadequate skills and knowledge of pain recognition.
Moreover, they are also unable to assess and manage the shortcomings from organizational support,
education provision, training and facilitation for care staff (Achterberg et al., 2013).
This often hampers the quality of care, treatment intervention and pain management that are
being received by the patients, suggesting that there are some barriers that nurses may encounter
within this field. This paper will look at some evidence from literature about pain recognition,
assessment and management and how they have impacted on patient-centeredness care. Therefore,
nurses could utilize some evidence from this research for adopting some best practices to overcome
any such identified barriers. This is basically to improve the quality of care to this group of patients
during their stay in the hospital. Seven research articles will be used for the purpose of analysing the
findings that will be discussed to implement in the undertaken nursing practice as an evidence to
improve the quality of care that are being received by this particular group of patients. A
conclusion, limitation and recommendation will also be presented to clearly enlighten the acquired
findings of this report.
Aims and objectives
This paper firstly aims to explore and identify the method of pain recognition, its assessment
and management to be carried out for eradicating the issues faced by the patients with dementia in
nursing practice in an acute hospital care setting. Secondly, it will be examining the evidence to
develop decision support interventions, which is to assist the nurses in their practice of effectively

recognising pain in dementia patients. Also, it is expected to assess and improve the management of
pain for such population in acute care settings of the hospital.
Background
Dementia have significant effects on not only the person’s own self who live with
dementia but also on their families, carers and other significant associations, personally,
emotionally, economically and socially (Madsen and Birkelund, 2012). Approximately, 47 million
people all across the world are affected by dementia, from which, nearly 50% population have
regularly experienced some degree of pain. The nature of dementia can directly impact onto
individual’s memory, thinking, intelligence and daily activities (Kooten et al., 2015; World Health
Organization, 2017). In UK, there are more than 800,000 people living with dementia, where this
number is expected to increase by 1 million, by the end of 2025 (Parkin and Baker, 2016). The
rising prevalence of dementia will have a significant impact on the costs of health and social care.
The cost of providing care, treatment, research, education, training and support to people
with dementia, their families and carers is estimated to be £26 billion a year (Department of
Health, 2015). Hunt (2014) has stressed that further, 250,000 NHS staff would have received
training in dementia care to ensure that the patients are getting the best possible care. Despite of the
efforts that are being been made to help improving the services for people living with dementia by
the government, the quality of care that are being received by the patients with dementia in acute
care settings of hospital is still questioned by some authorities. Some recent evidence demonstrates
that the staff working in hospital acute care settings are lacking skills and knowledge to deliver care
to this population. It is with a special aspect of pain recognition, assessment and management (Surr
and Gates, 2017).
Dementia is a disease that is continually rising at a higher pace and whose symptoms are
likely to worsen over time, in which the patients are likely to have a gradual decline in their
cognitive function (Prince and Jackson, 2009 and Royal College of Nursing, 2017). Individuals
living with dementia may suffer from various symptoms with a most common symptom of memory
loss (Holme, 2012). Others include difficulties with reasoning, expressing themselves and
communicating and socialising with others (Wang et al., 2013). Due to such reduced capability of a
person in their overall skills and functioning to take part in daily life activities, they find it
challenging to perform their daily chores that involve preparing a cup of tea or coffee, cooking,
washing, bathing, getting dressed up, shopping and cleaning, etc., (Potkins et al., 2003). People
living with dementia could exhibit some common psychological symptoms of depression, anxiety,
hallucinations and delusions, etc., (Holmes and Amin, 2016). Carers and family members who look

after them often suffers from certain behavioural and psychological symptoms associated with
dementia that causes physical and emotional strain and frustration in them. Also, they find it time
consuming to provide care to their loved ones suffering from dementia that leads to reduce their
overall working hours (Ferri et al., 2004).
Most of these symptoms are related to pain that is being experienced by people and they are
unable to clearly express it to their carers or family members as their care giver and family
members are not much educated in pain recognition (Monroe et al., 2015). Evidence suggests that
the carers and family members may not be able to cope with such behaviours and get exhausted.
This in turn results in the admittance of people with dementia to acute care hospitals (Vugt et al.,
2005 and Huntley et al., 2017). The quality of care that is being received by these patients in acute
care hospitals has been a vital area of concern (Alzheimer’s Society, 2009). Health care outcomes
for this population are often inferior on comparing with their counter parts who are having an intact
cognitive endurance (Royal College of Psychiatrists, 2011). Griffiths et al. (2014) have argued that
nurses have inadequate sessions of on-going training, insufficient resources, time constrain, over
workload and lack of confidence to take care of the older individuals living with dementia. It is
particularly to those who are exhibiting agitated and aggressive behaviour and have communication
deficit. In their study, there exists a high staff turnover due to low satisfaction from their job role
where the nursing staff reports their reluctant emotional and behavioural response where looking
after these patients is mostly frustrating, stressful and empathetic (Griffiths et al., 2014).
In UK hospitals, it is common that in acute medicinal wards, there exists up to 45% of
occupied beds by patients aged over 65 years with various degree of dementia (Sampson et al.
2009; Tadros, 2012; Royal College of Nursing, 2013). A quarter of these patients with severe
cognitive impairment are having a high risk of dying whilst being hospitalised (Sampson et al.
2009). An early study shows that 16% of the patients with dementia have experienced pain while
being on rest and 57% expressed pain while making movements on at least an occasion. It is with
16% of patients suffering from dementia who have reported an ongoing pain during their stay at
hospital (Sampson et al., 2015). Pain is commonly undetected and undertreated in people with
dementia due to poor pain recognition, assessment and management ability. Patients often find it
difficult to express their pain and present it in a way that people who are non-dementia fails to get
it clearly and misinterpret it as language deficits, memory problems and a growing state of
dementia in patients (Timmons et al., 2016).
Lichtner et al. (2016) have highlighted that patients with dementia who are admitted to
hospital often exhibit some symptoms of agitation, disorientation, aggression and anxiety, etc., by
together screaming and shouting. This may be due to the fact that patients are in an unfamiliar

