Palliative Care in Cancer Patients: Challenges and Opportunities
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This assignment discusses the significance of palliative care in cancer patients, highlighting the needs and challenges associated with providing end-of-life care. It also examines the role of nurses and other healthcare professionals in addressing these needs and identifies areas for improvement in palliative care services.
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An investigation of the role and impact of nurses in caring for cancer patients in palliative care settings in the UK – A case study
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ABSTRACT Project background: The cancer patients undergo very complex and painful treatment phases. It encourages theneed of palliative care services which can minimize pain and symptoms of the disease so that patients can feel more comfortable. It also makes treatment process more effective. The nurses play key role in providing palliative care. In relation to the significance of palliative care it is essential to analyse the role of nurses in providing these care services. Aim: To study the role of nurses in palliative care settings especially in cancer patients Methods: To analyse the findings the study has used primary methods of collecting data which is by collecting questionnaire. The qualitative study design has been used for conducting the research. For making the study results precise, the samples size of 50 nurses of Marie Curie Cancer Careis used in the study. The samples are validated and chosen with care and clear selection criteria so that they can give desired response. The exploratory design is used in the research and thematic analysis has been used to interpret the data. Key findings: It has been analysed from the study that there is need of palliative care services for patients suffering from diseases such as cancer. However, it is very critical for the nurses to apply suitable approach for understanding the needs of patients. The palliative care can affect the quality of supportive treatment strategies so these must be effectively provided to the patients. Conclusion: It has been concluded that nurses must be encouraged and trained efficiently so that they can provide effective palliative care services and health outcomes of cancer patients can be improved.
TABLE OF CONTENTS CHAPTER 1: INTRODUCTION....................................................................................................1 1.1 Project background................................................................................................................1 1.2 Project rationale.....................................................................................................................1 1.3 Aim........................................................................................................................................2 1.4 Objectives..............................................................................................................................2 1.5 Research questions.................................................................................................................2 CHAPTER 2: METHODOLOGY...................................................................................................3 2.1 Introduction............................................................................................................................3 2.2 Research design.....................................................................................................................3 2.3 Data collection methods and sampling techniques................................................................3 2.4 Data analysis methods...........................................................................................................4 2.5 Ethical considerations............................................................................................................4 2.6 Literature search strategy.......................................................................................................4 2.7 Summary................................................................................................................................4 CHAPTER 3: LITERATURE REVIEW AND FINDINGS...........................................................1 3.1 Palliative care and role of nurses...........................................................................................1 3.2 Role of nurses in providing care to cancer patients...............................................................1 3.3 Nursing interventions and their impact on cancer patients....................................................2 3.4 Palliative care approaches used by Marie Curie Cancer Care Centre for providing care to cancer patients.............................................................................................................................2 3.5 Important findings.................................................................................................................3 3.6 Summary................................................................................................................................7 CHAPTER 4: DISCUSSION AND CONCLUSION......................................................................1 4.1 Summary................................................................................................................................1 4.2 Discussion..............................................................................................................................1 4.3 Conclusion.............................................................................................................................1 4.4 Recommendations..................................................................................................................2 4.5 Critical reflection on methodology........................................................................................2 REFERENCES................................................................................................................................3 APPENDIX......................................................................................................................................5 1
