Living with Disability and Long-Term Conditions: A Research Study

This research project delves into the challenges faced by individuals living with disabilities and long-term conditions. It explores the impact of these conditions on mental health, living conditions, and the factors affecting their lives. The study examines the role of health and social care organizations in providing support and care, highlighting the need for improved strategies and resources. The research is conducted through a critical review of existing literature and data analysis, providing insights into the complexities of living with disability and long-term conditions.

Living with disability and long-term condition
1 | P a g e

Table of Contents
Introduction:....................................................................................................................................3
Chapter 1: Research Proposal and Short Literature Review...........................................................4
LO1 Understand how to formulate a research specification...........................................................4
1.1 Formulates and record possible research project outline specifications....................................4
1.2 Identify the factors that contribute to the process of research project selection........................5
1.3 Undertake a critical review of key references...........................................................................6
1.4 Produce a research project specification....................................................................................7
1.5 provide an appropriate plan and procedures for the agreed research specification...................8
Chapter 2: Research Diary.............................................................................................................10
LO2 Be able to implement the research project within agreed procedures and to specification...10
2.2 undertake the proposed research investigation in accordance with the agreed specification
and procedures...............................................................................................................................10
2.3 Record and collate relevant data where appropriate................................................................13
Chapter 3: Analysis........................................................................................................................15
LO3 Be able to evaluate the research outcomes............................................................................15
3.1 Use appropriate research evaluation techniques......................................................................15
3.2 Interpret and analyze the results in terms of the original research specification.....................15
3.3 Make recommendations and justify areas for further consideration.......................................16
Conclusion:....................................................................................................................................20
Reference List:...............................................................................................................................21
2 | P a g e

Introduction:
The main aim of this research project is to have the understandings of the appropriate tools
techniques used in the health and social care practice for the beginners and the learners. In this
context, the health and social care practice followed in the Park Royal Hospital will be discussed.
Moreover, the entire scenario of the health care practice in UK will also be highlighted in this
entire context. With the help of the entire applied health care practice and the policies
implemented by the local government will give the learner the exact idea of the condition and the
potential of the entire health care sector in UK. The Park Royal Hospital is one of the best health
care organizations in Australia, which is providing quality service to the local people and has
managed to gain enough goodwill for the organization (Edwards et al., 2015). Hence, this entire
study is going to discuss the health care issues faced by the local people and the corresponding
service provide by the organization in Australia.
3 | P a g e

Chapter 1: Research Proposal and Short Literature Review
LO1 Understand how to formulate a research specification
1.1 Formulates and record possible research project outline specifications.
The entire scenario of the health care condition in Australia and the case is collaborated with the
related health care practice followed by the park Royal Hospital. In this scenario, the learning
ability is related with those people who need the optimum level of the care. Therefore,
remembering all this factors, the health care practice that is in practice for longer times in the
healthcare organization is the most vital requirements in this module. The long-term disabilities
included with proper the diabetes, cancer, cardiac daises and mental illnesses (Carrier, 2015).
Hence, it has been justified that while all the necessary factors has been taken into consideration
by the park Royal hospital is the main viewpoints of this module. Hence, the main query to
which is going to be solved in this module is to judge the metal condition of the people
victimized with the long term diseases along with the factors that help to improve the condition
of those peoples life (Harrison et al., 2017). Apart from this, the condition of the living of the
people with the long-term diseases and the required strategies taken by the health care
organization is the main consideration in this study.
It has been justified by various researches; there is huge change in mental condition in the people
suffering from the long-term basis illness. Talking into consideration of the outcomes of the
diseases most of the people loses control over their mind and behaves improperly. Eventually,
the treatment implemented for the particular person does not give the expected result. Therefore,
the health care executives in the health care organization have come up with proper treatment
process based on which the patients gets the desired satisfaction and their mental condition is
improved. Specifically, the health care executives in the Park Royal Hospital have made a
planning for the patients by judging their mental condition of the patients with long-term
conditions. This is the preliminary stage of the diagnosis process, which gives the health care
executives a firm observation of the mental condition of the patients.
4 | P a g e