environment which is often distressing for them, such as noises, limited space and lighting,
unfamiliar staff members of healthcare (Dowding et al., 2015). Further, evidences have suggested
some neuropsychiatric symptoms like for instance, aggression and anxiety that are possibly the
ways in which the patients try to express their pain. Although, it is often misinterpreted by the
nurses and they tend to manage it inadequately, in the acute care hospital settings (Sampson et al.,
2015 and Dowding et al., 2016). Managing these symptoms and behaviour is particularly
challenging for the nursing staff and results in sub-optimal care. Patients’ challenging behaviour
and symptoms shows that the patients with dementia have inappropriate prescription of
antipsychotic medications (Ballard et al., 2011).
An early study by Mukadam and Sampson (2011) have presented that a large proportion of
the patients with these symptoms are more likely to have an increased length of hospital
admittance with a reduced cognitive function and discharge. Few sources have also suggested that
this particular group of patients are more likely to have an increased risk of mortality during their
hospital stay and post discharge as compared to their counterparts whose cognition is unimpaired
(Sampson et al, 2009; Reynish et al., 2017). This suggests that the nurses are urged to find out and
utilise most recent evidence to improve their nursing practices by considering to recognise, assess
and manage patients who are indicating pain through such behaviour. This is basically to manage
it effectively by reducing unnecessary medical treatment, shorten the period of hospitalisation by
improving the quality of care to acquire optimised outcomes and make an effective use of
healthcare resources.
Challenges for the nursing staff to recognise, assess and manage the pain experience of
dementia patients are significant. This is mainly due to the nature of dementia that makes it
difficult for the patients to memorise or recall the experience of pain where they are also not able
to accurately verbalise and identify the occurrence of pain. It may become a problem when the
staff who are assessing the patients’ pain statutes as the patient have broken down the language
and are unable to describe their pain clearly and accurately (Manias, 2012). It therefore increases
the risk of those patients whose pain is neither detected nor assessed adequately and ineffectively
managed (Sampson et al., 2015). An early study by Leong and Nuo (2007) demonstrates that
some dementia patients may express to staff when asked about any occasional pain.
However, the experience of occasional pain is mostly misinterpreted by the patient itself
when they are unable to recall the last episode of pain, the type and severity of pain due to their
short-term memory. Moreover, some signs of pain that patients with dementia can be
misunderstood for involves an unexpected way of exhibiting physical and emotional withdraw
and they may quietly sit still and shows no willingness to engage in daily activities (Morris and

Morris, 2010). This suggests that it could be challenging for the staff to recognise whether the
patient is in pain or not. When nursing staff sees a patient seems to be settled by being quiet, they
assume that the patient has no such complaint of pain and thus do not provide any prescribed
medication for pain.

Section 2
Methodology
A systematic search of the relevant literature was carried out in the CINAHL, PubMed (UK)
and ScienceDirect. The search terms include pain recognition, pain assessment, pain management,
people with dementia and hospital acute setting. Search was conducted for the period between 2010
and September 2017. Zander et.al., (2016) argued that healthcare practice and policies are changing
and involving over time. Oliver et.al., (2014) agreed that effective treatment, management and
positive healthcare outcomes lie in the use of most contemporary research.
All citation was screened based on titles, keywords plus abstract and duplicates were
removed. In addition, the author searched some references list from some selected primary
researches conducted by the researchers and some relevant articles were identified. The full text
was reviewed to select any further articles that met the selection criteria. Moreover, the author
researched some textbooks in the Manchester Metropolitan University Library which provides some
useful information for the analysis.
Each article found was published between 2010 and 2017. The decision to only include
literature from the past 8 years was made on the following basis. The importance of pain
management in patient with dementia has been raised awareness at a national level because it has
been questioned about the quality of care delivered to patients with dementia in hospital caused by
poor pain management in this group of people. Moreover, the protocol used for pain management in
dementia patients is evolving over time. Studies were focused on patient with dementia who has
potential to discharge from the hospital rather than those are in the stage of the end life care with
pain management. Research articles include those from the primary research and written in English
language, but offer applicable findings for nurses to utilise for their current evidence-based practice,
but not related to medical model of pain management. Some case studies are not generalisable or
transferable those found by the search, so they are excluded in the review. Many articles were
rejected as they were unclear, ambiguous and irrelevant to the objectives of this research.
Search outcome
Overall, the search retrieved 338 potential articles. After screening titles and abstracts and
further removing duplicates, 49 articles out of 131 were then exported to Endnote for further
examination of their eligibility. Only seven research articles relevant to the research question were
selected as they met all the inclusion criteria. Four of the research studies were conducted in the
United Kingdom, 2 in Australia and one in U.S.A. The methods and some major findings of these 8
articles were then summarised in brief (Table 2) for the preparation for quality appraisal. The