CHAPTER 1: INTRODUCTION 1.1 Project background Palliative care aims at preventing and providing comfort to the people going through the life threatening diseases such as cancer. Along with the physical pain, these services also manage spiritual and psychological problems of the people. The cancer patients especially the ones who have limited time period for the survival can get relief at some extent by these services. The care providing nurses are significant in recognising suitable method or approach of palliative care (Rodin and et.al., 2015). The study will evaluate the role nurses in providing these services through a case study. The treatment process of cancer is very painful and can cause great damage to the moral and strength of the patient thus in such situation it becomes essential to analyse the role of nurses who provide care and support to the cancer survivals. This research is also focused on the necessary skills required by the nurses so that they can effectively engage in palliative services. The painful condition of the cancer patients can be difficult for the nurses to witness because an emotional bond is established between them and patient. Hence, it becomes necessary that nurses must remain stable so that they can understand the needs of patient without showing inefficiency in their job role. The palliative care improves the quality of life of cancer patients thus it is required that various aspects of this approach must be analysed. The better nursing interventions can be developed by evaluation of the role of nurses (Cherry and Jacob, 2016). Along with the palliative care there are several nursing interventions which can be helpful in providing comfort and treatment to cancer patients. However, if nurses are not aware of their role then they may not fully understand the needs of their patients and thus the nursing interventions may not prove to be highly effective. Palliative care methods may vary depending upon the support needed by the patient. It is the responsibility of the nurses to identify the needs of patients and to suggest suitable palliative care. 1.2 Project rationale The key reason for choosing the role of nurses in palliative care is to analyse its significance in improving the condition and care methodologies for cancer patients. The disease itself is a wide subject of interest of many health professionals and researchers. Along with the 2
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methods also draw the attention of health care providers. Thus, the palliative care services and support provided by the nurses is crucial and need to be recognised. Another important reason for choosing selected topic is that the care services provided by nurses not only affect the health outcomes of the patient but it also creates a strong impact on the psychological state of the care providing nurses (Kelley and Morrison, 2015). While providing palliative care services, the nurses have to deal with the emotional breakdown of the patients. They may also witness the gradual degradation of the patient to ultimate stage of death. The close observation of these events can influence the overall stability and performance of nurses involved in these services. Further this research can also help serve as the basis for advanced researches on improving the psychological and physical state of the cancer patients. 1.3 Aim To investigate the role and impact of nurses in caring for cancer patients in palliative care settings in the UK: A case study on Marie Curie Cancer Care. 1.4 Objectives To analyse the role of nurses in caring for cancer patients To assess the influence of nursing intervention in caring for cancer patients To determine the approaches of providing palliative care to cancer patients in Marie Curie Cancer Care Centre To evaluate the impact of nursing efficiency in quality of palliative care settings and overall health outcomes of cancer patients. 1.5 Research questions Question 1:What are the roles of nurses in caring for cancer patients? Question 2:What is the influence of nursing intervention in caring for cancer patients? Question 3:What are the approaches of providing palliative care to cancer patients in Marie Curie Cancer Care Centre? Question 4:What is the role of efficiency of nurses in enhancing the healthcare quality by improving palliative care settings? 3