1.2 Identify the factors that contribute to the process of research project selection.
Several factors are directly related in the case of the research project selection. According to
several researchers, the research project selection implies the process of selecting the task
required to be completed in the tasks and to judge the factors according to its priority and the
necessity in the project. In some cases, the research project is based on ideas and the brief
description of the projects. After this stage, the project managers need to identify the key
elements required to fulfill those tasks in the research project. In this scenario, the mental health
of the patients suffering from the long-term disease is the key concerns for the project in order to
have the successful implication of the treatment for the patients (Ma Chan & Carruthers, 2014).
The health care sectors in Australia are highly influence by the implemented strategies by both
the government officials and the health care executives in order to achieve the desired
sustainability stage in the health care organizations. Depending upon the strategies and the
normal functionalities of the Park Royal health care centre, the condition of the treatment process
in Australia can be identified. Therefore, the main motto behind this research projects selection is
to emphasize on the actual condition of the health care sectors in the Australia and the
corresponding steps followed by the medical experts to overcome the issues faced by the victims.
Selection of the project is entirely based on following two factors:
Benefits:
This the actual measure of the optimistic outcomes of the research project. Most of the time, it
has been seen that while selecting the project, several factors are taken into consideration based
on assumption of the project manager. This factor is helpful in order to have the justification of
the question why the research project has been undertaken. The benefits of the research project
selection are further classified with these following factors:
Biodiversity:
This term is entirely dependent upon the justification behind selecting the project. It has been
seen that the health care sectors is one of the prime concern for the government and for the
country. In this context, the long-term diseases related has affected the mental stability of the
patients that has a diverse effect upon the diagnosing and the corresponding treatments process
of the patients.
5 | P a g e

Economical aspects:
The economical stability of a particular country is dependent on the amount invested by the
government in the public and in the health care sectors of the country. While the health care
sector is facing tremendous challenges to overcome the issues of the long-term patients, the
investments in the health care sector need to be increased that influences the economical stability
of the country. Therefore, it is the prime consideration of the health care executives to have the
proper justification of the strategies followed by the medical experts to overcome the issues
faced by them.
Feasibility:
Feasibility of a project is related with the process of the measurements of the entire project and
to judge the entire process of the risk and the complexity involved in the research project.
However, while judging the feasibility of the selecting the project indicates the successful
outcomes and the chances of successfully achieving the desired target in the research project.
1.3 Undertake a critical review of key references.
The physical disability gives rise to several factors that affects directly upon the mental condition
of the patient. According to the research project published by the world health Organization
(WHO), the physical disability is the malfunction of the body organs’ and the limitation in the
normal activity of the body organs. Eventually, the persons fail to communicate properly with
rest of the world and to live naturally among people. From this points, the mental disorder and
arises that seemed to be abnormal for the people around the victim. This is the main cause behind
the mental disorder to people. Several factors need to be taken into consideration by the medical
experts of the Park Royal hospital so that they can develop the most appropriate strategies for
treating those victims. However, the absurd physical condition of the people is one of the critical
challenges for those people. Hence, the key responsibility of the medical experts of the Park
Royal Hospital need to monitor the overall condition of those disabled people to live their lives
(Crichton et al., 2016). This process is also helpful in order to understand the key factors that
influence the life style of the disabled people. In this process, the patients will get a chance to
improve their physical and mental condition of those victims. However, further research is
6 | P a g e