Critical Appraisal Skills Programme (CASP) (2017) is used as a question framework to the
appraisal of the rigour of the primary research studies chosen.
Analysis
Most healthcare related research requires ethics approval from the relevant ethics committee
or authority (Hamer and Collinson, 2005). Seven papers selected have a section which provides
some details of approval of ethics, consent and permissions (Cowdell, 2010; Dowding et.al., 2015;
Fry et.al., 2016; Manias, 2012; Lichtner et.al., 2016; Lichtner et.al., 2015 and Sampson et.al., 2015).
Participants with capacity were given written consent and the ones who are lacking capacity,
however, written consent was obtained from their personal consultees; all procedure was co-
operated in line with Mental Capacity Act (2005); entire data were anonymised at the time of
collection ( Cowdell, 2010; Lichtner et.al., 2015; Lichtner, et.al., 2016 and Sampson et.al., 2015).
Kjellstrom et.al., (2010) highlight that research has potential impact on individual's lives, autonomy
and integrity. With some patients who may not have full comprehension to consent to the research,
the researcher remained attention to any verbal and non-verbal signs which may indicate that they
may wish to drop out and to minimise any risk of harm (Cowdell, 2010). The details of ethical
approval are an integral part of a quality of research and entails whether a researcher has necessary
skills and knowledge to reflect their duty on ethics regarding their research projects (Kjellstrom
et.al., 2010). It is the researchers’ responsibility and obligation to take the implications of the
proposed research projects into consideration for the participants, their carers, families and wider
communities as well as society (Burns and Grove, 2005). Ethical guideline outlines a set of
standards for carrying out research and within the practice, the researcher has moral as well as legal
obligation to protect the privacy and confidentiality of an individual and more importantly, to
protect individuals from the risk of harm (NMC, 2015; Social Research Association, 2003). Audio-
recording complied with local trust’s requirement and data were anonymised (Lichtner et.al., 2016;
Lichtner et.al., 2015; Dowding et.al., 2015; Cowdell, 2010). Sampson et.al., (2015) aligned that if
posted agreement forms were not returned, then participant’s data were destroyed. The senior
nursing executives of the trusts requested to assure privacy and confidentiality of collected
information would be maintained at all times; participants were given instructions to have
conversation withdrawn from research data during the observation (Manias, 2012). Cowdell (2010)
upholds that the data collected from the research are stored securely to protect confidentiality.
Gelling, (2011) argues that the researcher is required to provide the potential participants with
sufficient information to make their informed choices about willingness of participation of the
research. However, there is evidence suggests that some researchers may not be aware of some
potential risk linked to their research and fail to have action plan in place in the event if there is a

need to deal with potential issues (Gelling, 2011). In Cowdell’s study (2010), it is clearly stated
from the ethical point of view that if any poor practice has been identified, the researcher has
professional duty to report the observation and discussion with practice decision makers.
Methodologically sound qualitative research studies can inform nursing practice (Grbich,
1998; Munhall, 2012), as it allows researchers to gain in-depth insight of the thoughts and feelings
of the participants who engaged in the research (Watkins, 2012; Sutton and Austin, 2015). This is
because the researchers concentrated on collecting data from what participants articulate about their
experience, which can help them determine the issues in practice (Ingham-Broomfield, 2011). Each
paper has its aim and objectives, presenting concisely the issues that the researcher intent to
investigate and provide essentials for the development of a decision support so as to improve the
management of pain in individual with dementia in acute settings (Lichtner et.al., 2016; Sampson
et.al., 2015; Lichtner et.al., 2015; Dowding et.al., 2015; Fry et.al., 2016; Manias, 2012; Cowdell,
2010). Lichtner et.al. (2016) use multi-site exploratory case study and they collected data from
observation, patients’ medical and nursing records and semi-structured interviews with staff, family
and carers. Jamshed, (2014) highlights that observational methods are often a good measure to
supplement and support research findings. Using the framework of semi-structure interview, it can
help researchers to record, achieve, challenge and reinforce the practice and standards (Oakley,
1998). The authors initiated the semi-structure interview focusing on the participant’s perception of
pain and how it is recognised, managed and recorded (Lichtner et.al., 2015; Dowding et.al., 2015;
Fry et.al., 2016), meanwhile some observation was paid particular attention to some non-
participants’ interaction with patient with dementia, strive to identify information of pain
recognition and management in this group of people (Lichtner, et.al. 2016; Dowding et.al., 2015).
Moreover, the researchers observed as well as talked to the patients wherever possible about their
experience of pain and the care received; informal conversation carried out with staff, families and
visitors to collect information about decision making processes; each individual patient was
observed across various time of the day (Cowdell, 2010; Dowding et.al., 2015; Lichtner et.al.,
2015). Jamshed, (2014) convinces that semi-structure interviews provide researchers with concrete
details information from the respondents about the practice in the topic areas as they would have to
answer the questions designed in the given qualitative research and are broadly adapted in
healthcare research field. Knox and Burkard (2009) argue that the use of combination of
observation and interview increase the richness of the data, quality and strengthened
trustworthiness. It is, therefore, concluded that the findings from the researches can be transferred
to a larger population (Creswell and Clark, 2007; Miller and Fredericks, 2006; Morse, 2005).