CHAPTER 2: METHODOLOGY 2.1 Introduction The research methodology provides a systematic approach to carry out research. The research methods can be classified as qualitative as well as quantitative. In quantitative methods statistical models are observed and explained. Contrary to this in this study qualitative methods areused.Thequalitativemethodsanalysetheobservationsandcontextsofvarious circumstances. This type of method is preferred in subjective perspective and can give detailed understanding of the research question. However qualitative approaches are limited to samples only (Research methods,2019).Thus, the results of the study are more scientific, quick and clear. In the further sections various methodological tools are described. 2.2 Research design Research design provides the strategies associated with the collection and analysis of data in the study. Research design is of two types namely conclusive and exploratory. The exploratory design aims to provide the general insight regarding research subject while the conclusive design aims at reaching and providing conclusive statement to verify the study insight. In this study, exploratory research design will be used. In this type of design, sample size is usually kept small so that selective samples can provide more generalisation of the topic. 2.3 Data collection methods and sampling techniques In order to answer the research questions, data collection is one of the essential aspect. The data collection methods are of two types primary and secondary. This study will use primary methods such as questionnaires, interviews and surveys so that relevant observations can be made (Worster and Swartz, 2017). On the other hand, the secondary data collection methods analyses the reviews from previously conducted studies and interpretations of different authors. For collecting data, relevant samples must be chosen from the targeted population. For this study, stratified sampling is used in which potential participants are classified into groups called strata. The sample size taken in the study is 50. The nurses are the key respondents for study who are working in Marie Curie Cancer Care Centre. 4
2.4 Data analysis methods Data analysis refers to technique or method used to interpret and analyse data to obtain effective results. The tools and methods are essential to draw the conclusions from the samples taken. Data analysis technique can be based upon qualitative and quantitative methods. In this study, using thematic analysis will be used to interpret data.(Data Collection Methods,2018). 2.5 Ethical considerations The ethical aspects must be followed during every aspect of the research. The participants were informed regarding purpose and scope of the project and research was initiated only after their consent. It was ensured that the confidentiality of participants is protected. As part of the ethical research nurses were also allowed to quit from the study at any instant whenever they feel it. The same was followed during the study. It was also assured that all regulations and legal aspects of Marie Curie Cancer Care and health care sector are followed strictly so that research valid and effective research outcomes can be obtained. 2.6 Literature search strategy To accomplish the research various database related to nursing were searched with the keywords like palliative care, role of nurses for care of cancer patients and significance of nurses in palliative care of cancer patients. Out of the 15 searched database the relevant research data was found in 12 websites. Further several medical journals and books were also used for the purpose. For the research those nurses were involved who had long termed experience of providing palliative care to the patients. The novice nurses involved in care services of cancer patients were also included so that their experience can also be analysed. 2.7 Summary The efficient search strategy and clarity of selecting participants helped to conduct research with better efficiency. The ethical considerations were strictly followed during study so that data can be analysed properly. The primary study design was selected as the suitable method for the study. On the basis of study design and sampling techniques the samples were collected fromtheMarieCurieCancerCare.Thestudyusesprimarydatasuchasthroughthe questionnaire so that the perspective of nurses and carers of cancer sufferers can be determined. The literature strategy helped to employ the research methodologies in suitable direction. 5
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CHAPTER 3: LITERATURE REVIEW AND FINDINGS 3.1 Palliative care and role of nurses According to Noome and et.al., 2016, the palliative care is defined as the care approach to provide relief to side effects and symptoms of disease and its treatment. This care becomes essential especially in cancer patients so that their quality of life can be improved by providing better support and reducing symptoms. Palliative care for the cancer patients is not only beneficial for the patients but it also acts as a support system so that the carers can cope up in the critical situation and effective emotional and family support can be provided to the patients. As per the views ofWiener and et.al., 2015,palliative care aims at delivering total care, the service providers includes the specialists from multidisciplinary teams. The most challenging aspect for the nurses providing care is to communicate with patient regarding their critical situation. Thus nurses may find it hard to balance their responsibility of ethical discussion with patient and compassion for the patient lying in suffering. Palliative services as a part of the support for cancer care gives comfort, acknowledgement and hope to the sufferers and their families (Palliative Cancer Care Guidelines,2018). 