carrying on this factors of improving the mental condition of those people suffering from the
long-term disease and to involve innovative planning for the dealing this problems in future.
1.4 Produce a research project specification.
There are several aspects of the selecting the research project specification. The project
specification is as follows:
Target Market:
Required resources:
Ergonomics overall size of the project:
Strategies undertaken:
Tools or the Equipment required:
Overall monitoring process and the corresponding requirements:
Life Cycle and the task completion time:
Quality Assurance:
Total costs required:
Time scale planning:
Health and the safety issues provided:
The above-mentioned points are the key factors that are required to develop the project
specification. According to various researchers, the types and the key factors involved in
developing the research specification is similar in nature and in case of the heath care project the
specifications are quiet critical and complex to be taken into account (Smith, Swallow & Coyne,
2015). The key issue that is involved in the process is entirely related with the factors of the
mental health and the response to the implemented medical treatment process for the patients. In
case of the health care projects, the researcher needs to be cautious enough in order to have the
7 | P a g e

proper implication of the implemented strategies and the results obtained from this process. By
the trial and error method it is possible to improve future scopes of the research project at the
same to identify the key issues involved in the health care sector.
1.5 provide an appropriate plan and procedures for the agreed research specification
Then research specification is based on the factors of how the entire project has been sub divided
into small tasks and according to the priority of the project, resources and time has been
allocated for the project. The researcher has segregated task in that is helpful to complete the task
in the allocated time within the resources allocated. The first and the foremost task are to indicate
the sector where the research project will be conducted. In this case, the entire scenario of
research is related with the long-term condition as well as the physical disability of the patients
(Bray Kirk & Callery, 2014). Hence, this task does not require much longer time. After that the
researcher need to allocate resources for completion of the task and at the same time need to a
close monitoring in the overall research project. Therefore, the researcher need to make a proper
time schedule for the entire research project and should try to complete the entire task within the
allocated time. This process is helpful to complete the entire project within the allocated time and
the resources allocated for the research project. The researcher has followed the chronological
order in which the research specification has been developed. However, the researcher need to be
careful enough in order to judge the entire time allocated and the corresponding issues that may
have to faces while fulfilling the project.
The project life cycle and the efficiency of the entire project is based on the factors of the how
the researcher has allocated proper resources and the corresponding time for completing the
project. After all the stages has been done, the researcher need to judge the quality of the
research project and at the same time highlight the future scopes of the project (Wu et al., 2014).
However, the research project has been directed with the help of the viewpoints for the authors
and the previous researches done on this particular process. Therefore, there are still some areas
left that can be further exposed to have the better understandings of the entire research project.
Hence, the researcher need to critically analyze all the key factors involved in the research
project to reach the successful conclusion of the task fulfilled in the research project.
2.1 Match resources efficiently to the research question or hypothesis
8 | P a g e

The research question is entirely based on the dynamics of understanding the condition of the
mental and the physical health of the patients with long-term diseases. The second research
question is based on the factor of what are the actual strategies that can be implemented to
recover the condition of these people (Mithen et al., 2015). Therefore, the researcher need to
critically analyses the proper allocation resources by maintaining the appropriate time schedule
for the research project. Aacciording to Lambert & Keogh (2015), the main considerations to
judge the influence of the long term diseases upon the mental condition of the victims and to
have the proper reviews from the implemented strategies. Most of the time, it has been seen that
the time and the resources allocated by the researcher varies while completing the project in real
life scenario. Therefore, there must be proper justification and logic behind allocating the time
for successfully identifying the research questions. However, the researcher has the guided by
the secondary data collection process from the article and the previous research papers so the
overall time required to complete data for the research in concentrated.
9 | P a g e

Chapter 2: Research Diary
LO2 Be able to implement the research project within agreed procedures and to
specification
2.2 undertake the proposed research investigation in accordance with the agreed
specification and procedures.
A research diary enables the researcher to maintain and preserve all the data collected in the
process. This helps in keeping track of the activities held during the research.
Date: 1-05-2018
Research Element/Aspect-
Economic
The disabled people, be it a mental or a physical disorder, face a long list of economic issues.
The issues may arise of because of several factors such as family, peer groups or even at social
levels. The majority of the long-term disabled people either lack education or are not educated at
all. This forms a great barrier in their trying to get work to earn a living. The dependency on
something or someone leads to economic crisis and the people affected are forced to stay in the
situation they are at. These people are unable to access the privileges that are available to the
normal public. The economic issues also become a barrier in their medical treatment and may not
be able to attend any medical assistance at all leading to fatal consequences. These lacks of
economic resources pulls them into the vicious circle of poverty.
Date: 7-05-2018
Research Element/Aspect-
Physical
The list of physical challenges are numerous and unavoidable until helped by a separate
individual to overcome it. The dependency creates a mental impact as they might feel bad about
10 | P a g e