The selected papers have clear information and discussion about inclusion criteria with
regard to sampling and the sample serves the purpose of their studies (Lichtner et.al., 2016;
Sampson et.al., 2015; Lichtner et.al., 2015; Dowding et.al., 2015; Fry et.al., 2016; Manias, 2012;
Cowdell, 2010). Sampled participants include patients who have record of clinical dementia
diagnosis, their carers and family members along with healthcare staff. Polit and Cheryl (2006)
argue that it is often impossible to include every relevant subject in a study and the main reason is,
for instance, related to the nature of the care setting and time. This is clearly supported by Fry et.al.
(2016) in their study. The researchers only took 80 A&E staff cross sites as a focused group and
interviewed their clinical experience to manage acute pain in patients with cognitive impairment
admitted to the emergency department (Fry et.al., 2016). This is due to the high pressure and
excessive workloads and recognised as a stressful working environment (Burbeck et.al., 2002;
Magid et.al., 2009; Johnston et.al., 2016). This can be factors influencing recruitment to research,
particularly in qualitative studies (Newington and Metcalfe, 2014). Lichtner et.al. (2016) point out
their sampled patients were those who were addressed and recognised pain by staff, explaining their
interests of research clearly was how nursing staff would recognise and assess pain in individuals
with dementia whilst hospitalisation. Moreover, the researchers interview staff, carer and managers
of the wards and specialists of relevant services (Lichtner et.al., 2016). However, Sampson et.al.
(2015) used a predicted prevalence of pain of 55% from a care home sample of individuals with
dementia to calculate the 250 participants with dementia in their study in an acute hospital. They
worked out that it would be 91% of their samples with presence of pain (Sampson et.al., 2015). The
participants are chosen subject to if they meet the inclusion criteria, for example, those with
delirium who had documented dementia diagnosis were considered eligible. Polit and Cheryl (2006)
recognise sample chosen would meet the criteria of the study. Husebo et.al., (2008) argue that the
behaviour of delirium has association with pain. Ingham-Broomfield, (2011) asserts that this sample
size can be considered to have characteristics compatible with the target population and it can be
representative. Moreover, the researchers have discussed the sample methods and analysed the data
collected from their sampled participants and found they could answer the questions of their interest
(Lichtner et.al. 2016; Sampson et.al., 2015; Lichtner et.al., 2015; Dowding et.al., 2015; Fry et.al.,
2016; Manias, 2012; Cowdell, 2010). This suggests that it can be recognised as an in-depth study
which can illuminate the questions of interest of the reader when critiquing sample size of a
research article (Patton, 2002), suggesting it is possible to validate and generalise the findings.
However, Polit and Beck (2010) convince that the most qualitative studies are not to
generalise as they are often weak for generalisation. This can be argued. This is because the
researchers have provided an adequate description of the context of their study (Norton and Bowers,
2001). Lichtner et.al.’s study (2015) involved four hospitals across various regions and aimed to

gain in-sight into a wide range of clinical areas where inpatients present with dementia. However,
they excluded those were not clinically recorded diagnose of dementia although healthcare staff
recognised that they have dementia signs and symptoms. The study by Manias, (2012) has total of
342 eligible patients and 34 nurses were selected, although approval was not attained from 57
patients for many reasons, including patient’s absence at the time of observation, unavailability of
patients’ next-of-kin or guardian, dropping out or an appropriate interpreter was not available for
interpreting the study. On the other hand, Cowdell, (2010) chose eight patients, 25 nurses, 33
nursing assistants who have work experience between 2 months and 22 years, particularly, paid
attention to the researcher’s own personal beliefs, experience and motivation that may have
influence on the process of the research and that was considered. Russell and Gregory, (2003)
highlight that the examination of cross sites will help readers to identify the adequacy of sample
size in qualitative studies and agree purposive samples would, typically, focus on a narrower range
of experiences. This may suggest that the conscious selection of data sources would meet criteria. In
addition, qualitative researchers judge the adequacy of a sample for the aim of the study by how
comprehensively and completely the research questions were answered (Patton, 2002). This could
provide the reader with a full-fledged review of the research study. Therefore, the reader would
consider that it’s relevant to his or her own clinical questions (Russell and Gregory, 2003). Clearly,
this is a good sample to base a generalisation from. It is, therefore, a possibility to validate and
generalise their findings and rule out across the country.