3.2 Role of nurses in providing care to cancer patients The nurses play significant role in providing palliative care to the cancer patients. Though several health professionals provide care services to the cancer patients but most of the time patient spend with nurses because these nurses helps them in providing medication support as well in performing routine tasks related to hygiene and diet. Thus prolong interaction with the patients and their families establish an emotional attachment and bond between nurses and carers. In the same contextBeck and et.al., 2017,believes that nurses have better understanding of the needs of patients because they witnessed the emotional and physical breakdown of the patient. It helps them to provide a better support in palliative care to people. Usually among all other service providers the nurses have the regular communication with the cancer patient and their families. Thus, the nurses have good analysis and understanding of the needs and preferences of patients. Malloy and et.al., 2017,claims that when nurses are highly professional and expertise in their services then they can easily assess the type of palliative need required for the patient. For 1
instance through interaction nurses can easily identify that if patient needs support from social worker, chaplain or family support. This evaluation from nurses helps the health care service provider to select the most appropriate method of palliative care. The inexperienced nurses may get deeply involved and affected by the vulnerable situation of patients. Thus, they may require appropriate guidance and training from expertise professionals who can help them to deal with these professional challenges. The palliative care requires new experience and knowledge on a routine basis and can be considered as instructive. Thus, the nursing care provided to cancer patients is affected by the nursing quality and experience. 3.3 Nursing interventions and their impact on cancer patients On the basis of observation and condition of cancer patients the nurses can analyse the best possible technique which can give relief to cancer patient through palliative care. The cancer patients with critical situations can also get motivated by the quality of nursing. As per the views ofSatsin, Matchim and Thongthawee, 2017,when nurses have complete knowledge about the situation of patient and share good communication with them then it becomes easy for nurses to support them in palliative care as well. The supporting and motivating words from nurses can make it easy for the cancer sufferers to reduce their sufferings. Contrary to this,Leung and et.al., 2017,claims thatin cases when new graduate nurses are involved in palliative care settings then the lack of experience can make them fearful and stressed. Thus, in such situations nurses may not give emotional support to their patients. The people who are receiving palliative care often require psychological support. 3.4 Palliative care approaches used by Marie Curie Cancer Care Centre for providing care to cancer patients In the view ofFitch, Fliedner and O’Connor, 2015,the efficiency of nurses is crucial for assessing the need and effectiveness of palliative care. The nurses at Marie Curie Cancer Care Centre are very attentive to their patients. They have complete knowledge regarding concerns of cancer patients and their family members so that they can assure that suitable palliative care is provided to the patient. For this purpose the nurses regularly communicate with the patients. Though their communication is completely regulated by the ethical and healthcare standards but 2
it can create a soft corner among nurses due to their attachment with the patient. At the cancer care centre the nurses are very confident and concerned for the condition of their patients. The multidisciplinary teams work in coordination with the care nurse so that quality service outcome can be delivered to the patients (Caring for the Symptoms of Cancer and its Treatment,2018). 3.5 Important findings In order to determine the important findings it is essential to interpret the observed data obtained through the research. For this purpose following thematic analysis is used for data analysis. Theme 1:Palliative care is essential for cancer patients. Q-1 Do you believe that palliative care is essential for cancer patients?Frequency Yes35 No10 Not sure5 Total50 Interpretation From the analysis, it is observed that majority of care providing nurses consider palliative care essential for the treatment of cancer patients. A very few nurses believes that mere treatment procedure are enough for providing such patient relief because palliative care services cannot help them to forget their sufferings. These observations clearly indicate that palliative care services are recommended by most of the nurses because they have experienced its significant and positive impact on the health outcomes of patient. 3 YesNoNot sure 0 5 10 15 20 25 30 35 Frequency
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Theme2: Analysing needs of cancer patients and providing care is possible. Q-2Do you think that you are able to analyse the specific needs of cancer patients and provide care accordingly? Frequency Yes20 No8 Not sure22 Total50 Interpretation Though nurses provide care to cancer patients but it is very challenging for them to understand their psychological needs. Out of all the nurses who participated in the study there a goodnumberofnursesexpresstheirconcernthattheyfindithardtounderstandthe psychological needs while the same number of nurses also reported that they can easily interpret the needs by developing emotional relation with their cancer patients. Theme 3:Effective training is required for providing palliative care. Q-3In order to deal with the cancer patients and their palliative care needs, effective training is required or not? Frequency Yes30 No10 Not sure10 Total50 4 YesNoNot sure 0 5 10 15 20 25 Frequency