being not able to perform daily tasks by themselves. The ways things such as building and places
are constructed usually do not apply for the use by the disabled. It again becomes a barrier for
them to access these by themselves. This in turn in the long term becomes a mentally affecting
factor. It might lead the people being impacted into depression and further worsen the condition.
The daily activities however small may become a big challenge. Using of modern toilets for an
example can be taken here as a hindrance too. The disabled people are unable to use the modern
toilets built for the society.
Date: 12-05-2018
Research Element/Aspect-
Psychological
On this day, the research was on the psychological aspects of the disabled people. They suffer
great loses relating to mental health. These people require mental health support but many are
unable to receive them. Some elements in the society pass comments at such people and do not
understand how they would feel as well as be mentally affected. These things though controlled
still happen and make the people with various disabilities their victim. The superstition present in
the society too prevents them from being present or wanting to attend certain events or social
gatherings. The family should act as a support here in order to make them feel better. The
mindset of these people if examined can reveal what intensity of depression they go through and
how many ways it affects them.
Date: 19-05-2018
Research Element/Aspect-
Education
The research element of this day was education. The lack of education makes the disabled weak
and dependent. They do not get the opportunities a regular person gets and are barred from
receiving such privileges. Some separating practices still exist in the society and make the
disabled feel worse. These practices need to be stopped for the betterment of these people and
should be taken as an action against the law. These people do not get access to regular schools
11 | P a g e

and those who do are present in almost negligible in number. There is a need in the society for
the development and creation of new schools that are specially made to cater the needs of the
disabled. These schools should consider geographical location, accommodation, monetary
factors and others that can cause problems for them.
Date: 24-05-2018
Research Element/Aspect-
Health
The disabled receive no or very less information regarding health and other issues. Hence, they
are unable to take care of themselves until assisted by someone. They do not receive the
information and advises relating to family planning as well. The need for medical treatments also
become a huge issue as either they are far away or cannot be easily accessible. There expense
and the funds required for the treatment too for a majority is not affordable due to economic
crisis. The disabled can get physically abused in relation to fatal disease such as HIV and AIDS.
The abuse is not easily identified as well and can lead to adverse situation when detected late.
Date: 30-05-2018
Research Element/Aspect-
Culture or Tradition
Unfortunately, on the final day of the research it was found that the cultural and traditional
practices too have made the life of the people suffering from mental and physical disabilities a
nightmare. Many reports have shown the fact that the disabled were killed during infancy and the
families or parents did so out of being shamed by the society. They did not wish to carry the
burden of raising such a child and ended their lives at the time of birth itself. These horrible acts
have taken place and are recorded as well. Couples who bear disabled children usually do not
accept the fact and file for separations. Only a few bear the fact and continue to raise the
unfortunate child.
12 | P a g e