Section 3
Theme 1- Organisational context of pain management
Research studies by Lichtner et al. (2016), Sampson et al. (2015) and Fry et al. (2016)
demonstrates that the pain management in patients with dementia in acute hospital settings is
primarily driven by the organisational policies. It is a routine analgesic prescription of fixed dosage
which is given as per the requirement of the patient. Their study aims to examine the effectiveness
of this strategy as a suitable method for managing pain in this particular group of patients. They
argue that using regular analgesic medicine to manage pain is the most common pain treatment
methods (Lichtner et al., 2016; Sampson et al., 2015 and Fry et al., 2016).
Majority of dementia patients receive their regular dosage of pain medication by the nurses
who assists them in it (Lichtner, et al., 2016; Sampson et al., 2015). In Lichtner et al.’s (2016)
study, they find that certain pain medicine is administered to some patients with dementia despite of
being unable to express their experience of pain at the point of receiving the medication due to their
language discrepancy. Apart from that, nurses also consider giving analgia as a routinely prescribed
drugs to patients with dementia and refer it to be an effective management of pain for this particular
group of patients (Lichtner et al. (2015). Sampson et al. (2015) have emphasised in their study that
76% of patients were prescribed analgesic while getting admitted in the hospital and out of which,
70% have reported to intake a regular dosage of paracetamol.
This suggest a problematic consideration of administering pain relief drugs to patients
without assessing their pain levels at that point of time that in turn makes the routine administration
of analgesia to be a problematic agenda. The study undertaken by Fry et al. (2016) highlights that
some patients with dementia who are dependent on a regular dosage of analgesia from a very long
term period have higher tolerance of pain medication. This in on comparing to other regular dosages
that are not likely to relief their chronic pain. Moreover, giving pain relief medicines at the time
when a patient does not need it can lead the patient to resist the drugs over the time and can be
treated with a combination of various analgesic drugs.
This assists in avoiding a direct intake of stronger pain relief medicines (Lichtner et al.,
2016 and Fry et al., 2016). Lichtner et al. (2016) stress that some patients with dementia would not
be able to request additional pain relief drugs from the staff due to the nature of their dementia.
Therefore, the PRN pain relief, despite of being considered as a vital part of pain management
process, could not be used effectively by this population. Some neurophsychiatric symptoms for
example aggression and anxiety which has association with pain are poorly managed by routine
pain management measures and misinterpreted by the nursing staff (Sampson et al., 2015; Closs et

al., 2016). This leads to an inadequate frequency of analgesic dose for the patients suffering from
chronic pain as a resultant aspect of unmanaged pain for this group of patients.
Apart from this, there together exists some other associated barriers for an effective
management of pain in patients suffering from dementia. This mostly involves deficit number of
resources and are being referred as obstacles at organisational level. This is for instance to specify
about a limited period of time to care for the patients with dementia in acute hospital settings that
have been identified by a few number of sources. Nursing staff working in such care settings often
deals with an excessive work load that constraints their time constrain making them unable to
interact with the patients. Beside this, they are also required to participate in various training
sessions that include effective pain management strategies to handle people with dementia that also
hamper their time. As a result, to which, despite being interested and compassionate with a
committed outlook towards serving the patients, they become unable to communicate with the
patients with dementia within their work hours (Newton et al., 2014).
Moreover, patients with dementia needs more time to clearly communicate their pain to the
nurses in comparison to their counterparts who have no cognitive problems (Lichtner et al., 2016
and Dowding et al., 2015). However, the time within which the staff tends to interact with the
patients is mostly brief and very limited (Cowdell, 2010). This is mainly because of a busy
environment in acute hospital wards where their staff is also found to work under a considerable
amount of pressure (Lichtner et al., 2016 and Dowding et al., 2015). A nurse mostly has 8 to 14
patients in charge in each of their shift (Dowding et al., 2015). Cowdell (2010) highlights that
nursing care predominantly focusses on provisioning physical care to the patients that leads to
ignore other essential requirements with a major concern of the intellectual issues faced by them.
This states that the resources used for nurses for further training their skills for dementia care is
often limited in nature.