Interpretation As compared to dealing with other patients, the nurses involved in palliative care believes that they require some sort of training. A very few nurses does not require any training because they believe that their experience and professional bond with the patient help them to analyse their needs without any specific training. Theme 4: There is need to improve existing approaches of providing palliative care to patients. Q-4 According to you, is there any need to improve the existing approaches of providing palliative care services to patients? Frequency Yes10 No35 Not sure5 Total50 5 YesNoNot sure 0 5 10 15 20 25 30 Frequency
Interpretation From the data, it has been observed that nurses believed that existing palliative care practices involves different aspects such as spiritual, emotional and psychological. Thus, most of the nurses favoured that there is no need to improve current care practices. However, some nurses are not sure that if there is need of improvement or not. One of the possible reason for this may be that they have experienced both positive and ineffective results of palliative care on different patients. Theme 5: There is impact on mental health while providing care to cancer patients. Q-5 Is there any specific impact on your mental health while providing palliative care to the cancer patients? Frequency Yes42 No5 Not sure3 Total50 6 YesNoNot sure 0 5 10 15 20 25 30 35 Frequency
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Interpretation Providing care services to cancer patients has significant impact on the psychological state of the nurses. The same has been accepted by almost all the nurses. More than 80% of nurses agreed to the fact that during palliative care sessions when they witness the patients their thoughts and metal stability is influenced. However, a very few nurses have overcome this aspect by their experience. 3.6 Summary The palliative care can be considered as an essential supportive care for the people suffering from critical diseases like cancer. The same has been also appreciated by the health care professionals. The nurses closely witness the health outcomes of cancer patients and thus they are capable to understand and influence the palliative care provided to the patients (Becker and et.al., 2017). From the data analysis, it has also been analysed that cancer patients need special attention from emotional perspective thus training sessions for novice nurses can be grateful to help them so that they can understand the requirements of cancer patients. 7 Yes No Not sure
CHAPTER 4: DISCUSSION AND CONCLUSION 4.1 Summary The experienced as well as new graduate nurses believe that the palliative care is mandatory for overall well-being of the cancer patients. It becomes essential for the health care professionals to provide complete support care to people. For this purpose the nurses must be trained and acknowledged so that they can understand that their availability and cooperation can bring significant improvements to the life care of cancer patients. The active involvement of nurses with patients can help other health professionals to formulate suitable health interventions for treating and comforting cancer patients. 4.2 Discussion The attributes such as personal involvement, kindness and compassion are essential so that nurses can attentively help their patients in providing care. However, with palliative care nurses must assure that these attributes do not affect their professional commitment. For quality standards of palliative care the professionals and personal competence of nurses and their dedication are important factors (Worster and Swartz, 2017). It is also possible that due to excessive burden or work and responsibilities and due to primary focus on medication the nurses may not pay attention to the palliative needs of cancer sufferer. The nurses may consider that these care approaches will not alter the situation. However, the palliative care services can greatly change the perspective of patients and outcomes of other key treatment provided to these cancer patients. The nurses must assure that their interaction with patients can help them to develop effective nursing interventions. 4.3 Conclusion From the research, it can be concluded that nurses acts as connecting link between cancer patients, carers and other healthcare professionals which are involved in providing palliative care to the patient. Along with that, basic skills and knowledge of nursing nurses are also required to have sufficient skills to provide tailored care services to people suffering from life challenging diseases such as cancer. Thus, it can also be concluded from the study that palliative care can be improved only when nurses are able to face challenges in every aspect of relation, moral and practical dimension of health care. 1