2.3 Record and collate relevant data where appropriate.
Objectives Reference
To analyze the physical and mental health of
disabled people
Cooper, S. A., McLean, G., Guthrie, B.,
McConnachie, A., Mercer, S., Sullivan, F., &
Morrison, J. (2015). Multiple physical and mental
health comorbidity in adults with intellectual
disabilities: population-based cross-sectional
analysis. BMC family practice, 16(1), 110.
Funk, M. (2016). Global burden of mental
disorders and the need for a comprehensive,
coordinated response from health and social sectors
at the country level.
To monitor the living condition of disable person Baio, J., Wiggins, L., Christensen, D. L., Maenner,
M. J., Daniels, J., Warren, Z., ... & Durkin, M. S.
(2018). Prevalence of autism spectrum disorder
among children aged 8 years—Autism and
Developmental Disabilities Monitoring Network,
11 Sites, United States, 2014. MMWR Surveillance
Summaries, 67(6), 1.
Christensen, D. L., Bilder, D. A., Zahorodny, W.,
Pettygrove, S., Durkin, M. S., Fitzgerald, R. T., ...
& Yeargin-Allsopp, M. (2016). Prevalence and
characteristics of autism spectrum disorder among
4-year-old children in the autism and
developmental disabilities monitoring
network. Journal of Developmental & Behavioral
13 | P a g e

Pediatrics, 37(1), 1-8.
To examine the factors that are affecting the life of
disabled people
Bell, L. A., & Adams, M. (2016). Theoretical
foundations for social justice education.
In Teaching for diversity and social justice (pp. 21-
44). Routledge.
Crane, D. (2018). The sanctity of social life:
physicians treatment of critically ill patients.
Routledge.
14 | P a g e

Chapter 3: Analysis
LO3 Be able to evaluate the research outcomes
3.1 Use appropriate research evaluation techniques
There are numbers of research evaluation technique is available to complete research project. In
this particular research project, the implemented research evaluation technique need to be proper
is that the exact issues and the problems can be recognized. The researcher has followed the
secondary data collection process along with the positivism approach to complete this research
project. Hence, the researcher has come up with the most appropriate research evaluation
technique that is helpful in order to indicate the reason behind selecting the research project.
There are numbers of strategies that has been faced in the research project based on which the
researcher can successfully guide the project towards achieving the research objectives. The
positivism approach and the qualitative research approach have been selected by the researcher
in order to have the authentic data for this research project. The entire research project is based
on finding out the key issues, which have a major influence on this research project. However,
the authentication of the collected data by the secondary analysis technique is a controversial on
as the information has no proper references (Dyer et al., 2014). Apart from this, the secondary
data collection process gives the moist vital outcomes of the implemented strategies and the
viewpoints of the medical representatives in the particular topic. Hence, the researcher gets an
opportunity to have the successful implementation of the planning, which is essential to fulfill
the research objectives.
3.2 Interpret and analyze the results in terms of the original research specification
For this particular research project, the researcher has been guided by the secondary data
collection process that is entirely based on the previous research projects and the statements of
the authors in the long-term diseases. Therefore, the entire research project is beneficial in order
to understand the exact condition of the people victimized with the long-term disease. The
15 | P a g e

experts’ logic behind the mental disorder of the people suffering from these problems has been
properly identified from the entire data collection process (Smith Cheater & Bekker, 2015). The
research specification has been based upon the factors of task wise segregation of the entire
research project and the corresponding resource and time required by the researcher to
successfully achieve the desired research objectives.
The researcher has been also guided by the reviews collected from the medical expert from the
Park Royal Hospital regarding the mental conditions of the patients suffering from the long-term
diseases. Hence, the researcher has enough chances to collect authentic data required for the
research project. Based on the data collected the researcher has managed to have the successful
implications of the research question set up in this prospects. Researcher has taken help from the
ECLS-K replication along with the Taylor series method to achieve the better sampling
technique and to get the appropriate research terminologies.
3.3 Make recommendations and justify areas for further consideration
The entire research project has been conducted to identify the condition of the mental health of
those people living with mental health. There are several aspects of the health care sectors to
undertake these problems and to have the proper understandings of how the long-term illness
influences the mental health of the patients (Singh, 2014). According to many researcher and the
medical experts in Australia, the medical strategies adopted by the health care sectors is
conventional and is not appropriate to overcome the issues faced by the patients. Hence, the
strategies discussed and the guideline suggested by the medical experts around the globe need to
be followed that will give the effective outcome for the victims.
Proper diagnosis factors and judging the mental condition of the patients, the doctors and the
health care experts should come out with the exact strategies that will be effective for the patients
suffering from the long term diseases. Besides this, proper medication and motivation is also an
effective factor that helps to overcome the mental absurd condition of the patients and boost up
the self-confidence level to fight with the disease. Therefore, the doctors need to be careful
enough and need to provide extra effort to judge the improvement of the mental condition of the
people suffering from the mental disorder. The innovative technological usage in the medical
science need to implement in order to improve the condition of the heath care sectors in Austrlia.
16 | P a g e