Theme 2- Complexity of dementia patients and individualised care needs, family member and
carer’s involvement.
During hospital stay, patients are cared by various healthcare team members including
doctors, nurses and healthcare assistant and other members in the multidisciplinary team (MDT).
Due to the organizational context of care and staff working shift patterns, patients communicate
about their pain in different ways and to different health care staff members at different times
(Lichtner et al., 2016; Lichtner et al., 2015; Dowding et al., 2015 and Manias, 2012). This requires
the staff members who are taking care of the patient to have a consistent documentation that
mentions an overall information about patient’s pain behaviour and its rising or declining trends.
However, Lichtner et al. (2016) have argued about the fragmentation of paper-based
documentation in this area. To reconstruct the information to form a specific piece of information of
pain in a patient, it requires a collective memory of the staff for being quite time consuming process
(Lichtner et al., 2016). Some patients with mild dementia may not respond to pain when being
asked about it and start having pain when the staff is not present there (Lichtner et al., 2016;
Lichtner et al., 2015; Dowding et al., 2015 and Manias, 2012). Although, patients are instructed to
use a nursing bell that they often forget to use due to their short term memory. Resultantly, they
become unable to memorise and report their pain to the healthcare staff (Lichtner et al., 2016) and
the patient fail to get any pain relief at the time of suffering with pain (Manias, 2012).
Moreover, patient’s pain often tends to change and fluctuate. This is for example, they may
suffer from more amount of pain in a certain period of time in a day and on movement (Lichtner et
al., 2016; Lichtner et al., 2015 and Manias, 2012). People in old age are expected to have some
degree of pain and ache (Dowding et al., 2015). Gibson (2006) note that healthcare nursing staff
often assumes that pain is a part of aging process and is acceptable for some patients as they get
used to it, meanwhile, some patients expect their healthcare staff to recognise and manage their
pain.
This suggest that the nurses are expected to observe their patients throughout the day to
identify patient’s pain experience at certain period of time in a day and on some specific
movements. It is for example getting up from the chair and toilet, mobilising and other daily
activities. Sampson et al. (2015) have evaluated nurses’ perspective about pain recognition in

patients with dementia through patients’ behaviours. Undoubtedly, the staff may find it challenging
to identify whether a patient is in pain or not, it is particularly when the patient displays anger,
denial, withdrawal, aggression, distress and anxiety, the hospital staff finds it difficult to find out
the reason behind it and check whether it is due to a tense surroundings of the hospital or some
other reasons behind it (Dowding et al., 2015).
Many patients find that the hospital ward creates a very stressful environment by creating
noises of nursing-call bells, telephone sounds, etc. They also find it difficult to meet their own
standards by creating such traumatic and tensed surrounding (Cowdell, 2010). An unfamiliar team
of healthcare staff and other people around the patients can negatively impact on patient’s mental
state (Dowding et al., 2015). Being in a different environment from their own home, some of these
behaviours and psychological symptoms may be interpreted as pain in patients with dementia
(Sampson et al., 2015). However, staff finds it challenging to recognise such behaviours of patients
with dementia that involves wandering, shouting, being aggressive and delirium and could be
associated with pain (Lichtner et al., 2016). With language discrepancy, patient may not be able to
accurately express their distress that may be related to pain and changes in the intensity of pain and
where the staff are often unable to interpret such complex pain of patient’s due to lack of education,
etc., (Lichtner et al., 2016 and Fry et al., 2016). Clearly, to provide effective care to patient with
dementia and optimise their health care outcomes, individualised care, indeed plays a vital role
(NMC, 2015; Royal College of Nursing, 2016; Scammell, 2017).
Sources demonstrated that the involvement of family members and carers of patient has
been indicated to be a beneficial aspect for the patient-centred care in this specific group of patients
(Cohen-Mansfield, 2006; Cohen-Mansfield, 2008; Corbett et al., 2012). Evidences have also
suggested that carers who have daily connection with patients with dementia can play the role of
significant sources to provide accurate information about the person with dementia to effectively
locate the pain, its pattern and intensity (Cohen-Mansfield, 2002; Corbett et al., 2012). This in turn
suggest that the nurses can utilise the patient’s carer to obtain pain related information while
undertaking pain assessment. Particularly, the initial assessment on admission should include the
individuals’ history of pain and pattern, which could be obtained from a patient’s family member
and caretakers, etc. Evidences from wider research demonstrates that carers of the patients can
interpret patients’ pain related behaviours, that involves facial response, body gestures and the way
in which they say things (Cohen-Mansfield, 2006; Stolee et al., 2005; Villanueva et al., 2003).
Moreover, some carers also report that if patients change the pattern or routine of their
activities, then it entails that the person displays some recognisable signs and symptoms of pain
(Cohen-Mansfield, 2002; Cohen-Mansfield, 2008; Stolee et al., 2005). However, when carrying out

