MND Caregiver Support Services Review

This report compiles and analyzes findings from several studies focusing on the experiences and needs of family caregivers for individuals with Motor Neurone Disease (MND). The studies employed various methodologies, including qualitative interviews, surveys, and literature reviews, to investigate different aspects of caregiver support. Key themes emerging from the research include the physical and emotional burden on caregivers, the importance of effective communication and information sharing between healthcare professionals and families, and the need for a range of support services tailored to the specific needs of caregivers. The studies highlight the impact of inadequate support on both caregivers' well-being and the quality of care provided to MND patients. The overall conclusion emphasizes the critical need for improved support services and training for healthcare professionals to better address the complex needs of MND caregivers.

Date/Title/
Author/Publisher
Aims and
objective
research
question
Methodology Method of
sampling Sample size Method of data
collection
How the data
was analysed
Findings Strengths
and Weakness Conclusion Other
Date: 21/ 07/2006
Title: Caregiver
bodywork: family
members’ experiences
of caring for a person
with motor neurone
disease
Publisher:
Aim: The aim it to
understand how
members of family
care people with
motor neurone
disease.
Objective:
Semi-structured
interviews, face to
face.
Systematic sampling 18 primary family
caregivers and 6
peripheral caregivers.
Primary data Qualitative data There was three body
concepts were identified
which are visible body:
ways through which
diseases gets affected
caregivers and patients.
Dependent body: Care
requirement. Social body:
how social support
networking affects with
MND.
With continual
presence of
emotional labour,
the demand for
bodywork for
family caregivers
are increasing. This
is because they use
the best way
through which
better services can
be delivered to
relative with MND.
It is important to for
healthcare workers
and nurses to
understand the
situation of families
in order to establish
most appropriate
interventions.
Date: 24-06-2005
Title: A Review:
Carers, MND and
service provision
Aim: It focuses on
important factors
in health policies.
It enables to make
understand about
all the aspects
related to MND.
Rapid review - - Secondary data Qualitative data Different aspects has been
identified. In this context, it
includes: dissatisfaction
should be kept in mind.
There needs to have
effective communication
among family member and
staff. With positive
outlook, it will enable to
lessen the chance of arising
health issuers.
There are cases in
which caregivers
may get ill
themselves if they
do not take proper
support throughout
the course of
disease.
-
Date: 30-06-2016
Title: Family
caregivers: what do
they need? An
integrative review
Objectives: It aims
at determining the
needs that is
expressed by
family caregivers.
Integrative review
of the literature
- 11 articles selected Secondary data Qualitative data 5 themes identified: being
responsible for every thing,
access to formal support,
communication and
information processes,
importance of support and
transition into care.
Many needs are
identified in
different areas and
these should be
addressed in nursing
interventions.
-
Date: 25-10-2005
Title:
Multidisciplinary ALS
care improves quality
of life in patients with
ALS
Objectives: To
analyse the effects
of
multidisciplinary
ALS care for
improving quality
of life for the
patients with ALS.
Questionnaire Random sampling 208 patients with
ALS
Primary data Quantitative
data
Improvement has being
identified in about 133
patients to whom
multidisciplinary ALS care
was provided.
It is effective
enough to provide
multidisciplinary
ALS care.
-
Date: 16-12-2011
Title: The need for
support services for
family carers of
people with motor
Aim: This research
aims at
understanding the
importance of
support of services
for family carers
Narrative interviews Systematic sampling 18 current and 10
former carers
Primary data Qualitative data It is important to provide
proper training as they lack
proper information towards
the services that has to be
provided to MND.
There is need of
support range
service to be made
available for carers.
-
1

Date/Title/
Author/Publisher
Aims and
objective
research
question
Methodology Method of
sampling Sample size Method of data
collection
How the data
was analysed
Findings Strengths
and Weakness Conclusion Other
neurone disease
(MND): views of
current and former
family caregivers a
qualitative study
for people with
MND
Date: 16-09-2011
Title: The impact of
perceived lack of
support provided by
health and social care
services to caregivers
of people with motor
neuron disease
Objective: to
investigate the
relationships
between support
by health and
social care
services.
Survey through
questionnaire
Random sampling 12 caregivers and 40
patients with MND
Primary data Quantitative
data
The relationships between
caregivers and patients are
not effective as they fail to
understand the type of data
that is being provided.
It is important to
have healthy
relationships and
this is possible
through effective
interaction and
training.
-
2