Chapter 4: Chapter 4: Peer-to-Peer Viva with Transcript 20-30 min video or audio plus
around 500 words transcript.
Speaker: The study has found out that disability is still one major area based on which patients
are discriminated on.
Peer 1: yes. Discrimination has become very common in all sectors.
Peer 2: yeah! Surely it should be major area
Peer 3: this discrimination is needed to be stopped immediately.
Speaker: It has been discovered through this research study that all of the long term conditions
are chronic health conditions.
Peer 1: Yes, absolutely long term conditions are chronic health conditions.
Peer 2: Long term conditions are just like chronic health conditions that cannot be mitigated
completely, but it is possible to control the affect of the health issue.
Peer 3: all of these long term conditions need special treatment as these are chronic health issues.
Speaker: The study has found that everyone is not properly aware of the affects of the long term
conditions.
Peer 1: yeah! Long term conditions such as diabetes, asthma, high blood pressure etc. have
several negative effects that cannot be mitigated completely, just can be controlled through
taking proper medicines and treatment.
Peer 2: No, I don’t think so. Long term conditions such as diabetes, asthma, high blood pressure
etc. are very common. Therefore, people have already observed how much these long term
conditions can be harmful.
Peer 3: Yes. All the people are not aware of the high side effects of the long term conditions.
Speaker: It has been known through the research project that active co-operation and support
from family members is needed for motivating the patent.
17 | P a g e

Peer 1: Yes, it has been observed that long term condition patients get de-motivated due to lack
of supporting behavior of others.
Peer 2: Family is another issue that does not care for this kind of serious patient. Family
members should be supportive for encouraging the patient.
Peer 3: Yeah man! Co-operation is needed from all sectors. Active co-operation of all can change
the overall result.
Speaker: Are all the health and social care organizations working towards offering personal care
and support to the long term?
Peer 1: It is true that Health care organizations should work together for ensuring that long term
condition patients are treating properly and they are getting proper treatment.
Peer 2: All of the health and social care organizations are not working together. Many of the
health organizations still have not taken part in this program.
Peer 3: Yes, but the government needs to implement proper policies to work together in
increasing the satisfaction level of the patients.
Speaker: It has been found out through this research study that several approaches have been
already adopted through strategic health authorities for increasing the level of operating all
operations.
Peer 1: healthy public policy, strengthen community action for ensuring health, supportive
environment all around to ensure health has already been done by the health and social care
organizations.
Peer 2: Yes, these approaches are very crucial in order to enhance the experience of the long
term condition patients.
Peer 3: Yes, several approaches are taken. But more approaches need to take for meeting the
patient’s requirements.
Speaker: This study has found out that training and development process is needed in order to
ensure health of long term patients.
18 | P a g e

Peer 1: Yes, providing training to all of the employees and people those who are directly linked
with the profession is very important for ensuring more satisfaction to the patients.
Peer 2: Training helps to gain knowledge that how to handle this kind of critical patients in a
more specific and comfortable way that patient can experience better treatment method.
Peer 3: Yes, training and development is such needed in order to enhance the overall
performance of all activities of all employees within the health organization. Trained health care
staffs will surely offer better treatment to the chronic health patients.
19 | P a g e