a nursing assessment, majority of nurses do not involve patient’s relatives and most of the time, the
patient’s family is not present; some carers have a perception of nurses for being too busy with their
work and hesitate to initiate a conversation with the nurse (Lichtner et al., 2016). This recommends
an improved skills of communication for the nurses to effectively utilise patients’ carers in terms of
acknowledging patient’s changing behavioural pattern with pain. It is well- documented that the
right relative and carers can provide trustworthy information about the patient (Lichtner, et al.,
2016; Tuffrey-Wijne, et al., 2013). It can be used as a base-line information by the nurses while
assessing patients’ pain.
Theme 3- Impact of nurses’ knowledge and attitude on pain assessment, specific tools for pain
assessment.
Wells et al. (2008) outline that nurses are indeed required to assess if patients are in pain
before giving any pain relief medication. This research has identified several tools that nurses use to
aid decision making on pain management, including numerical, verbal, FACES, behavioural scale
and Early Warning Score(EWS) system and commonly rely on self-report pain (Lichtner et al.,
2015; Dowding et al., 2015; Fry et al. (2016).
Using numerical, verbal and FACES scale to identify pain intensity on patients with
dementia and trigger action for effective management is subjective (Lichtner et al., 2015). Several
authors question the accuracy of these tools used to assess patients’ intensity of pain that they may
be experiencing, asserting that it is depending on the severity of dementia and patients’ ability to
understand, interpret and articulate the meaning of these scales when referring to their pain
experience (Lichtner et al., 2015; Dowding et al., 2015; Fry et al., 2016 and Corbett et al., 2012).
Lichtner et al. (2015) have examined pain assessment on a regular basic and found a routine
observation round is used as a method to identify if patients have pain and this comfort round is
mostly carried out by health care assistants (HCAs).
They find that various hospital settings use different charts, for instance, 0-10 scale, 1-3 for
mild, moderate and sever pain, and yes or no answer to pain chart (Lichtner et al., 2015). The use of
numerical and verbal assessment tools has been criticised by staff as box-ticking activities rather
than recording information of pain intensity of this group of patients (Lichtner et al., 2015). Staff
use FACES scale at baseline to assess if patients are in pain found it inaccurate, as this tool has
significant association with dementia stages and the ability of the patient expressing their
meaningful pain when being assessed; some clinical factors include pain on movement and at rest
has close relation with increasing age and distressing hospital admission (Lichtner et al., (2015).

This indicates that the judgement of pain intensity from staff and the pain experienced by
the patient may not match, as Mania (2012) argues that patients with moderate and severe dementia
due to the nature of cognitive problems would be unable to answer yes or no to pain questions.
Similarly, patients with impaired cognitive, especially in a server level, would not be able to
understand the meaning of numbers in relation to pain intensity and not able to communicate with
pain to staff with the use of numbers (Lichtner et al., 2015; Dowding et al., 2015; Manias, 2012;
Cowdell, 2010 and Corbett et al., 2012), therefore it would be ineffective, unreliable, invalidate in
patients who are beyond early stage of dementia (Cohen-Mansfield, 2002 and Corbett et al., 2012).
This suggests that the regular observation round may refer to staff’s just look at the patients
to fulfil the need of filling the charts (Lichtner et al. (2015), and a score of 0 may not accurately
correspond to patients who have dementia their actual pain intensity (Dowding et al. (2015),
suggesting staff may not have skills and knowledge of how to assess patient with dementia if they
are in pain appropriately and using the right tool for the individual (Sampson et al. (2015). Broad
evidence suggests that verbal, numerical rating scales and FACES only able small percentage of
patients with dementia to use and self-report pain lacks reliability in dementia patients who have
reach certain stage of dementia (Sampson et al., 2015; Lichtner et al., 2015; Dowding et al., 2015;
Fry et al., 2016; Manias, 2012; Cowdell, 2010 and Corbett et al., 2012). Snow et al. (2009) assert
that self-report is the most appropriate assessment instrument that nursing staff use when assessing
patients’ pain level, provided if those patients still have ability to record, express it accurately.
Therefore, nurses should use these assessment tools with precaution when assessing patients with
advanced dementia and alternative should be sought.
At the point of assessing a patient’s pain intensity can be representative of that single point,
however, it does not represent the patient’s over all pain problem (Dowding et al., 2015). Thus,
nurses are suggested to use behavioural assessment model to recognize proficiently if the patient is
in pain. Corbett et al. (2012) assert that the Mobilization-Observation-Behaviour-Intensity-
Dementia Pain Scale seems to be rigorous observation measure that nurses could utilise to detect if
patients are in pain. It has been argued by some researchers it can be a most accurate method to
gather data of patients’ pain intensity, location and pattern (Corbett et al., 2012). As it can help
clinicians interpret patients’ pain experience through their physical behaviour into a rating scale,
Husebo et al. (2008) and Husebo et al. (2010) highly recommend this assessment instrument to
nurses due to its reliability, feasibility and sound in nursing practice. However, in general hospital
setting where staff may not have previous knowledge of the individual living with dementia and
express that there is lack of training between pain and psychiatric symptoms management in people
with dementia (Sampson et al., 2015).

