My Health Record: Ethical Data Collection and Management in Health Care

My Health Record 1
Running Head: My Health Record
My Health Record: Ethical Data Collection and Management in Health Care

My Health Record 2
Table of Contents
Introduction......................................................................................................................................1
Task..................................................................................................................................................2
1. Background of My Health Record and potential ethical issues...............................................2
Guide for clinicians on use of my health record system..............................................................7
1. Key information that can be stored in My Health Record and its influence on decision-
making.....................................................................................................................................8
2. Considerations around the currency, relevance and accuracy of that data........................10
3. Implications may exist if a client subsequently removes a document...............................10
3.................................................................................................................................................11
1. Consideration before releasing the data.............................................................................11
2. Measures to ensure that de-identified data could not be re-identified at a later stage.......11
Conclusion.....................................................................................................................................12
References......................................................................................................................................13

My Health Record 1
Introduction
My Health Record is also known as Personally Controlled Electronic Health Record, is founded
by the Australian Government that provide shared electronic health summary to deliver a secure
electronic medical history of people of Australia. This system was broadcasted by government
on 1 July 2012. As per the state, this system provides the individual, control over secure access
and control on their health history and information. The purpose of this digital system is to
deliver quick access to all the contents and information in one place. The new technology is not
only useful for people, but is assisting to health researcher and government as well. Purpose of
this report is to analyse ethical data accumulation and management in healthcare. This report will
assess several relative perspectives such as major ethical issues of utilisation of secondary data,
suggestion to clinicians for using health records and provide considerations to researcher before
using the data from My Health record.

My Health Record 2
Task
1. Background of My Health Record and potential ethical issues
Background: My Health Record system is Australia’s national digital health document, record
system which allows citizens to access and share their health information with hospitals, doctors
and other providers of healthcare. This is secure online health information summary that one can
control and also allow to give information access according to their preferences. Also known as
Personally Controlled Electronic Health Record, this framework is supervised through NEHTA
(National Electronic Health Transition Authority) (Baum, (2016). It was previously called the
eHealth Record and PCEHR. The core of My Health Record (PCEHR) is to give a safe
electronic summary of medical history of individual which will comprise content related to
current and previous medications, immunisation, allergies, and adverse drug reaction in an easily
available and accessible format. This is stored connected system’s network that has ability to
develop the information sharing among health care service provider to cater advancement in
patient’s outcome accessible to every part of Australia.
Data included in My Health Record
Here are mentioned the information which is included in the My Health Record:
 A written record by doctor
 Information of medications i.e. prescribed to individual.
 Referral and specialist documents.
 An immunisation details or history
 Pathology reports
 History of Medicare claims