LO4 Be able to present the research outcomes
4.1 Use an agreed format and appropriate media to present the outcomes of the research to
an audience
Conclusion:
This can be concluded that living with disabilities and long term conditions has created such
difficulties within the health and social care organizations. Many of the patients are facing
critical challenges those who are suffering from this kind of such issues. These long term
conditions are actually chronic health issues. Therefore, in order to proceed in this research
study, understanding how to formulate a research specification is very important. Hence,
possible research project outcomes, a critical review of the key references and a research project
specification are included in this study to understand the research specification. In the next part
of the study, resources are matched to the research questions or hypothesis has been provided. In
the next part of this research study, relevant data is recorded and collated where appropriate. The
research outcomes are evaluated in the next part of this research study. It included research
evaluates techniques and recommendation part for the further consideration. At the last of the
research study, the research outcomes have been presented using appropriate format and media
for offering more clear idea of this research study.
20 | P a g e

Reference List:
Bray, L., Kirk, S., & Callery, P. (2014). Developing biographies: the experiences of children,
young people and their parents of living with a long‐term condition. Sociology of health
& illness, 36(6), 823-839.
Carrier, J. (2015). Managing long-term Conditions and Chronic Illness in Primary Care: A guide
to good practice. Routledge.
Crichton, S. L., Bray, B. D., McKevitt, C., Rudd, A. G., & Wolfe, C. D. (2016). Patient
outcomes up to 15 years after stroke: survival, disability, quality of life, cognition and
mental health. J Neurol Neurosurg Psychiatry, jnnp-2016.
Dyer, S. M., Crotty, M., Fairhall, N., Magaziner, J., Beaupre, L. A., Cameron, I. D., &
Sherrington, C. (2014). A critical review of the long-term disability outcomes following
hip fracture. BMC geriatrics, 16(1), 158.
Edwards, M., Wood, F., Davies, M., & Edwards, A. (2015). ‘Distributed health literacy’:
longitudinal qualitative analysis of the roles of health literacy mediators and social
networks of people living with a long‐term health condition. Health Expectations, 18(5),
1180-1193.
Harrison, C., Falvo, D., Weiss, V., & Holland, B. E. (2017). Medical and psychosocial aspects of
chronic illness and disability. Jones & Bartlett Learning.
Harrison, J. K., Clegg, A., Conroy, S. P., & Young, J. (2015). Managing frailty as a long-term
condition. Age and ageing, 44(5), 732-735.
Lambert, V., & Keogh, D. (2015). Striving to live a normal life: A review of children and young
people’s experience of feeling different when living with a long term condition. Journal
of Pediatric Nursing: Nursing Care of Children and Families, 30(1), 63-77.
Ma, V. Y., Chan, L., & Carruthers, K. J. (2014). Incidence, prevalence, costs, and impact on
disability of common conditions requiring rehabilitation in the United States: stroke,
spinal cord injury, traumatic brain injury, multiple sclerosis, osteoarthritis, rheumatoid
21 | P a g e

arthritis, limb loss, and back pain. Archives of physical medicine and
rehabilitation, 95(5), 986-995.
Mithen, J., Aitken, Z., Ziersch, A., & Kavanagh, A. M. (2015). Inequalities in social capital and
health between people with and without disabilities. Social Science & Medicine, 126, 26-
35.
Singh, D. A. (2014). Effective management of long-term care facilities. Jones & Bartlett
Publishers.
Smith, J., Cheater, F., & Bekker, H. (2015). Parents' experiences of living with a child with a
long‐term condition: a rapid structured review of the literature. Health
Expectations, 18(4), 452-474.
Smith, J., Swallow, V., & Coyne, I. (2015). Involving parents in managing their child's long-term
condition—A concept synthesis of family-centered care and partnership-in-care. Journal
of Pediatric Nursing: Nursing Care of Children and Families, 30(1), 143-159.
Wu, C. Y., Hu, H. Y., Huang, N., Fang, Y. T., Chou, Y. J., & Li, C. P. (2014). Determinants of
long-term care services among the elderly: a population-based study in Taiwan. PloS
one, 9(2), e89213.
22 | P a g e