Some authors suggest that this requires staff to build a picture of a patient and gather all
possible information to make sense of the patient and making connection across all sources of
information, including checking blood pressure, heart rate and particularly respiratory rate as an
indicator of pain (Fry et al. 2016). Clearly, to aid staff’s decision making, observing patient’s
behaviour and consider these behaviours, for instance facial expression, may be the possible
explanation of their pain existence and its intensity. The increased facial responses are likely to
indicates the increased pain intensity (Corbett et al., 2014; Kunz et al., 2007).
Fry et al. (2016) and Corbett et al. (2012) conclude that in their study that patient with
increase facial expressions have direct link with increased pain level, which can be viewed as
reliable sources to determine if a patient is in pain. However, some evidence has highlighted to
some extent to which nursing staff are often lack of these judgement skills and knowledge to
recognise, respond the signs and symptoms of pain through patients’ facial behaviours, and
determine pain score in people with dementia (Lichtner et al., 2015; Dowding et al., 2015; Fry et
al., 2016 and Corbett et al., 2012).
Conclusion
The nature of pain in individuals with dementia is complex. In accordance to research, it has
been identified that effective pain management in patients with dementia in acute hospital settings.
Pain management in individuals struggling with dementia comprise various levels of clinical
practices including organisation, staff, patient selves and their family and carers. This paper has
outlined some factors which influences effectiveness of pain management. Organisational context,
staff’s skills, knowledge and attitudes to use of pain assessment tools utilisation which
pronominally impact on recognition, assessment and management of pain of people suffering from
dementia in the acute hospital setting. It has been suggested that alternative assessing tools can be
used to identify patient’s pain experience through their behaviours as it reflects patient’s pain
intensity, with the combination use of tools tailored for individuals. Moreover, carers’ involvement
has been recognised as valuable resources to provide accurate information about patent’s pain and
changes of pain therefore it is suggested training on utilisation of carers-scale rating helps staff in
decision making on assessing patient’s pain. Finally, observation of physical movement of patients
should not be over looked as it could provide clinician valuable information of patients’ pain.
Recommendation
Pain in patients with dementia is mainly managed by medical prescription. It is
recommended that nurses should carry out a single assessment prior giving pain relief medication.

To assess patient’s pain experience and intensity to determine what pain management level should
be utilised, Cox et al. (2015) argues that nurses should use appropriate tools for each individual.
Further, organisation have responsibility to provide on-going training to assist staff achieve
competency to use dementia friend approach tools. Evidence from Newton et al. (2014) suggest
that staff have undergone some training which has assisted in improving their skills, knowledge and
attitude towards pain management. They claimed that they have gained more confident on caring
for patients’ behaviour of aggression, wandering, agitation may be their manifestations of pain
(Newton et al. (2014).
The clinical resources are effectively used for provision of skill and knowledge training and
time given to learning opportunities by the organisation. Further, staff find their compassion on
nursing for patients with dementia has improved and more job satisfaction (Hycochol and Horgas,
2013). If staff receives adequate training related to pain management from the starting point of
employment, the individuals can improve skills of identifying pain in older adults with dementia
from day-to-day nursing practices. (Newton et al., 2014). In accordance to this, ward managers
should know how to utilise organisational resources to target dementia and pain related training to
enhance staff skills and knowledge to meet individual healthcare needs.
As nurses recognise that patient may have high analgesic tolerance, wider pain management
team are needed to work in conjunction with them in pain management. Therefore, pain specialists
are required. There is some evidence, however, supporting that nurses often may observe and
identify if symptoms or signs of distress has improved after administering the greater dose or
combination of various pain medication (Cox et al., 2015; Dowding et al., 2015 and Gilmore-
Bykovskyi and Bower, 2013). Over dose analgesic, under treatment, unnecessary anti-psychotic
drug prescribed could be prevented in this group of individuals. This can be considered as strategies
that nurses can utilise to assist decision making for pain management (Kaasalainen et al., 2007 and
Gilmore-Bykovskyi and Bower, 2013). Apart from working with pain specialist, experienced staff
can mentor other staff who have less experience in caring for patient with dementia and help them
broaden their horizon in pain management in patients with cognitive problems by sharing their
experience and giving other staff feed backs (Yoder, 2010).
Thus, they would find their job satisfaction and compassion of what they do for patients
with dementia (Ingham-Broomfield, 2008; Miller, 2015; NMC, 2015). Nurses are recommended to
carry out wider research on the observation of patients’ body language, facial response, gesture and
behaviours during their work shift and using an individualised tool for pain assessment (Tingen et
al., 2009; Brown, 2011) and information from patient’s carer or appropriate family members
(Dowding et al., 2015). This is to help nurses to understand the essential clinical and behavioural

association pain and improve the recognition and management of pain in individual living with
dementia (Ahn and Horgas, 2013; Jordan, et al., 2011; Tosato, et al., 2010). Nurses then record
information which would be studied to infer to patients’ pain intensity, pattern to support decision
making of pain management.
Further research is needed to gain a deeper understand of utilisation of organisational
resources to provide nursing skills and knowledge training to improve quality of care in individuals
with dementia, investigation on the effectiveness of involvement from family, carer of the patients
and patient-centred assessment tools.