4.4 Recommendations In relation to the significance of nurses, these professionals must be highly skilled and efficient in their role. Thus, it is recommended that nurses must focus on enhancing their cooperative skills so that while providing palliative care they can support multidisciplinary teams as well as patient. The nurses must have clarity regarding their role so that complexity and negligence can be eliminated during palliative care (Broom and et.al., 2015). The palliative services can improve quality of life of patients only when nurses can understand the needs of patients. With cancer patients these needs are associated more with psychology than physical. For providing effective care services nurses are also recommended communicating with their patients effectively without including any cultural or other barriers. 4.5 Critical reflection on methodology During the study several methodological challenges were encountered. With the use of qualitative analysis it is possible that the study results may not be applicable to all healthcare providers and nurses. However, to minimize this impact the samples were taken from wide range from novice nurses to experience nurses. While making conclusions and data analysis the efficiency and experience of nurses in palliative care and serving cancer patients was not considered. This can alter the variation in the research outputs because the experience can influence the overall perspective and role of nurses (Hosie and et.al., 2015). Though ethical considerations were followed but it is also possible that the data collected from the nurses may not be completely accurate. For avoiding this issues the participating nurses were assured that their confidentiality will be maintained. 2
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REFERENCES Books and Journals Beck, E.R. and et.al., 2017. Nursing home manager's knowledge, attitudes and beliefs about advance care planning for people with dementia in long‐term care settings: a cross‐ sectional survey.Journal of clinical nursing. 26(17-18). pp.2633-2645. Becker, C.L. and et.al., 2017. A cluster randomized trial of a primary palliative care intervention (CONNECT) for patients with advanced cancer: Protocol and key design considerations. Contemporary clinical trials. 54. pp.98-104. Broom, A. and et.al., 2015. Negotiating futility, managing emotions: Nursing the transition to palliative care.Qualitative Health Research. 25(3). pp.299-309. Cherry, B. and Jacob, S.R., 2016. Contemporary nursing: Issues, trends, & management. Elsevier Health Sciences. Fitch, M.I., Fliedner, M.C. and O’Connor, M., 2015. Nursing perspectives on palliative care 2015.Annals of palliative medicine. 4(3). pp.150-155. Hosie, A. and et.al., 2015. Nurse perceptions of the Nursing Delirium Screening Scale in two palliative care inpatient units: a focus group study.Journal of clinical nursing. 24(21-22). pp.3276-3285. Kelley, A.S. and Morrison, R.S., 2015. Palliative care for the seriously ill.New England Journal of Medicine. 373(8). pp.747-755. Leung, D. and et.al., 2017. Nursing patients with chronic critical illness and their families: a qualitative study.Nursing in critical care. 22(4). pp.229-237. Malloy, P. and et.al., 2017. Providing palliative care to patients with cancer: Addressing the needs in Kenya.Asia-Pacific journal of oncology nursing. 4(1). p.45. Noome, M. and et.al., 2016. The nursing role during end‐of‐life care in the intensive care unit related to the interaction between patient, family and professional: an integrative review. Scandinavian journal of caring sciences. 30(4). pp.645-661. Rodin, D. and et.al., 2015. Whose role? Oncology practitioners’ perceptions of their role in providing spiritual care to advanced cancer patients.Supportive Care in Cancer. 23(9). pp.2543-2550. Satsin, T., Matchim, Y. and Thongthawee, B., 2017. Emergency Nurses’ Competency in the Provision of Palliative Care and Related Factors.Songklanagarind Journal of Nursing. 37(Supplement). pp.41-50. 3
Wiener, L. and et.al., 2015. Threading the cloak: palliative care education for care providers of adolescents and young adults with cancer.Clinical oncology in adolescents and young adults. 5. p.1. Worster, B. and Swartz, K., 2017. Telemedicine and palliative care: an increasing role in supportive oncology.Current oncology reports. 19(6). p.37. Online Caring for the Symptoms of Cancer and its Treatment.2018. [Online]. Accessed through: <https://www.cancer.net/navigating-cancer-care/how-cancer-treated/palliative-care/ caring-symptoms-cancer-and-its-treatment>. DataCollectionMethods.2018.[Online].Accessedthrough:<https://research- methodology.net/research-methods/data-collection/>. PalliativeCancerCareGuidelines.2018.[Online].Accessedthrough: <https://emedicine.medscape.com/article/2500043-overview>. Researchmethods.2019.[Online].Accessedthrough: <https://www.skillsyouneed.com/learn/research-methods.html>. 4
APPENDIX Questionnaire Name- __________________ Age- ___________________ Gender- _________________ Q- 1 Do you believe that palliative care is essential for cancer patients? Yes No Not sure Q-2 Do you think that you are able to analyse the specific needs of cancer patients and to make interventions accordingly? Yes No Not sure Q-3 In order to deal with the cancer patients and their palliative care needs, does it require for you to have additional training and learning? Yes No Not sure Q-4 According to you, is there any need to improve the existing approaches of providing palliative care services to patients? Yes No Not sure Q-5 Is there any specific impact on your mental health while providing palliative care to the cancer patients? 5
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